2,500 signatures on our petition at the time of writing! This is a tremendous achievement for so short a space of time. Thank you to everyone who has taken part and to those who have also gone to the trouble of leaving comments. NICE contacted all stakeholders today confirming that "after considering the evidence and consulting with experts, we have provisionally decided not to update this guideline." We have been asked to consider their proposal (below) and respond by Friday 21st July at 5pm (slightly less time that we were expecting): https://www.nice.org.uk/…/docu…/surveillance-review-proposal Dr Charles Shepherd, Hon. Medical Adviser to the ME Association, will be attending a Forward ME Group meeting tomorrow with the Countess of Mar and other ME/CFS charity representatives, when the NICE consultation will be discussed. Over the next few days we will be considering our response and will of course keep you informed. In the meantime, please let others know about the petition and let them know why it is so important that we have a clinical guideline that actually works for people with this disease. Thank you The ME Association