Antibodies should be available on the NHS for Neuroblastoma patients
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My name is Shelley Wells.
I am currently leading the Help Alfie Beat Neuroblastoma Team alongside Alfies mother.
We are currently raising funds for Alfie to to have Antibody treatment however due to the recent press release from NICE the situation does not look to be improving....
Last week there was a press release regarding antibody treatment for children with Neuroblastoma called dinutuximab beta.
This has been with NICE to see if it can be given to children on the NHS. The information released is not looking as positive as we had hoped for. NICE believe that the drug is too expensive to give to NEUROBLASTOMA children and not cost effective enough.
This drug has been on trial for several years and is showing some promising results. There is a high probability that it will give a child an extra 20% chance of survival.
Not only does it improve chance of survival it can also kill off stubborn tumours. The Bradley Lowery Foundation who support Alfies Appeal along with other children in the same situation are hoping to get this decision overturned along with other cancer campaigns
This drug is being used in the USA, and other parts of Europe, I really hope all involved with the decision to approve this drug come to a prompt and effective solution as soon as possible.
New drugs for any childhood cancer are far and few between. We need to move forward with this not back. Do we really want to behind other countries in cancer treatment?
Or do we want to show the world we are just as good if not better?
Together we can make a difference❤️❤️
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