This morning we reached the important milestone of 75,000 signatures for Jess' petition, making it one of the top signed petitions in the UK. 

This incredible level of support speaks for itself. 

Too many people in the UK recognise the desperate need for change. 

Thank you so much for your support and encouragement, I know Jess would be truly appreciative.

The message remains the same:: more recognition, more funding, more early diagnosis = fewer lives lost.

Please continue to share and increase awareness. 

Our aim is 100,000 signatures.