Thank you thank you thank you!!! Over 5,000 signatures! We are a TINY disease group and that makes us vulnerable. We are tiny but NPC is one of the worst diseases imaginable, and a future of losing everything is facing each of these beautiful faces if they lose the medicine helping them.

Our NPC community has two experimental therapies that children and adult's lives rely on - they are BOTH at risk of being taken away. Please keep sharing with your family, friends and community. Our children need you and this is urgent.

In this photo some of the NPC patients whose lives are on the line - Nicole, Brody and Owen, Samantha, Humberto, Vivi, Emerson, Reagan, Johnathan, Tannah, Will, Lara and Willow

If you'd like to donate to help NPC familiies efforts to save their medicine you can do so at: www.gofundme.com/saveourmedicine

Thank you so much! More updates to come soon! Please keep sharing, it's making such a differece! We can do this together, thank you!!!

NPC moms and patients