Calling for a Congressional investigation of the CDC, IDSA and ALDF
  • Petitioning The US Senate

This petition will be delivered to:

United States Senator for Connecticut
The US Senate
Comptroller General of the United States
Gene L. Dodaro (Comptroller General of the United States)
Congressional Relations GAO
The US Senate
U.S. Congressman Paul A. Gosar
The US Senate
New Hampshire Governor
New Hampshire State House
U.S. Senate
New Hampshire State Senate
U.S. House of Representatives

Calling for a Congressional investigation of the CDC, IDSA and ALDF

    1. Carl  Tuttle
    2. Petition by

      Carl Tuttle

      Hudson, NH

We are experiencing a health crisis here in New Hampshire and across the country with the growing epidemic of Lyme disease. A number of legislators have personally been affected and have introduced legislation to address this problem. Here are just a few recent examples.


Representative David Linsky: “The occurrence of Lyme disease has reached near epidemic proportions in Massachusetts. Virtually every family in Massachusetts has been affected by Lyme disease in some way. Lyme disease is a public health crisis in the Commonwealth.” Read more…

Connecticut, Rhode Island, New York

Senator Richard Blumenthal: "Today for me culminates more than a decade of work and probably a decade more, because I've seen firsthand the devastating, absolutely unacceptable damage done by Lyme disease to individual human beings, Connecticut children and residents whose lives have been changed forever as a result of Lyme disease” Read more….

New Jersey, Pennsylvania

Congressman Chris Smith: "It seems everywhere I go, someone comes up to me to talk about how Lyme disease has severely impacted their lives or someone they know," Read more…


Virginia Governor’s Task Force Chair Michael P Farris, Esq: "Doctors here in Virginia are committing malpractice by saying the ELISA test is sufficient." Read more…


Sen. Harris says he was severely affected by the disease, but “got a lucky break.” His doctor, constrained by a disciplinary board that limited antibiotic use for tick-borne illness to 1 month or less, arranged for 17 physicians to take turns writing prescriptions for Sen. Harris’s treatment. Read more…

Two HoustonTexas physicians tested their chronically ill patients for Lyme disease via CDC Western blot criteria finding all patients positive for the infection in a state where the prevalence of Lyme infected ticks is only about 1-2%. “No history of bull’s-eye rash or illness following tick bite was reported by these patients.” The CDC defines “Lyme disease” exclusively as a zoonotic illness. Congenital and gestational transfer cases have been disregarded for reasons not evident to us”. Read more…

Congenital Transmission of Lyme: 28 Peer-Reviewed Studies

After spending four years on this subject the following statement from a physician on the front lines treating the late stage Lyme epidemic for a quarter century rings true:

“In the fullness of time, the mainstream handling of chronic Lyme disease will be viewed as one of the most shameful episodes in the history of medicine because elements of academic medicine, elements of government and virtually the entire insurance industry have colluded to deny a disease.”

We have studies proving persistent infection after antibiotic treatment for mice, dogs, ponies, monkeys, cows, iris biopsy, and ligamentous tissue but if you perform a simple Yahoo search for the following statement, “There is no convincing scientific evidence that chronic Lyme exists” you will find the top search results are connected to “elements of academic medicine” involved in the denial of the late stage Lyme epidemic.

Persistent Lyme infection: 273 Peer-Reviewed Studies

Circular reasoning: "Suppress all evidence and then proclaim there is no evidence"

“One way to stop an epidemic is to redefine it by narrowing the disease's diagnostic criteria so tightly that it's hard for any chronically ill Lyme patient to fit the profile and obtain insurance reimbursement.” Read more…

The following CDC letter (Dec 1996) addressed to former Senator Alfonse D’Amato promising to inform the medical community that the CDC’s Lyme case definition was created for reporting purposes only and not intended for clinical diagnosis is yet another failure on the part of the CDC to follow up on their responsibilities. Countless numbers of Lyme patients have been denied treatment and insurance reimbursement as a result of the restrictive case definition.  Read more…

