Please Help: Our Canakinumab campaign has reached the Ministry of Health

Hello All - Quick update! The issue with Canakinumab and our campaign for access has reached the media, our Premier and the Ministry of Health through a mother on Vancouver Island and her son, Landen (6). The article and her heart-breaking letter to Premier Horgan can be viewed here: https://sooke.pocketnews.ca/letter-sooke-mom-pleads-for-horgan-to-hear-her-child-requires-meds-they-cant-afford-and-msp-doesnt-cover/ We are not sure where it will go from here and will keep you posted. There is another family just a 30 minute drive from the family in the story. Their son is receiving canakinumab due to their extended health coverage (and much coordination, calls and paperwork). That family will also be speaking out to show how this variable coverage is unacceptable. It would be very helpful if you were to reach out to your MLA asap and reference her story - also to share widely via your own networks and have them do the same and sign our online petition as well. We have a letter template and backgrounder that can be adapted here: http://cassieandfriends.ca/programs/advocay/2017-bc-election-canukinumab-access/ Any inquiries can be directed to: Jennifer Wilson, Executive Director Jennifer@cassieandfriends.ca 604-617-1382 Other media interviews are being set up on the island and we are actively reaching out as well. If you have any media contacts, please let us know. Or reach out directly and make some noise! Thank you so much for any help and support you can offer. We recently saw what advocacy can accomplish from another amazing mother in our community who's daughter desperately need Solaris. We can do this! Jennifer Wilson Executive Director Cassie and Friends Society