my son was diagnosed with nuerofibromaosis at birth,it is a chronic, potentially fatal disease in which there is no known cure for at the present time. you can get more info about the disease at www.ctf.org my son will be 8 june 12, 2009 he is a happy little guy you would not be able tell he was sick if it was not for his cafe au lait spots which are tumors, the spots he has are not harmful its where the tumors grow it affects his learning, speech,and behavior, we want easy access to grant funds that will pay for the cost of gas to get to the proper doctor especialy if an emergency came up from the disease the city i live in does not have the most knowledgable doctors about the disease so we travel to seattle to make sure he has the best care available to him please sign my petition so i can pass this and make it easier for the many people to have access to funds to help pay for gas to get to important doctor appointments that we may need to travel to as it can be a matter of life or death, we ensure our sons health he has regular couple month appointments to be sure he is and stays healthy many complications can occcur with his disease, please visit the website i listed above also my son is on caringbridge you can see him there at www.caringbridge.com/visitmalachiholm not sure if thats the address fully but you can find him at carinbridge his name is malachi holm one word through caring bridge, i ask you to support my efforts in trying to help make it easier for many people to access funds when needed most you can email me personaly if you would like at amandaholm@live.com thank you