Petition updateRaising Dystonia Awareness a Neurological Movement Disorder to get better treatmentJENNIFER’S STORY
Sharon JonesStafford, ENG, United Kingdom

May 9, 2022
This is a condition I have. It affects my neck and vocal cords. Most Drs will never come across it so it's very hard to get diagnosed (took me 10 years) after I asked for brain surgery. I now get botox injections in my neck every 3 months, they want to inject my vocal cords but I'm too scared for that right now.
Mine is genetic but it can also be caused by head injuries or medication.
Please sign this petiton to help this non curable condition thats very misunderstood and much misdiagnosed"
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