Jan 2004 testimony from Paul Mead, M.D., M.P.H. Medical Epidemiologist from the CDC’s Division of Vector-Borne Infectious Diseases:

“No surveillance case definition is 100% accurate. There will always be some patients with Lyme disease whose illness does not meet the national surveillance case definition.”  Read more…

Seronegativity in Lyme borreliosis: 103 Peer-Reviewed Studies

There has been a combined effort on the part of the CDC, IDSA and ALDF to use the media for propagating the Lyme disease disinformation campaign following Chomsky's propaganda model. They have used Medscape, Family Practice News, The New England Journal of Medicine, The Lancet Infectious Diseases and now The American Heart Association to spread the disinformation. This deliberate campaign is aimed at purposely confusing our medical community to keep case numbers artificially low by omitting the late stage of the disease entirely as there is absolutely no medical training whatsoever for the later stages of this disease (Willful Ignorance) so patients are often ping ponged though the medical community for years or decades before obtaining a late stage Lyme diagnosis. Nine Steps to Deny an Epidemic on a National Level 101

Letter to the editor of Clinical Infectious Diseases questioning the validity of Dr Alan Steere’s research. Read more….

Letter to the editor of Clinical Infectious Diseases questioning the validity of Dr Gary Wormser’s research. Read more….

Dr Alan MacDonald’s letter to the editor of Clinical Infectious Diseases questioning the reality of the abstract by Lantos, Auwaerter, and Wormser: Read more…..

Agenda-driven bias:  “People with these types of agendas may be more likely to abuse meta-analysis due to personal bias”

NEJM editor: “No longer possible to believe much of clinical research published

When “evidence based medicine” has been spun to fit bias agendas and the patient voice has been intentionally ignored who investigates the dishonest science?

Email message sent to the editors of the publications listed above announcing this petition. Read more

It’s all about the VACCINE

It has become blatantly obvious that the CDC will go to great lengths to insure that Lyme disease remains within its narrow definition in order to fit the vaccine model. Chronic Lyme does not fit any vaccine model. 

The CDC has long known about the virulence and persistence of this spirochete focusing on a vaccine as the cure-all to this world wide epidemic. The late stage/chronic Lyme community has become collateral damage for a vaccine market in the course of a government sponsored initiative as Baxter’s phase III clinical trials are underway.

The CDC has aligned itself with institutions/researchers with a bias against persistent infection and has misused its authority by inappropriately allotting government funds to Mass General Hospital (Dr Alan Steere) and New York Medical College (Dr Gary Wormser) as identified in the following communications. Read more….

The Principle Investigators of the two previous Lyme vaccines: Allen C. Steere for SmithKlineBeecham's LymeRix and Gary Wormser for Connaught's vaccine (which never made it to market) have conceptualized a disease that would enable vaccine development. The one-size-fits-all Lyme treatment guideline (lead author: Gary Wormser) matches the conceptualized disease.

A preventive vaccine for Lyme disease would not satisfy the FDA if a chronic persistent infection and seronegative disease exist.  

Seronegativity in Lyme borreliosis: 103 Peer-Reviewed Studies

It remains questionable that a Lyme disease vaccine is practical for an infection that produces a lack of immunological memory (unlike Measles, Mumps etc.) so the Wormser study fabricating a six year strain-specific immunity makes perfect sense for the marketing/acceptance of such vaccine as identified in a letter to Editor in Chief, Ferric C. Fang, M.D. Infection and Immunity.  Read more…

The producers of the documentary, “Under Our Skin,” submitted a Freedom of Information Act (FOIA) request to investigate possible conflicts-of-interest of three Centers for Disease Control (CDC) employees who control public health policy for Lyme disease. (Barbara Johnson, Paul Mead and David Dennis) That request was finally fulfilled (May 2012) from the Department of Health and Human Services (five years later!). The information received is highly redacted with approximately half the information cut. What does the CDC know about Lyme disease that requires hiding from the public? The Centers for Disease Control has betrayed the public trust.

