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Petition updateEin Leben ohne Sonne! Vivre sans soleil! Vivere senza sole! Living without sun!Reportage sur RTS Info Le 19h30 - Le Grand Format: EPP - 29 juillet 2016
Swiss Society for Porphyria - www.porphyria.ch
Jul 30, 2016 — http://www.rts.ch/play/tv/19h30/video/en-suisse-60-personnes-sont-atteintes-de-protoporphyrie-erithropoetique?id=7908832 En Suisse, 60 personnes sont atteintes de protoporphyrie erithropoïétique - Le prix du seul traitement existant a doublé et plusieurs assurances refusent de le prendre en charge.
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