An update of sorts

While there’s been no response from the FDA yet, I didn’t want to leave everyone without an update & without saying ‘thank you’ to everybody who has signed & shared this petition! All the children & families this affects are extremely grateful! I also thought it would be beneficial to share a couple of links that might be of interest to supporters of this petition. Duchenne Now is a small charity which funds research for a treatment or cure for DMD. 100% of money donated goes straight to fund this research. http://duchennenow.org A brief blog post from a father about his experiences with his son’s Duchenne: http://community.parentprojectmd.org/profiles/blogs/late-night-confessions-are-hope-and-truth-compaitible More links to petitions etc. will follow in the next update (& hopefully some good news!).