Us sufferers all know too well that we receive very little, in the way of support from the government and healthcare system and are often misdiagnosed, due to a lack of understanding of the disease. But what I do know is that there are people lobbying on your behalf with this petition and that there is support groups out there :)
Below are the official and recognised members of the FibroIreland Network.
We act in partnership and support with each other.
All listed groups are currently undergoing training to ensure full compliance with the incoming Charity Regulatory Authority Good Governance regulations. All groups are fully compliant with General Data Protection Regulations (GDPR).
FibroIreland Network Groups:
Carlow Group
Carlow Fibromyalgia Support Group is a registered charity (Reg. Charity Number 20104665). They meet weekly for coffee mornings and organize regular courses and workshops.
The helplines for Carlow FM support group are as follows:
Contact Katherine 089 4387283
email fibrocarlow@gmail.com
Facebook:
https://www.facebook.com/groups/fibrocarlow/ (closed group)
and
https://www.facebook.com/Carlow-Fibromyalgia-Support-747070248643418/
Cork Group
Meetings of the Cork Group afford an opportunity to meet others with FM with guest speakers when possible.
Contact Helen/Kathleen/Regina
email helen_sheahan@hotmail.com for link to Group
Facebook: https://www.facebook.com/groups/Fibromyalgia.chat.and.support.forum/
Web: http://fibromyalgiasupport.ie
Donegal Fibromyalgia Support Group
The Donegal Fibromyalgia Support Group / Fibromates are a registered charity (Reg. Charity Number 20105358) would like to provide strength through reassurance, friendship, comfort and support to all those living with the condition of fibromyalgia both patients and families alike.
Patients and family members welcome. Refreshments provided. Meetings once a month.
Stranorlar - Milbrae Health Centre 6.30 - 8.30pm
email fibromates@outlook.com
call 089 415 6802
Dublin Support Group
Clongriffin Group, Northside, Dublin 13
The aim of this group is to provide an opportunity for people whose lives have been affected by Fibromyalgia to come into contact with people just like them and to share experiences in a friendly, welcoming atmosphere. Meetings once a month on Thursday evenings at 7.30pm. There is a either a speaker meeting or a general group meeting.
Contact Rachel 087 997 6252 (Tues -Thurs 5pm-7pm)
email northside[@]fibroireland.com
Dublin Facebook groups:
FibroIreland
https://www.facebook.com/fibroireland/
NorthSide Fibro Dublin
facebook.com/NorthsideFibroDublin
FibroFridge
https://www.facebook.com/groups/FibroFridge/
A closed group for people who are interested in the nutritional management of Fibromyalgia.
FACE Fibro and M.E.
https://www.facebook.com/search/top/
This closed group has been set up for young people and students with Fibromyalgia, ME, CFS and SEID. The aim of the group is to provide support to help each other manage health and college life. Age 18 plus.
FibroIreland, NorthSideFibro Dublin, FibroFridge, FACE Fibro and M.E. are listed under FibroIreland. FibroIreland is part of Donegal Fibromyalgia Support Group Charity number 20105359
North East Fibromyalgia Support Group
The North East Fibromyalgia Support Group (formerly the Drogheda Support Group) meets once a month in the Sage & Stone, Duleek.
For dates of meetings please contact Ken Simpson at info@nefibro.com or join us on Facebook at www.facebook.com/groups/nefibro
Wexford Fibro Warriors
Facebook: https://www.facebook.com/groups/WexfordFibroWarriors/
email contact Jen Devlin and Rosie O’Rourke wexfordfibrowarriors@gmail.com
This group meets monthly.
Fibromyalgia Awareness Northern Ireland
Web: https://www.fmani.uk/
Facebook:https://www.facebook.com/fibromyalgia.awareness.northern.ireland/
email contact David Moore info@fmani.uk or office@fmani.uk
2 Catherine St., Limavadi, BT 49 9DB
Phone 0044 (0)2877768066, Helpline: 0044 (0) 8456003213