When Jack lost his life following the NDIA's sudden change to his support plan, it was supposed to be a wake-up call to our leaders. The disability community had been raising concerns for years about the dangers of removing choice and control from participants, yet Jack’s story was a heartbreaking confirmation of their fears. Now, Kevin—a close friend of Jack’s and another person with Duchenne Muscular Dystrophy (DMD)—is living in fear. For over a year, Kevin has been denied the 1:1 support that would allow him to live safely and independently. Instead of receiving the care he urgently needs, he is being left at risk—just as Jack was. 

In the face of this systemic neglect, I’ve written another open letter to Minister Bill Shorten, calling for immediate action. The NDIS must return to its core mission: to protect the lives of people with disabilities, not place them in harm’s way.

It saddens me deeply to write this again so soon after Jack’s death, but I feel I have no choice. With permission from both Kevin and Jack’s family, I’m sharing their stories to make sure their voices are heard. Please read, share, and help amplify this message—before more lives are lost. Sign the petition to help ensure no one else has to face these risks: change.org/listentojack

ID: Kev (top left), Jack (top right), Tahlia (middle left), Izzi (middle right), and Arnijka (bottom) are posing together, looking at the camera during a community social event in Cabarita, enjoying their time together.

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