Petition updateMake Soliris (Eculizumab) Available for Dialysis Patients with aHUS in Australia.

Those with access to Soliris are being forced to come off in December to "see what happens."

Jeff SchmidtRoyersford, PA, United States
Oct 26, 2016
Those in Australia who are not on dialysis and have had access to Soliris since December 2014, will be losing their access in December 2016. They will be required to come of this life-saving drug to “see what happens”. The Australian government is going to gamble with their lives hoping to not have to pay for this expensive drug. But what is likely to happen is these patients will relapse causing further kidney damage or worse. And that will lead to dialysis. Please tell your friends to sign and share this petition! And tell Sussan Ley, MP that those on dialysis should have access to this drug, and those who have access now should not lose that access. Email her at the following addresses: sussan.ley.mp@aph.gov.au minister.ley@health.gov.au
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