Petition updateGet NHS England to reconsider its decision not to fund everolimus for TSC-related epilepsy

Newsflash - Australians get access to #everolimusforepilepsy

mikaela Conlin-HulmeLEEDS, ENG, United Kingdom
Aug 23, 2018

Let's get our voices heard by @NHSEngland

First it was NHS Scotland and now the Australian Government has approved funding for #everolimusforepilepsy. The Australian government interviewed 60 patients before making their decision, we need to urge NHS England to listen to the evidence and fund everolimus for TSC-related epilepsy in England.

'We are delighted to hear the news that the Australia government listened to evidence from more than 60 patients before making its decision to fund everolimus for TSC-related refractory epilepsy. Huge congratulations to Clare Stuart and the TSA Australia team in Sydney. TSA Australia are actively supporting our campaign here in England, which we very much appreciate.

NHS Scotland's recent decision to fund everolimus for TSC-related epilepsy, and now Australia's decision to do the same, proves that community involvement really can and does have an impact.

By getting in touch with your MP and asking them to lobby NHS England on our behalf you really could make a difference.

So please take action today.

Thank you.'            Maxine Smeaton, Interim CEO of the TSA UK

You can email your MP TODAY by using our step by step guide here.

Together we can be the difference, Thank you.

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