For more on the FOIA see Poughkeepsie Journal article # 1    article # 2 By Mary Beth Pfeiffer

Mary Beth Pfeiffer of the Poughkeepsie Journal highlighted the worst conflicts of interests between federal officials and a core group of researchers receiving government grants in the “ties that bind” page. Read more…

Who is responsible for the “highly pathogenic” clone of the Lyme disease bacteria, (Borrelia burgdorferi) found in Europe and North America as reported by the journal Emerging Infectious Diseases? Read more…

The following list establishes who knew what and when identifying their contribution to the disinformation campaign aimed at denying persistent Borrelia infection.

When subpoenas are issued CDC officials cannot claim conflicts of scheduling issues and must attend to testify under oath regarding the mishandling of Lyme disease.

Congressional Investigation Subpoena List

1. CDC Officials

DAVID DENNIS (1) (2) (3), C. Ben Beard, Barbara Johnson (1), Paul Mead (1), Joseph Breen

    Former NIH Lyme Program Officers

Phillip Baker, Edward McSweegan (1)(2)

2. IDSA Lyme Treatment Guideline Authors  (1) (2) (3) (4)

Gary P Wormser (1), Raymond J. Dattwyler (1), Eugene D. Shapiro,         

John J Halperin (1), Allen C. Steere (1), Mark S Klempner (1),  

Peter J. KrauseJohan S. Bakken, Franc Strle, Gerold Stanek,                 

Linda Bockenstedt (1), Durland Fish (1) (2), J. Stephen DumlerRobert B. Nadelman

    Academic Medicine

Paul Auwaerter, Arthur Weinstein (1)

3. The American Lyme Disease Foundation

Phillip Baker, (1) (2) Executive Director

Please call your legislator and respectfully urge immediate action from the U.S. Senate and U.S. House of Representatives to fully investigate the facts surrounding the failures of leadership and management deficiencies by requesting a Congressional investigation of the CDC, IDSA and ALDF (Find your Senator) (Find your Representative)

Yolanda Foster on Lyme disease, one of the "Real Housewives of Beverly Hills

Dr Alan MacDonald on Alzheimer's and Lyme disease, The Biology of Lyme Disease: An Expert's Perspective

Remarks: World Wide Lyme Rally & Protest Kenneth B. Liegner, M.D.

Lyme disease testing flaws and conflicts of interests

The Barry Marshall affect on chronic disease

Inconvenient truths

Bullying of Lyme patients

List of abbreviations

CDC: Centers for Disease Control
IDSA: Infectious Disease Society of America
ALDF: American Lyme Disease Foundation

The Lyme disease billboard was situated on the Massachusetts Turnpike off of exit 6 and Rte. 290 close to Worcester (about 50 miles west of Boston). Credit goes to Trish McCleary, Founding Member S.L.A.M. “Sturbridge Lyme Awareness of MA”

Carl Tuttle
33 David Dr
Hudson, NH03051

Website: New Hampshire Lyme Misdiagnosis 

Letter to the Editor, The Lancet Infectious Diseases Published May 2012

The Tuttle family was featured on New Hampshire Chronicle’s “Living with Lyme” with the program archived on their site in six small segments for viewing on the computer

Part 1, Part 2, Part 3, Part 4, Part 5, Part 6

Recent signatures


    1. The FDA wants to regulate Lyme Lab tests.

      Carl  Tuttle
      Petition Organizer

      Please take this important survey and let your voice be heard!

      The results of the survey will be used in meetings with the FDA
      to show how this decision will impact Lyme patient’s lives.

