Nice boost in signatures this week. Keep up the good work! Our campaign is receiving emails from supporters telling us Senators are responding to their emails. The Senate has jurisdiction over the FDA. Therefore, getting our U.S. Senators to take action is a very important facet of our campaign. This weekend, call or email both of your U.S. Senators (contact info provided below). Thank you for all you're doing to make this campaign so successful, Jehad Majed (jmajed@mac.com), Nick Grillo (gm6nick@gmail.com), Bethany Wolfe, and the Torrico Family MESSAGE TO US SENATORS [Share your personal story or just state that you are contacting the Senator on behalf of the ALS Community]. The 2012 FDASI Act gave the FDA authority to deviate from rigid rules and demonstrate flexibility in providing the terminally ill access to new treatment options. For the past month, thousands of people have been urging the FDA to grant Accelerated Approval with post-marketing requirements for a new ALS treatment, Genervon’s GM604. This request is based on: 1) Demonstrated Safety 2) Evidence of Efficacy 3) GM604 meets the criteria for the Accelerated Approval Program (AAP): a. Surrogate Endpoints: Genervon's Phase 2A trials showed improvements in the treated group in both clinical measurements and multiple biomarker measurements. b. Urgent and Unmet Need: No new treatment for ALS has been approved since Rilutek in 1995, which extends life expectancy by a few months with no improvement to quality of life. Another multi-year clinical trial for GM604 is a death sentence for more than 500,000 people. Our FDA is under the jurisdiction of the U.S. Senate. Therefore, it is ultimately our elected officials’ responsibility to ensure that the right of life and the personal liberties of terminally ill patients are protected. This includes the right of these patients to access potentially life saving treatments. On my behalf, please contact the FDA today and tell them that you support our self-advocacy and understand the urgency in getting potentially life-saving treatments to patients with ALS. Also, please ensure that Genervon’s GM604 is being given full and fair consideration for the Accelerated Approval Program. Alabama Sessions, Jeff - (R - AL) (202) 224-4124 http://www.sessions.senate.gov/public/index.cfm/contact-jeff Shelby, Richard C. - (R - AL) (202) 224-5744 http://www.shelby.senate.gov/public/index.cfm/emailsenatorshelby Alaska Murkowski, Lisa - (R - AK) 202) 224-6665 http://www.murkowski.senate.gov/public/index.cfm/emaillisa Sullivan, Daniel - (R - AK) (202) 224-3004 http://www.sullivan.senate.gov/content/contact-dan Arizona Flake, Jeff - (R - AZ) (202) 224-4521 http://www.flake.senate.gov/public/index.cfm/contact-jeff McCain, John - (R - AZ) (202) 224-2235 http://www.mccain.senate.gov/public/index.cfm/contact-form Arkansas Boozman, John - (R - AR) (202) 224-4843 http://www.boozman.senate.gov/public/index.cfm/e-mail-me Cotton, Tom - (R - AR) 202) 224-2353 http://www.cotton.senate.gov/content/contact-tom California Boxer, Barbara - (D - CA) (202) 224-3553 https://www.boxer.senate.gov/contact/shareyourviews.html Feinstein, Dianne - (D - CA) (202) 224-3841 https://www.feinstein.senate.gov/public/index.cfm/e-mail-me Colorado Bennet, Michael F. - (D - CO) (202) 224-5852 http://www.bennet.senate.gov/?p=contact Gardner, Cory - (R - CO) (202) 224-5941 http://www.gardner.senate.gov/content/contact-cory Connecticut Blumenthal, Richard - (D - CT) (202) 224-2823 https://www.blumenthal.senate.gov/contact Murphy, Christopher - (D - CT) (202) 224-4041 http://www.murphy.senate.gov/contact Delaware Carper, Thomas R. - (D - DE) (202) 224-2441 http://www.carper.senate.gov/public/index.cfm/email-senator-carper Coons, Christopher A. - (D - DE) (202) 224-5042 http://www.coons.senate.gov/contact/ Florida Nelson, Bill - (D - FL) (202) 224-5274 http://www.billnelson.senate.gov/contact-bill Rubio, Marco - (R - FL) (202) 