L'hermitte duclos

Hi all, so not updated for a while due to health issues. I have been diagnosed with a b9 brain tumor called lhermitte duclos. I will have had it for years but it most likely grew slightly as I had to stop rapamycin for a while due to low WBC. I am now back on rapamycin so will see if I have an improvement when my brain is scanned again. There is one case in the literature of this happening. I am now taking to a doctor who is considering prescribing me rapamycin. If he does it will be a great leap forward. As always if you want to contact me my email address is levymelanie@hotmail.com please keep sharing xx