If you have been following this petition you know that none of the public health officials respond to my inquiries so how obvious is it that all of these individuals appear to be involved in this travesty/denial.
Why not send your emails/letters demanding a response?
Brett P. Giroir, MD: brett.giroir@hhs.gov
Anthony S. Fauci, MD: afauci@niaid.nih.gov
Lyme Bumper Stickers (Public Service Announcement)
https://www.ebay.com/itm/123659578861
--------- Original Message ----------
From: CARL TUTTLE <runagain@comcast.net>
To: tickbornedisease@hhs.gov, brett.giroir@hhs.gov, afauci@niaid.nih.gov
Cc: (88 Undisclosed recipients)
Date: March 7, 2019 at 12:35 PM
Subject: Ending the HIV Epidemic A Plan for the United States
JAMA Editorial
February 7, 2019
Ending the HIV Epidemic A Plan for the United States
Anthony S. Fauci, MD; Robert R. Redfield, MD, George Sigounas, MS, PhD, Michael D. Weahkee, MHA, MBA, Brett P. Giroir, MD
https://jamanetwork.com/journals/jama/fullarticle/2724455
Excerpt:
The strategic initiative includes 4 pillars:
1. diagnose all individuals with HIV as early as possible after infection;
2. treat HIV infection rapidly and effectively to achieve sustained viral suppression;
3. prevent at-risk individuals from acquiring HIV infection, including the use of pre-exposure prophylaxis (PrEP); and
4. rapidly detect and respond to emerging clusters of HIV infection to further reduce new transmissions.
March 7, 2018
National Institute of Allergy and Infectious Diseases,
National Institutes of Health,
9000 Rockville Pike, Bldg 31, Room 7A03,
Bethesda, MD 20892
Attn: Anthony S. Fauci, MD, Corresponding Author
To: Drs. Fauci and Giroir,
At what point in time will our public health officials recognize the health crisis of Lyme disease in America? With over 300,000 new cases annually, Lyme now has an infection rate ten times the AIDS epidemic and twice as prevalent as breast cancer. Lyme disease is not limited to men who have sex with men or persons who inject drugs as described in your HIV Editorial so the potential risk for infection is unlimited and growing annually.
Patient testimony is describing a disease that is destroying lives, ending careers while leaving the patient in financial ruin and you have both received documentation of this testimony.
Untreated streptococcal pharyngitis can progress to rheumatic fever, causing irreversible heart damage. Untreated syphilis leads to progressive disability and dementia, and untreated HIV infection progresses to AIDS with significant disability and death. What happens to the patient with Lyme disease who goes months, years or decades before diagnosis because of a false negative serological test, missing erythema migrans (bulls-eye rash), misdiagnosis, etc.?
Post Treatment Lyme Disease Syndrome (PTLDS) after early treatment and untreated Lyme of months, years or decades are two entirely different disease states; the latter being ignored for three decades. Patients who have had a prolonged exposure to the pathogen are almost always incapacitated. The focus here in the U.S. has always been on the acute stage of disease after early treatment and that does not represent the entire patient population. Dr. Gary Wormser of New York Medical College who has been fixated on the acute stage of Lyme is the kingpin of this racketeering scheme to downplay the severity of Lyme disease and his junk science continues to be financed by the US Centers for Disease Control. “Funding: RO1 CK 000152 which appears to be an open checkbook.”
Lyme disease is capable of producing sudden death with no warning signs; [1,2,3] heart damage requiring transplant,[4] paralysis with seizures, [5] and persistent infection after antibiotic treatment [6,7,8,9,10] along with congenital transmission [11] and ability to create wheelchair bound patients. [12]
There are no public service announcements informing the public that you could become horribly disabled or die from Lyme disease.
With all this evidence Drs. Fauci and Giroir what is the motivation for downplaying the severity of Lyme disease and ignoring this runaway plague?
A response to this inquiry is requested.
Carl Tuttle
Lyme endemic Hudson, NH
Cc: Tick Borne Disease Working Group
References: (Please read them!)