224-3041 http://www.rubio.senate.gov/public/index.cfm/email-senator-rubio?p=Contact Georgia Isakson, Johnny - (R - GA) (202) 224-3643 http://www.isakson.senate.gov/public/index.cfm/email-me Perdue, David - (R - GA) (202) 224-3521 http://www.perdue.senate.gov/content/contact-david Hawaii Hirono, Mazie K. - (D - HI) (202) 224-6361 http://www.hirono.senate.gov/contact/email Schatz, Brian - (D - HI) (202) 224-3934 http://www.schatz.senate.gov/contact Idaho Crapo, Mike - (R - ID) (202) 224-6142 http://www.crapo.senate.gov/contact/email.cfm Risch, James E. - (R - ID) (202) 224-2752 http://www.risch.senate.gov/public/index.cfm/email Illinois Durbin, Richard J. - (D - IL) (202) 224-2152 http://www.durbin.senate.gov/contact/email Kirk, Mark - (R - IL) (202) 224-2854 http://www.kirk.senate.gov/?p=comment_on_legislation Indiana Coats, Daniel - (R - IN) (202) 224-5623 http://www.coats.senate.gov/contact/ Donnelly, Joe - (D - IN) (202) 224-4814 http://www.donnelly.senate.gov/contact/email-joe Iowa Ernst, Joni - (R - IA) (202) 224-3254 http://www.ernst.senate.gov/content/contact-joni Grassley, Chuck - (R - IA) (202) 224-3744 http://www.grassley.senate.gov/constituents/questions-and-comments Kansas Moran, Jerry - (R - KS) (202) 224-6521 http://www.moran.senate.gov/public/index.cfm/e-mail-jerry Roberts, Pat - (R - KS) (202) 224-4774 http://www.roberts.senate.gov/public/index.cfm?p=EmailPat Kentucky McConnell, Mitch - (R - KY) (202) 224-2541 http://www.mcconnell.senate.gov/public/index.cfm?p=ContactForm Paul, Rand - (R - KY) (202) 224-4343 http://www.paul.senate.gov/?p=contact Louisiana Cassidy, Bill - (R - LA) (202) 224-5824 http://www.cassidy.senate.gov/content/contact-bill Vitter, David - (R - LA) (202) 224-4623 http://www.vitter.senate.gov/contact/email-senator-vitter Maine Collins, Susan M. - (R - ME) (202) 224-2523 http://www.collins.senate.gov/public/index.cfm/email King, Angus S., Jr. - (I - ME) (202) 224-5344 http://www.king.senate.gov/contact Maryland Cardin, Benjamin L. - (D - MD) (202) 224-4524 http://www.cardin.senate.gov/contact/ Mikulski, Barbara A. - (D - MD) (202) 224-4654 http://www.mikulski.senate.gov/contact Massachusetts Markey, Edward J. - (D - MA) (202) 224-2742 http://www.markey.senate.gov/contact Warren, Elizabeth - (D - MA) (202) 224-4543 http://www.warren.senate.gov/?p=email_senator Michigan Peters, Gary - (D - MI) (202) 224-6221 http://www.peters.senate.gov/content/contact-gary Stabenow, Debbie - (D - MI) (202) 224-4822 http://www.stabenow.senate.gov/?p=contact Minnesota Franken, Al - (D - MN) (202) 224-5641 http://www.franken.senate.gov/?p=email_al Klobuchar, Amy - (D - MN) (202) 224-3244 http://www.klobuchar.senate.gov/public/email-amy Mississippi Cochran, Thad - (R - MS) (202) 224-5054 http://www.cochran.senate.gov/public/index.cfm/email-me Wicker, Roger F. - (R - MS) (202) 224-6253 http://www.wicker.senate.gov/public/index.cfm/contact Missouri Blunt, Roy - (R - MO) (202) 224-5721 http://www.blunt.senate.gov/public/index.cfm/contact-roy McCaskill, Claire - (D - MO) (202) 224-6154 http://www.mccaskill.senate.gov/contact Montana Daines, Steve - (R - MT) (202) 224-2651 http://www.daines.senate.gov/content/contact-steve Tester, Jon - (D - MT) (202) 224-2644 http://www.tester.senate.gov/?p=email_senator Nebraska Fischer, Deb - (R - NE) (202) 224-6551 http://www.fischer.senate.gov/public/?p=email-deb Sasse, Ben - (R - NE) (202) 224-4224 http://www.sasse.senate.gov/content/contact-ben Nevada Heller, Dean - (R - NV) (202) 224-6244 http://www.heller.senate.gov/public/index.cfm/contact-form Reid, Harry - (D - NV) (202) 224-3542 http://www.reid.senate.gov/contact New Hampshire Ayotte, Kelly - (R - NH) (202) 224-3324 http://www.ayotte.senate.gov/?p=contact Shaheen, Jeanne - (D - NH) (202) 224-2841 http://www.shaheen.senate.gov/contact/ New Jersey Booker, Cory A. - (D - NJ) (202) 224-3224 http://www.booker.senate.gov/?p=contact Menendez, Robert - (D - NJ) (202) 224-4744 