Be Aware & Recognize CM & SM

The Issue

Goal: Recognize September as Chiari Malformation & Syringomyelia Awareness month. Help people see that our disorders matter and the we as people who suffer matter!

"One of the major obstacles that Chiari and syringomyelia patients face is that it seems like no one has heard of the conditions. Once thought to be rare, MRI's have dramatically increased estimates of the number of people with Chiari (~300,000 in the US). This lack of awareness creates an additional burden for patients as they try to explain to family members, friends, employers, etc. what they are going through. In addition, the lack of general awareness has translated into a lack of research dollars from the US government. Diseases which affect about the same number of people receive millions of dollars of federal support each and every year. It's time to raise our voices, raise our profile, and make people aware."-conquerchiari.org.

For more information about Chiari & Syringomyelia please visit www.conquerchiari.org

This petition had 56 supporters

The Issue

Goal: Recognize September as Chiari Malformation & Syringomyelia Awareness month. Help people see that our disorders matter and the we as people who suffer matter!

"One of the major obstacles that Chiari and syringomyelia patients face is that it seems like no one has heard of the conditions. Once thought to be rare, MRI's have dramatically increased estimates of the number of people with Chiari (~300,000 in the US). This lack of awareness creates an additional burden for patients as they try to explain to family members, friends, employers, etc. what they are going through. In addition, the lack of general awareness has translated into a lack of research dollars from the US government. Diseases which affect about the same number of people receive millions of dollars of federal support each and every year. It's time to raise our voices, raise our profile, and make people aware."-conquerchiari.org.

For more information about Chiari & Syringomyelia please visit www.conquerchiari.org

The Decision Makers

Barack Obama
Former President of the United States
Michelle Obama
First Lady of the United States
All State Health Departments/Secretary Kathleen sebelius
All State Health Departments/Secretary Kathleen sebelius
Secretary of Health Departments and Human Services

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Petition created on July 14, 2011