      The survey was created by and is for Lyme patients:

      Carl Tuttle

      Please continue to promote this petition calling for a Congressional Investigation of the CDC, IDSA and ALDF

      Petition: Calling for a Congressional investigation of the CDC, IDSA and ALDF

    2. Dr Nevena Zubcevik's letter to The Wall Street Journal

      Carl  Tuttle
      Petition Organizer

      WSJ Sept 22, 2014

      There are 37 known species of bacteria that cause Lyme disease, but the current Lyme two-tier test inadequately tests even for the one spirochete it is designed for—Borrelia burgdorferi. Because of this we are missing many Borreliosis infections, and our patients are subjected to immeasurable suffering because they aren't receiving timely antimicrobial therapy. Research shows that such patients might go on to receive faulty diagnoses of psychosomatic, psychiatric or neuromuscular illnesses instead of prescriptions for antibiotics that would cure their infections.

      A paper co-authored by Barbara Johnson, an expert with the CDC Lyme program, reveals that the current two-tier method is positive in only 31% of those with erythema migrans (the bull's-eye rash associated with Lyme disease) and in only 63% of those with acute neuroborreliosis or carditis due to burgdorferi Lyme disease. This means that out of 100 patients who have Lyme disease, we might misdiagnose 69 of them, leaving their infections untreated.(1)

      Recent research out of Johns Hopkins University suggests we likely aren't using the correct antibiotics. The drugs we are using might be contributing to persistent bacteria and may not be fully clearing infections. (2)

      Given the current urgent state of affairs, we should be racing to find better testing strategies that will identify all of the Borrelia species and associated co-infections, and to find better antibiotic regimens that will cure our patients. We need to find these infections early—before life-altering manifestations of cranial nerve palsy, meningitis, myocarditis, arthritis, permanent disability and death.

      Nevena Zubcevik D.O.
      Resident physician and tick-borne illness advisory board member
      Harvard Medical School

      (1) 2-Tiered Antibody Testing for Early and Late Lyme Disease Using Only an Immunoglobulin G Blot with the Addition of a VlsE Band as the Second-Tier Test
      (2) Identification of novel activity against Borrelia burgdorferi persisters using an FDA approved drug library

    3. Dr David Volkman's letter on the proposed Lyme disease Advisory Committee

      Carl  Tuttle
      Petition Organizer

      David J. Volkman, Ph.D., M.D.
      Emeritus Professor of Medicine and Pediatrics
      4 River Hollow Lane
      Nissequogue, New York 11780
      631 862 6398 FAX: 631 862 6561

      July 15, 2014
      Seniors Blumenthal, Brown, Markey, Durbin, Warren

      Dear Senator:
      I am writing in regard to the proposed legislation to establish a Lyme disease Advisory Committee. I am experienced in Research, Internal Medicine, Infectious Diseases, Immunology, and have treated al Lyme disease patients since 1985.
      Briefly, while there are over 300,000 borrelia infections in the United States annually, more than 95% go undiagnosed and untreated. Authorities have actively ignored and denied the extent of this well documented epidemic, recently reported in JAMA. In addition, the CDC has supported risible investigations from Dr. Frieden’s former Yale colleagues claiming LD is limited to two areas nationwide when in fact it is reported from TN to TX and throughout the South. It is imperative that we get some objective political oversight on a cabal of authorities that have dominated the narrative (a reversal of the usual biomedical oversight of political issues).
      While an inexpensive ELISA/B31 IgG serum test detects the vast majority borrelia infections (Lyme disease (LD)) and a single Western Blot (WB) anti-p41 IgG band confirms LD, the CDC, FDA, and others have insisted on having 5-10 WB bands to diagnoses the disease. There are no reports of false positive IgG assays although their dangers are oft touted. The overly restrictive diagnostic criteria established by the FDA have been primarily responsible for the enormous underdiagnoses of LD.
      The acknowledged and unacknowledged secondary gains of these authorities are beyond the scope of this letter. If I can be of any assistance please don’t hesitate to ask.

      David J. Volkman, PhD, MD
      Emeritus Professor of Medicine and Pediatrics
      SUNY, Stony Brook, NY 1178

      Tel: 631 862 6398
      FAX: 631 862 6561

    4. HHS Special Webinar on Lyme Disease Persistence

      Carl  Tuttle
      Petition Organizer

      The following letter was sent to Dr Charles Beard of the CDC with copies to the participants of the HHS Special Webinar on Lyme Disease Persistence:

      Sylvia Burwell was copied in addition to Senators involved in Lyme disease legislation. Consider sending a follow-up email respectfully demanding a response. Cut and paste the letter below and add it to your message.