http://www.menendez.senate.gov/contact New Mexico Heinrich, Martin - (D - NM) (202) 224-5521 http://www.heinrich.senate.gov/contact/write-martin Udall, Tom - (D - NM) (202) 224-6621 http://www.tomudall.senate.gov/?p=contact New York Gillibrand, Kirsten E. - (D - NY) (202) 224-4451 http://www.gillibrand.senate.gov/contact/ Schumer, Charles E. - (D - NY) (202) 224-6542 http://www.schumer.senate.gov/contact/email-chuck North Carolina Burr, Richard - (R - NC) (202) 224-3154 http://www.burr.senate.gov/public/index.cfm?FuseAction=Contact.ContactForm Tillis, Thom - (R - NC) (202) 224-6342 http://www.tillis.senate.gov/content/contact-thom North Dakota Heitkamp, Heidi - (D - ND) (202) 224-2043 http://www.heitkamp.senate.gov/public/index.cfm/email-heidi Hoeven, John - (R - ND) (202) 224-2551 http://www.hoeven.senate.gov/public/index.cfm/email-the-senator Ohio Brown, Sherrod - (D - OH) (202) 224-2315 http://www.brown.senate.gov/contact Portman, Rob - (R - OH) (202) 224-3353 https://www.portman.senate.gov/public/index.cfm/contact-form Oklahoma Inhofe, James M. - (R - OK) (202) 224-4721 http://www.inhofe.senate.gov/contact Lankford, James - (R - OK) (202) 224-5754 http://www.lankford.senate.gov/content/contact-james Oregon Merkley, Jeff - (D - OR) (202) 224-3753 http://www.merkley.senate.gov/contact Wyden, Ron - (D - OR) (202) 224-5244 http://www.wyden.senate.gov/contact Pennsylvania Casey, Robert P., Jr. - (D - PA) (202) 224-6324 http://www.casey.senate.gov/contact Toomey, Patrick J. - (R - PA) (202) 224-4254 http://www.toomey.senate.gov/?p=contact Rhode Island Reed, Jack - (D - RI) (202) 224-4642 http://www.reed.senate.gov/contact/email Whitehouse, Sheldon - (D - RI) (202) 224-2921 http://www.whitehouse.senate.gov/contact/ South Carolina Graham, Lindsey - (R - SC) (202) 224-5972 http://www.lgraham.senate.gov/public/index.cfm?FuseAction=Contact.EmailSenatorGraham Scott, Tim - (R - SC) (202) 224-6121 http://www.scott.senate.gov/contact/email-me South Dakota Rounds, Mike - (R - SD) (202) 224-5842 http://www.rounds.senate.gov/content/contact-mike Thune, John - (R - SD) (202) 224-2321 http://www.thune.senate.gov/public/index.cfm/contact Tennessee Alexander, Lamar - (R - TN) (202) 224-4944 http://www.alexander.senate.gov/public/index.cfm/email Corker, Bob - (R - TN) (202) 224-3344 http://www.corker.senate.gov/public/index.cfm/emailme Texas Cornyn, John - (R - TX) (202) 224-2934 http://www.cornyn.senate.gov/public/index.cfm?p=ContactForm Cruz, Ted - (R - TX) (202) 224-5922 http://www.cruz.senate.gov/?p=email_senator Utah Hatch, Orrin G. - (R - UT) (202) 224-5251 http://www.hatch.senate.gov/public/index.cfm/email-orrin Lee, Mike - (R - UT) (202) 224-5444 http://www.lee.senate.gov/public/index.cfm/contact Vermont Leahy, Patrick J. - (D - VT) (202) 224-4242 https://www.leahy.senate.gov/contact/ Sanders, Bernard - (I - VT) (202) 224-5141 http://www.sanders.senate.gov/contact/comment Virgina Kaine, Tim - (D - VA) (202) 224-4024 https://www.kaine.senate.gov/contact Warner, Mark R. - (D - VA) (202) 224-2023 http://www.warner.senate.gov/public/index.cfm?p=ContactPage Washington Cantwell, Maria - (D - WA) (202) 224-3441 http://www.cantwell.senate.gov/public/index.cfm/email-maria Murray, Patty - (D - WA) (202) 224-2621 http://www.murray.senate.gov/public/index.cfm/contactme West Virgina Capito, Shelley Moore - (R - WV) (202) 224-6472 http://www.capito.senate.gov/content/contact-shelley Manchin, Joe, III - (D - WV) (202) 224-3954 http://www.manchin.senate.gov/public/index.cfm/contact-form Wisconsin Baldwin, Tammy - (D - WI) (202) 224-5653 http://www.baldwin.senate.gov/contact Johnson, Ron - (R - WI) (202) 224-5323 http://www.ronjohnson.senate.gov/public/index.cfm/email-the-senator Wyoming Barrasso, John - (R - WY) (202) 224-6441 http://www.barrasso.senate.gov/public/index.cfm/contact-form Enzi, Michael B. - (R - WY) (202) 224-3424 http://www.enzi.senate.gov/public/index.cfm/e-mail-senator-enzi