Petition update

EPP - The Shadow Jumping Disease

Swiss Society for Porphyria -

Apr 30, 2018 — NOW WITH ENGLISH SUBTITLES! In this impressive and moving video two EPP sufferers tell their story about living with their disease - EPP causes excruciatingly painful phototoxic reactions after only a short time in the sun (mostly after only a few minutes) and leads to a life of isolation and pain - Conny and Mischa talk about it.

Keep fighting for people power!

Politicians and rich CEOs shouldn't make all the decisions. Today we ask you to help keep free and independent. Our job as a public benefit company is to help petitions like this one fight back and get heard. If everyone who saw this chipped in monthly we'd secure's future today. Help us hold the powerful to account. Can you spare a minute to become a member today?

I'll power Change with $5 monthlyPayment method


Please enter a comment.

We were unable to post your comment. Please try again.