Petition updateFDA Accelerated Approval of Genervon's GM604 for Use In ALSConatct U.S. Senators - We need them to speak up!

Nicholas GrilloSan Francisco, CA, United States
Jan 26, 2015
The U.S. Senate Health, Education, Labor, and Pensions (H.E.L.P.) Committee can basically make the FDA grant Accelerated Approval Program. Therefore, I’ve made it really easy for you to call and email the U.S. Senators who sit on this committee. I’ve provided their phone numbers and easy links to their contact pages. If you decide to call, you should ask to speak with the Senator's Health Legislative Assistant (HLA) and get that person's name.
If you’re a non-U.S. citizen:
It's my understanding that the senators' contact forms require the sender to have a U.S. residential (or military) address. You won't be able to email them.
If you are a U.S. citizen -- you have to put in extra effort to help those in other countries -- who are a huge part of this campaign.
TO MAXIMIZE THE IMPACT PLEASE PROCEED AS FOLLOWS:
1) First, call or email the two top-ranking senators on HELP Committee and Senator Rand, who has expressed interest in our campaign:
• TN-Lamar Alexander (R) - Chairman
• WA-Patty Murray (D)- Ranking Member
• KY Paul Rand (R)
PHONE NUMBERS & CONTACT LINKS APPEAR BELOW
2) Second, if a senator from your home state is on the list, call or email them next.
If you decide to call, ask to speak with the Senator's Health Legislative Assistant (HLA).
By targeting these three top senators on the H.E.L.P. Committee we can make sure the most influential senators are getting the bulk of our communications. (If your state doesn't have a senator on this committee, don't worry. Congressional Committees can not have representatives from each and every state).
Warmest regards,
Nick
gm6nick@gmail.com
When contacting senators:
1) Give them your name and state whether you are a person with ALS, know someone with ALS, or are a supporter of the ALS Community. Share your personal story or thoughts.
2) Tell them you support the petition for Accelerated Approval of Genervon's GM604. Provide the link to the petition and mention the number of signatures at the time you are contacting the senator. (Here's that link:
https://www.change.org/p/janet-woodcock-m-d-fda-accelerated-approval-of-genervon-s-gm604-for-use-in-als
3) Senators' and their Health Legislative Assistants may say that Congress cannot promote a specific new drug that comes to the FDA for approval. While they may not promote a specific new drug, they can certainly inquire about the process for that drug. If you call (or in your email), express your desire for the Senator to contact the FDA saying they want to ensure that GM604 is given full and fair consideration for the Accelerated Approval Program. Tell the Senators (or their Health Legislative Assistant) that our campaign is about confronting the fact that no new drugs have been made available for people with ALS in the past 20 years and that ALS meets all the criteria for the Accelerated Approval Program. If you are familiar with the "Right -to-Try" legislation make it known that this is exactly what our campaign is all about. -- getting new drugs to people with a terminal illness who have no other options.
4) Tell them you would like a response to your request.
U.S. Senate Health, Education, Labor & Pensions (HELP) Committee
AK – Lisa Murkowski (R) PAST SUPPORTER OF ALS COMMUNITY
202-224-6665
http://www.murkowski.senate.gov/public/index.cfm?p=Contact
CO – Michael F. Bennet (D)
202-224-5852
http://www.bennet.senate.gov/contact/
CT – Christopher S. Murphy (D)
202-224-4041
http://www.murphy.senate.gov/contact
GA – Johnny Isakson (R)
202-224-3643
http://www.isakson.senate.gov/public/index.cfm/email-me
IL – Mark Kirk (R)
202-224-2854
http://www.kirk.senate.gov/?p=contact
KS – Pat Roberts (R)
202-224-4774
http://www.roberts.senate.gov/public/index.cfm?p=EmailPat
KY – Rand Paul (R)
202-224-4343
http://www.paul.senate.gov/?p=contact
LA – David Vitter (R) NOT ON HELP COMMITTEE - A SUPPORTER
202-224-4623
http://www.vitter.senate.gov/contact/email-senator-vitter
MA – Elizabeth Warren (D)
202-224-4543
http://www.warren.senate.gov/?p=email_senator
MD – Barbara A. Mikulski (D)
202-224-4654
http://www.mikulski.senate.gov/contact/
ME – Susan Collins (R)
202-224-2523
http://www.collins.senate.gov/public/index.cfm/email
MN – Al Franken (D)
202-224-5641
http://www.franken.senate.gov/?p=contact
NC – Richard Burr (R)
202-224-3154
http://www.burr.senate.gov/public/index.cfm?FuseAction=Contact.ContactForm
NY - Charles Schumer (D) NOT ON HELP COMMITTEE - A SUPPORTER
202-228-3027
http://www.schumer.senate.gov/contact/email-chuck
PA – Robert P. Casey Jr. (D)
202-224-6324
http://www.casey.senate.gov/contact/
RI – Sheldon Whitehouse (D)
202-224-2921
http://www.whitehouse.senate.gov/contact/
SC – Tim Scott (R)
202-224-6121
http://www.scott.senate.gov/contact/email-me
TN – Lamar Alexander (R) TOP RANKING REPUBLICAN
202-224-4944
http://www.alexander.senate.gov/public/index.cfm?p=Email
UT – Orrin G. Hatch (R)
202-224-5251
http://www.hatch.senate.gov/public/index.cfm/email-orrin
VT – Bernard Sanders (Ind.)
2920 224-5141
www.sanders.senate.gov/contact/
WA – Patty Murray (D) TOP RANKING DEMOCRAT
202-224-2621
http://www.murray.senate.gov/public/index.cfm/contactme
WI – Tammy Baldwin (D)
202-224-5653
http://www.baldwin.senate.gov/contact
WY – Michael B. Enzi (R)
202-224-3424
http://www.enzi.senate.gov/public/index.cfm/e-mail-senator-enzi
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