Governments have always chosen to not fund ME/CFS research .

ME/CFS has consistently been ignored by UK governments over decades leaving research funding largely to charities and sufferers being abandoned by the state and health care.  At the same time governments simultaneously want NEET's (young people not in education or employment) to return to education or employment!  It's  known that the most common ages for ME/CFS to start is in the teens and in the 20's to 30's - the peak ages for education and building careers and having families. Many of the NEET sufferers are part of the UK over 400,000 ME/CFS sufferers and 1.4 million when including long covid sufferers many of whom meet the threshold for an ME/CFS diagnosis and who would love to return to their former healthy lives but cannot.  We hope Andy Burnham has read The Times article and invests like Germany has in research noting that successful health outcomes will mean ME/CFS and Long Covid sufferers CAN return to education and employment and reduce the cost burden to the nation.  We keep hoping.

There is no cure or treatment for ME/CFS!

There are no specialist doctors to refer to for ME/CFS!

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