Matty Jones suffers from extremely rare Dense Deposit Disease (DDD) His kidneys become blocked with proteins and will soon fail His family claim the drug Eculizumab can save his life - but their application for their local hospital to fund the drug has been rejected They have launched a petition to make the drug available on the NHS The family of a teenager with an extremely rare condition that may kill him within five years is begging the NHS to fund a drug which could save his life.