Hoping for an Easter miracle this year and that Biogen will finally reconsider my pleas for compassionate use of their investigational ALS drug Tofersen. All I want is more time with the people I love. In the meantime, cherishing this time with family and friends, and beyond grateful for the ongoing support. Special thanks to Joelle Goldstein at PEOPLE.com for your compassion and sharing our story: Mom with Bulbar ALS Pleads for Tofersen Drug to Extend Her Life | PEOPLE.com.

Wishing a wonderful holiday to those who celebrate.