      Sylvia Burwell email address:
      Dr Charles Beard email address:

      From: "Carl Tuttle" <>
      To: "charles beard" <>
      Cc: "Joseph Breen" <>,, "linda bockenstedt" <>,,,, "gipson" <>,,,, "gov cuomo" <>, "Matt Sheehey" <>, "molsky" <>, "Sylvia Burwell" <>
      Sent: Wednesday, July 2, 2014 9:16:46 AM
      Subject: Re: Health and Human Services Webinar on the persistence of Borrelia burgdorferi (Lyme disease)

      July 2, 2014

      Centers for Disease Control and Prevention
      Bacterial Diseases Branch
      Foothills Campus
      Fort Collins, CO 80521
      Attn: Dr Charles B. Beard, BRANCH CHIEF BDB

      Dear Dr Beard,

      While you folks were preparing a summary document for the Post-Treatment Lyme Disease Syndrome HHS Special Webinar on Lyme Disease Persistence, Dr Raphael B Stricker et al published a case report of a fifty three year old patient with systemic Borrelia burgdorferi infection and consequent Lyme hepatitis, despite antibiotic therapy.

      In addition, Dr James R Palmieri published a case report of persistent Lyme disease from Pulaski County, Virginia with a second case report ready to submit involving an infant less than two years of age.

      As you know, David Denis had knowledge of persistent infection (Past CDC employee who controlled public health policy for Lyme disease) as he contacted Dr Kenneth Liegner regarding the Vicki Logan case.
      Vicki Logan’s CDC Fort Collins Positive CSF Culture Report:

      These are human case studies involving chronic Borrelia burgdorferi infection not laboratory experiments. Is this not evidence of persistent infection and verification that the one-size-fits-all treatment guideline is ineffective in treating all cases of Lyme disease?

      Why does the CDC continue to overlook/deny evidence of chronic infection in the Lyme patient population?

      I am sure the legislators included in this email thread would like an answer to these questions as well. Please provide a reply to this email at your earliest convenience as I am prepared to send follow-up requests until you reply to this message.

      Carl Tuttle
      Hudson, NH

    5. Chronic Borrelia burgdorferi infection: a case report

      Carl  Tuttle
      Petition Organizer

      Here is yet another case report identifying persistent infection:

      Granulomatous hepatitis associated with chronic Borrelia burgdorferi infection: a case report

      Marianne J Middelveen, Steve A McClain, Cheryl Bandoski, Joel R Israel, Jennie Burke, Alan B MacDonald, Arun Timmaraju, Eva Sapi, Yean Wang, Agustin Franco, Peter J Mayne, Raphael B Stricker

      Date 2014-06-09

      Although Lyme borreliosis has been linked to hepatitis in early stages of infection, the association of chronic Borrelia burgdorferi infection with hepatic disease remains largely unexplored. We present the case of a 53-year-old woman diagnosed with Lyme disease who developed acute hepatitis with elevated liver enzymes while on antibiotic treatment. Histological examination of liver biopsy tissue revealed spirochetes dispersed throughout the hepatic parenchyma, Read more....

      Granulomatous hepatitis associated with chronic Borrelia burgdorferi infection: a case report

      Although Lyme borreliosis has been linked to hepatitis in early stages of infection, the association of chronic Borrelia burgdorferi infection with hepatic disease remains largely unexplored. We present the case of a 53-year-old woman diagnosed with Lyme disease who developed acute hepatitis with elevated liver enzymes while on antibiotic treatment.

