Petition update

EPP - The Shadow Jumping Disease

Swiss Society for Porphyria - www.porphyria.ch

Apr 30, 2018 — NOW WITH ENGLISH SUBTITLES! In this impressive and moving video two EPP sufferers tell their story about living with their disease - EPP causes excruciatingly painful phototoxic reactions after only a short time in the sun (mostly after only a few minutes) and leads to a life of isolation and pain - Conny and Mischa talk about it.


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