Make Sildenafil Available to Kids with Rare Diseases
Sildenafil, otherwise known as Viagra, is one of the most commonly prescribed medications in the country, taken by millions of Americans each year. Since the 1990s, insurance companies have been required to cover this prescription for adult men with erectile disfunction. However, new research has shown Sildenafil to be effective in treating several life-threatening conditions that affect children, such as Protein Losing Enteropathy, and Lymphatic Malformation, but most insurance plans are refusing to cover these prescriptions. Children with rare diseases often require off-label use of medications as their only hope of improvement, but insurance companies routinely block their access to these potentially life-saving treatments, even while providing it for for non-life threatening conditions like erectile disfunction. If a doctor deems a medication promising enough for a child to try, insurance should be made to cover it. Please join me in petitioning California Insurance Commissioner Dave Jones to stand up for children's right to access potentially life-saving medication.
Require Insurance Companies to Cover Enteral Formula for Children
Our two-year-old daughter Elodie has a rare and life threatening condition (intestinal lymphangiectasia) that prevents her from being able to digest intact proteins. This means that her only source of nutrition for now and through the foreseeable is a special medical formula called Vivonex. However, despite this being a doctor-prescribed medical necessity for her, our insurance company refuses to cover it. The cost of this formula for us is currently $800 a month. California is currently one of several states where insurance companies are not required to cover enteral formula for children, no matter the severity of their disease. Thousands of families throughout the state are faced with insurmountable costs related to feeding their medically complex children. Please tell our Insurance Commissioner Dave Jones to take action on behalf of these families to help these children grow and thrive.