Petition updateStand Up for Down SyndromeUnderstanding the Down Syndrome Act consultation - and how to respond
Caroline WarrenChipping Campden, ENG, United Kingdom
Mar 22, 2026

If you haven't done so yet, now (the next week) is the time to respond to the Down Syndrome Act consultation.

In this webinar,  Julie Duff (Chair, National Down Syndrome Policy Group (NDSPG)) and Nicola Enoch (CEO, Down Syndrome UK) explain the latest updates on the Down Syndrome Act and what the draft consultation means for parents and carers.

They break down what the draft guidance says, why it matters, and how families can give informed feedback to help shape national guidance. Clear, practical and accessible - designed to help you understand your rights and have your say with confidence.

🎥 Watch the full webinar:
https://youtube.com/watch?v=xJ7cVFKgXD8&feature=youtu.be

The NDSPG has produced a guide to the consultation working through section by section.
https://ndspg.org/wp-content/uploads/2025/12/User-Guide-DSAct-V4.1-1.pdf

🗓️ Consultation deadline: 30th March

🔗 Useful links
Write to your MP: https://dspg.emailyourmp.uk/find-your-mp/

Support the essential work of the NDSPG: https://donate.justgiving.com/charity/nd-spg/donation-giftaid

Picture of last weeks Down Syndrome Summit in London, enabling people with DS to have a say in national policy making.

Copy link
WhatsApp
Facebook
Nextdoor
Email
X