Petition updateTogether we can help fight a disease impacting sickle cell trait carriers
6,000 and counting!!! AMAZING!!

R.M.C. Renal Medullary Carcinoma Inc.

12 Sept 2016
We are blown away with the amazing support we have received from all over the world since the start of this petition 3 months ago. Today, we have over 6,000 signatures and counting!
You may have noticed that we have begun using the hashtags #rarebutnotinvisible
#thethreelettersyou' llneverhearuntil-it'syou, on our social media pages. I'm sure many of you like us, had never heard of RMC until a loved one or friend was diagnosed. RMC is considered an invisible cancer- with no screening guidelines, treatments and it being so rare, most people remain undiagnosed (or misdiagnosed) until the most severe stage of cancer.... Stage 4. This invisibility has to END.
It's crazy to think that 6,000 people have signed this petition and the awareness that has come from YOU sharing about RMC.
We have read each and every comment, and it's obvious to us at R.MC. Inc that we, as a community are ready for a huge change. We want to share with you one of the largest accomplishments for RMC this year – and that is the formation of the RMC Alliance. A group that includes medical professionals, scientists, and us).
Read more about the challenges to fighting RMC, the formation of the RMC Alliance and the most current information about RMC at this link:
https://news.vanderbilt.edu/2016/08/18/vicc-helps-launch-new-alliance-for-rare-kidney-cancer/
As sickle cell awareness month continues, we want to challenge you to continue the momentum this petition started.
Here is how:
1. If you haven’t liked us yet, visit our social media sites (Facebook: RMC Support, Instagram: @RMCawarenes, Twitter: @RMCawareness) to learn more and share new content with the hashtags - #rmcawareness #rarebutnotinvisible
2. Join our RMC social media challenges for sickle cell awareness month.
3. Share: the RMC Alliance article by printing or sharing on social media with your friends, medical professionals, patient advocates, legislators, local news channels.
4. Continue: to share this petition - the more signatures we have, the more impact.
5. Volunteer: We are pushing ourselves to create resources and awareness for RMC. Every single person and skill can be of use.
Every single signature is a boost for all of us, in the hope of reaching our decision makers to acknowledge this forgotten disease. With so many of you helping us share this petition, we really feel like we can make a difference and help others. Your support for all of the families who have been affected by this relentless disease means so much. We all thank you from the bottom of our hearts.
Sincerely,
R.M.C. Inc.
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