Thanks everyone we have some amazing news for Theo and other SMA babies going forward. Belgium, Ireland and Netherlands have reached an agreement on the pricing of Zolgensma. https://beneluxa.org/news2 From my correspondence with the HSE. """ for the treatment of patients with SMA with a bi-allelic mutation in the SMN1 gene and a clinical diagnosis of SMA Type I, or pre-symptomatic patients with 5q SMA with a bi-allelic mutation in the SMN1 gene and up to 3 copies of the SMN2 gene""" A big thanks to everyone that signed and helped with sharing awareness for this. Your support has helped us so much We still have to wait for Theo's antibody results which we will have in next few days and then we can look forward to getting him his treatment in next few weeks. Please continue to follow theosbestlife.com for further information on his journey with SMA. THANKS AGAIN. Shane, Stephanie and the main man THEO