The sheer frustration I feel this evening is difficult to express. We met with Matt Hancock a year ago. It has taken monumental effort to arrange a meeting with Sajid Javid in 2 weeks, on the 18th July. How long will it take to gain the attention of the next Secretary of State? In the meantime lack of progress costs lives. Real lives. Lives like Jess. And it really matters. Thank goodness for you, the community, supporting this petition. Please keep sharing and raising awareness. I will not give up despite the constant obstacles and procrastination. 4Jess.