    6. CDC admits 2 tier Lyme testing not much better than a coin toss!

      Carl  Tuttle
      Petition Organizer

      Simple objective detection of human Lyme disease infection using immuno-PCR and a single recombinant hybrid antigen.
      Micah D. Halpern, Claudia R. Molins, Martin Schriefer and Mollie W. Jewett

      Per the following CDC/University of Florida study it appears that Lyme disease testing is no better than a coin toss. Our current 2-tier Lyme disease analysis has a sensitivity of 59%. Faulty diagnostic tests have led to the disability of tens of thousands of Lyme patients through misdiagnosis and delayed treatment. Late stage Lyme disease does not respond well to short courses of antibiotics leaving these patients with the dilemma and financial burden of finding a way to treat beyond the IDSA’s one-size-fits-all treatment guideline. It is time to recognize that serodiagnostics for Lyme disease is inherently flawed and should be scrapped for testing capable of measuring treatment failure or success.

      Simple objective detection of human Lyme disease infection using immuno-PCR and a single recombinant hybrid antigen.

      A serology-based, tiered approach has, to date, provided the most effective means of laboratory confirmation of clinically suspected cases of Lyme disease but lacks sensitivity in early disease and is often dependent on subjectively scored immunoblots. We recently demonstrated use of immuno-PCR (iPCR) for detection of B.

    7. Persister Formation in Borrelia burgdorferi

      Carl  Tuttle
      Petition Organizer

      Persister Formation in Borrelia burgdorferi

      B. Sharma, A. Brown, K. Lewis;
      Northeastern Univ., Boston, MA


      We hypothesize that persister cells play a role in the treatment failure that leads to chronic Lyme disease. Here, using time-dependent and dose dependent survival assays, we show that B. burgdorferi forms persister cells to the antibiotics commonly used for treatment of Lyme disease. Our results indicate that in a B.burgdorferi population, 0.001% to 1% of the cells can survive lethal doses of various antibiotics in vitro. These persister cells may contribute to treatment failure in chronic Lyme patients. Future experiments are aimed at screening for a better antimicrobial therapy to eradicate persisters in B. burgdorferi. Read more….

    8. Reached 20,000 signatures
    9. Test for persistent Lyme infection using live ticks

      Carl  Tuttle
      Petition Organizer

      The following NIH study recovered living Borrelia (Lyme bacteria) from a patient with “Post Treatment Lyme Disease Syndrome” (PTLDS) which we all know is a fictitious syndrome to deny chronic Lyme disease.

      Test for persistent Lyme infection using live ticks shown safe in clinical study

      February 12, 2014
      NIH/National Institute of Allergy and Infectious Diseases


      In a first-of-its-kind study for Lyme disease, researchers have used live, disease-free ticks to see if Lyme disease bacteria can be detected in people who continue to experience symptoms such as fatigue or arthritis after completing antibiotic therapy.


      Xenodiagnosis was positive for B. burgdorferi DNA in the person with erythema migrans who underwent xenodiagnosis early during therapy and in a volunteer with PTLDS.

    10. Reached 18,000 signatures
    11. Lyme Borreliosis in Human Patients in Florida and Georgia, USA

      Carl  Tuttle
      Petition Organizer

      Lyme Borreliosis in Human Patients in Florida and Georgia, USA

      Kerry L. Clark, Brian Leydet, Shirley Hartman
      Med Sci 2013; 10(7):915-931. doi:10.7150/ijms.6273


      This is the first report to present combined PCR and DNA sequence evidence of infection with Lyme Borrelia spp. in human patients in the southern U.S., and to demonstrate that several B. burgdorferi sensu lato species may be associated with Lyme disease-like signs and symptoms in southern states. Based on the findings of this study, we suggest that human Lyme borreliosis occurs in Florida and Georgia, and that some cases of Lyme-like illness referred to as southern tick associated rash illness (STARI) in the southern U.S. may be attributable to previously undetected B. burgdorferi sensu lato infections.

    12. Lyme Disease May Be Sexually Transmitted, Study Suggests

      Carl  Tuttle
      Petition Organizer

      International team of scientists finds evidence for sexual transmission.
      A new study suggests that Lyme disease may be sexually transmitted.

