Pictured is Shay - his life was suddenly turned upside down in April 2021 when he suffered a seizure whilst playing football. The 24-year-old, from St Albans in Hertfordshire, was later diagnosed with a Low Grade Glioma (LGG) brain tumour and he underwent surgery.  Shay and other brain tumour patients like him could benefit from Vorasidenib to delay/halt the progression of their illness. 

We now have over 6,800 signatures on the petition and are edging ever closer to the next goal of 7,500.   We are really grateful for all the support – please help us reach this goal by sharing the petition further.  We are working hard behind the scenes and are in correspondence with Servier - other charities and organisations are offering their support and trying to bring about change for the LGG community. 

(If you could pass on a reminder to anyone not registered with change.org that they need to go to their email inbox and verify their signature that would be great!)

Many thanks!

Mary & the team