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Apologize for not Responding Appropriately to the ME/CFS Epidemic
  1. Signatures
    633 out of 1,000
    Petitioning
    1. CDC Director (+ 8 others)
      Petitioning
      close
      • CDC Director (Thomas Frieden)
      • Chief, CDC CFS program (Elizabeth Unger)
      • Director, National Institute of Allergy and Infectious Disease (Anthony Fauci)
      • Designated Federal Official, CFSAC (Nancy Lee)
      • NIH Director (Francis Collins)
      • NIH ORWH Director (Janine Clayton)
      • Assistant Secretary for Health (Howard Koh)
      • Chair, Trans-NIH ME/CFS Research Working Group (Susan Maier)
      • US Secretary for Health & Human Services (Kathleen Sebelius)
  2. Created By
    Liz Willow
    Camden, ME
About this Petition Petition Letter Petition Updates

Bjørn Guldvog, Deputy Director General of the Norwegian Directorate of Health, recently made the following statement in response to a published study indicating the cancer drug Rituximab may be an effective treatment for ME:  "I think that we have not cared for people with ME to a great enough extent. I think it is correct to say that we have not established proper health care services for these people, and I regret that."

Other nations need to follow Norways's example.

Along with an apology, we ask the US to:

1. Double the current NIH funding for extramural research annually until it achieves parity with funding for similarly debilitating chronic diseases like Multiple Sclerosis. Priority should be given to research on biomarkers and potential pathogens as well as clinical trials. 

2. Take down information on the CDC's CFS website stating testing for pathogens and biomarkers is "experimental and theoretical" and that GET and CBT are appropriate treatments.

Why People Are Signing
Recent Signatures

Apologize for Not Responding Appropriately to the ME/CFS Epidemic.

Greetings,

I just signed the following petition addressed to Secretary of Health & Human Services, Kathleen Sebelius.

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Apologize for not responding appropriately to the ME/CFS epidemic.

Bjørn Guldvog, Deputy Director General of the Norwegian Directorate of Health, recently made the following statement in response to a published study indicating the cancer drug Rituximab may be an effective treatment for ME/CFS:

"I think that we have not cared for people with ME to a great enough extent. I think it is correct to say that we have not established proper health care services for these people, and I regret that."

Follow the Norwegian Health Minister's example.

In addition, we ask that you:

1. Double the current NIH funding for extramural research. Priority should be given to research on biomarkers and potential pathogens as well as clinical trials.

2. Take down information on the CDC's CFS website stating testing for pathogens and biomarkers is "experimental and theoretical" and that GET and CBT are appropriate treatments.

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Sincerely,

[Your name]

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