      Lyme disease is a tickborne infection caused by Borrelia burgdorferi, a type of corkscrew-shaped bacteria known as a spirochete (pronounced spiro’keet). The Lyme spirochete resembles the agent of syphilis, long recognized as the epitome of sexually transmitted diseases. Last summer the Centers for Disease Control and Prevention (CDC) announced that Lyme disease is much more common than previously thought, with over 300,000 new cases diagnosed each year in the United States. That makes Lyme disease almost twice as common as breast cancer and six times more common than HIV/AIDS. Read more...

      Lyme Disease May Be Sexually Transmitted, Study Suggests

      Carmel, CA (PRWEB) January 25, 2014 A new study suggests that Lyme disease may be sexually transmitted. The study was presented at the annual Western Regional Meeting of the American Federation for Medical Research, and an abstract of the research was published in the January issue of the Journal of Investigative Medicine.

    13. Case report of persistent Lyme disease from Virginia

      Carl  Tuttle
      Petition Organizer

      Case report of persistent Lyme disease from Pulaski County, Virginia

      Authors: Palmieri JR, King S, Case M, Santo A
      Published Date December 2013 Volume 2013:6


      We report the case of a patient who presented to a local primary care treatment facility with flu-like symptoms, headache, an expanding EM rash, and later serological stud¬ies supporting the diagnosis of LD. Following an antibiotic regimen twice the length and double the recommended treatment dose outlined by the Infectious Diseases Society of America (IDSA), our patient still experiences symptoms of fatigue and arthralgia consistent with PTLDS.

      There is a need for diagnostic tests sensitive enough and specific enough for identifying LD in all stages of infection. Read more.....

    14. Reached 15,000 signatures
    15. Cure unwanted? Exploring the chronic Lyme disease controversy

      Carl  Tuttle
      Petition Organizer

      Cure unwanted? Exploring the chronic Lyme disease controversy and why conflicts of interest in practice guidelines may be guiding us down the wrong path. 2012

      American Journal of Law & Medicine
      38 Am. J. L. and Med. 196
      AuthorJohanna Ferguson
      Patients and physicians were startled to learn of the pervasive conflicts of interest that came to play in the promulgation of the IDSA guidelines regarding chronic Lyme disease. As Pamela Weintraub noted in her book, Cure Unknown, the very people who wrote the IDSA guidelines were those who stood to profit from them. The authors of the guidelines not only had significant connections to drug companies, related patents, and Lyme diagnostic tests, several were also being paid by insurance companies to corroborate treatment plans .. More....


      Carl  Tuttle
      Petition Organizer

      Sarah and John Vaughter - WHEN ALS IS LYME - Examining the link between ALS and Neuroborreliosis

      This free eBook documents the link between Lyme and ALS.

      156 pages, including 57 pages with the stories of 22 people diagnosed with both Amyotrophic Lateral Sclerosis and Lyme disease, including links to their extensive blogs. Eight died, three are still sick and eleven achieved a full cure.

      In addition to these case reports in the patient's own words, the book contains more articles than published on this site, with footnotes linking to almost a thousand pages of supporting material in many dozens of PDF's.

    17. Spatial Patterns of Lyme and MS

      Carl  Tuttle
      Petition Organizer

      In the article below a high school student was able to obtain data from state epidemiology boards to create maps of MS and Lyme disease.

      Spatial Patterns of Disease Inspire New Ideas on Possible Causes
      By Susan Harp, Esri writer

      Excerpt from the 2007 article:

      "The two disease distributions were pretty similar-they correlate and the control doesn't," explains Blewett. "Biochemically they are also very similar, so it has just taken off from there." She hypothesizes that both diseases may share a common spirochetal basis and MS might develop from a secondary tick bite.

    18. Lyme borreliosis and multiple sclerosis: any connection?

      Carl  Tuttle
      Petition Organizer

      The study below found 38% of MS patients tested positive for Lyme disease.