1. Cardiac Tropism of Borrelia burgdorferi: An Autopsy Study of Sudden Cardiac Death Associated with Lyme Carditis. (March 2016)
http://ajp.amjpathol.org/article/S0002-9440(16)00099-7/abstract
Excerpt:
“Fatal Lyme carditis caused by the spirochete Borrelia burgdorferi rarely is identified. Here, we describe the pathologic, immunohistochemical, and molecular findings of five case patients.”
2. CDC Case Study #1: Three Sudden Cardiac Deaths Associated with Lyme Carditis: http://www.cdc.gov/mmwr/preview/mmwrhtml/mm6249a1.htm?s_cid=mm6249a1_w
3. CDC Case Study #2: A case report of a 17-year old male with fatal Lyme carditis
http://www.cardiovascularpathology.com/article/S1054-8807(15)00025-3/abstract?rss=yes
4. Professor Neil Spector: Duke physician uses near-death experience to encourage patient self-advocacy
http://www.dukechronicle.com/articles/2015/05/28/duke-physician-uses-near-death-experience-encourage-patient-self-advocacy#.VYlYnxtViko
Dr Neil Spector from Duke University required a heart transplant after his Lyme disease went undiagnosed for four years.
5. Nashua Mom in the 'Lyme Light' on Katie Couric Show
http://patch.com/new-hampshire/nashua/nashua-mom-talks-chronic-lyme-on-katie-couric-show
Fifth-grade teacher Kelly Downing was paralyzed from the neck down and interviewed by Katie Couric.
6. Application of Nanotrap technology for high sensitivity measurement of urinary outer surface protein A carboxyl-terminus domain in early stage Lyme borreliosis.
http://translational-medicine.biomedcentral.com/articles/10.1186/s12967-015-0701-z
41 of 100 patients under surveillance for persistent LB in an endemic area were positive for urinary OspA protein after antibiotic treatment.
7. Culture evidence of Lyme disease in antibiotic treated patients living in the Southeast.
http://danielcameronmd.com/culture-evidence-of-lyme-disease-in-antibiotic-treated-patients-living-in-the-southeast/
Rudenko and colleagues reported culture confirmation of chronic Lyme disease in 24 patients in North Carolina, Florida, and Georgia. All had undergone previous antibiotic treatment.
8. DNA sequencing diagnosis of off-season spirochetemia with low bacterial density in Borrelia burgdorferi and Borrelia miyamotoi infections.
https://www.ncbi.nlm.nih.gov/pubmed/24968274
Faulty/misleading antibody tests landed a sixteen year old male in a psychiatric ward when his lab results did not meet the CDC’s strict criteria for positive results. His Western blot had only four of the required five IgG bands. Subsequent DNA sequencing identified a spirochetemia in this patient’s blood so his psychiatric issues were a result of neurologic Lyme disease misdiagnosed by antiquated/misleading serology. This patient was previously treated with antibiotics.
9. Granulomatous hepatitis associated with chronic Borrelia burgdorferi infection: a case report
The patient had active, systemic Borrelia burgdorferi infection and consequent Lyme hepatitis, despite antibiotic therapy.
10. Scotty Shelton and Persistent Infection in Saginaw MN
https://www.change.org/p/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf/u/11685820
“Scotty's brain (cerebral cortex) was positive for Borrelia burgdorferi and Borrelia myamotoi, his testicle is positive for Bb. We are now testing other tissues. Seven years of antibiotics and 3.5 years of natural treatments (along with antibiotics) and he was highly highly positive.”
11. Congenital Transmission of Lyme/TBD
https://www.dropbox.com/s/z10em0szgpm8bll/Congenital%20Transmission%20of%20Lyme%202015.doc?dl=0
12. Wheelchair-Bound Girl Calls Blessing By Pope Francis ‘Most Precious Moment Of My Life’
http://newyork.cbslocal.com/2015/09/24/pope-francis-blesses-girl-in-wheelchair/
NEW YORK (CBSNewYork) — A 12-year-old girl who has been confined to a wheelchair since being diagnosed with Lyme disease said meeting Pope Francis as he arrived in New York Thursday was “the most precious moment of my life.”
13. $1.8 billion to fight Zika: CDC moves to highest alert level
https://www.washingtonpost.com/news/post-politics/wp/2016/02/08/obama-to-ask-congress-for-1-8-billion-to-combat-zika-virus/