      Lyme borreliosis and multiple sclerosis: any connection? A seroepidemic study.
      Chmielewska-Badora J, Cisak E, Dutkiewicz J.
      Excerpt from the 2000 study:
      A statististically significant relationship was found between the clinically confirmed diagnosis of multiple sclerosis and the positive serologic reaction with Borrelia antigen. Ten out 26 patients with multiple sclerosis (38.5%) showed positive serologic reaction to Borrelia. The result suggests that multiple sclerosis may be often associated with Borrelia infection

    19. Reached 12,500 signatures
    20. No immunity from Lyme

      Carl  Tuttle
      Petition Organizer

      Based on the study below a natural infection with Lyme will not protect from subsequent infection. The lack of immunological memory explains why it is possible to get re-infected multiple times from repeat tick bites. When we contract measles for example we produce antibodies to fight off infection without sustaining long term illness and then we do not get measles again. Effective antibodies persist after infection of measles, not so with Lyme disease. So how could any vaccine offer protection?

      The immune system cannot generate immunological memory during infection with the Lyme disease agent B. burgdorferi

      Excerpts from the study:

      …In vertebrates including humans, mice and dogs, the bacteria Borrelia burgdorferi (Bb) causes a chronic, non-resolving infection known as Lyme disease, which requires antibiotic treatment to clear the bacteria. Re-infections are common in endemic regions.

    21. Reached 5,000 signatures
    22. Prevalence of Lyme Disease in the US is 10-Times Higher

      Carl  Tuttle
      Petition Organizer

      Prevalence of Lyme Disease in the US is 10-Times Higher than Previously Reported

      By Dr. Mercola
      Aug 31, 2012
      According to preliminary statistics just released by the Centers for Disease Control and Prevention (CDC), approximately 300,000 new cases of Lyme disease are diagnosed in the US each year. This is about 10 times higher than the officially reported number of cases, indicating that the disease is being vastly underreported. Read more…..

    23. "Borrelia bacteria are capable of changing into cyst forms"

      Carl  Tuttle
      Petition Organizer

      Quote from the article:
      “Oslo University biologists Morten Laane and Ivar Mysterud have discovered a method to identify Borrelia bacteria in the blood samples of patients, many of them seriously or chronically ill. Their experiments show that virtually all Borrelia bacteria are capable of changing into cyst forms within an hour and that antibiotic medication is then unable to destroy them.”

    24. Australia's Lyme Community

      Carl  Tuttle
      Petition Organizer

      The Lyme community in Australia has initiated three Federal government enquiries and has called for a Royal Commission which is the equivalent of our US Congressional Investigation.

    25. Reached 4,000 signatures


    Reasons for signing

    • diane brunett BEND, OR
      • about 5 hours ago

      My daughter has Lyme and is fighting a horrible battle with its neurological symptoms. It has taken away her quality of life, she has not been able to work for 10 mo's now. The financial burden is immense! She has been labeled with a psychological stigma and conversion disorder. The CDC IDSA is soooo in the dark and denial. It is so frustrating that they know little about this but yet call the shots!

    • Ted Raviv KEENE, NH
      • about 9 hours ago

      I have had two false negatives for lyme disease in testing and as a result was unnecessarily for years.

    • Teresa Sparling BELLEVUE, WA
      • about 13 hours ago

      My son has Lyme disease. It was undiagnosed for 7 long years. Unnecessarily.

    • Tracy Urgo GLASTONBURY, CT
      • about 20 hours ago

      My daughters, ages 8 and 10 were recently diagnosed with Congenital Lyme and Bartonella and I was diagnosed with Lyme and Bartonella. My oldest daughter has ASD along with several other comorbid disorders and my 8 y/o shows signs of OCD as well as has a processing delay. We are waiting for a neuropsych eval for her. I believe this all could have been avoided, if I were properly diagnosed and treated over ten years ago.

    • Erin Searer CARLISLE, PA
      • about 21 hours ago

      I have lymes !!!!


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