Alder Hey Hospital to keep Alfie Evans life support on.
What do we want?We the undersigned, call on Alder Hey Hospital, to keep Alfie Evans' life support on and allow his Parents to speak with other specialists that could help diagnose Alfie and give him the appropriate care. Alfie Evans is a 13 month old baby who is currently a patient in your Hospital, within the intensive care unit. Alfie was struck down with a mystery brain illness, that doctors within your hospital cannot diagnose and believe that it has progressed. Alfie's dad, Tom, has said that during the first few months of life, Alfie seemed like a smiley and healthy baby. However, the parents of Alfie, noticed that he was still very weak after taking him to the doctors several times. They were then told by doctors that Alfie may just be a late developer. It was soon clear to see, that this may have not been the case when both parents noticed that Alfie was sloped back in his chair, making strange jerking movements. Whilst in your care, Alfie's condition began to deteriorate and he was later diagnosed with Bronchitis, Pneumonia as well as other infections. After suffering with Seizures, Alfie had to be placed into a coma. Tom, Alfie's dad, said that himself and his partner haven't seen their child awake since 18th December 2016. However, both his parents as well as their families, are noticing that Alfie is now beginning to open his eyes more, yawn occasionally and that he is growing teeth. Alfie is growing from a baby to a toddler right before our eyes. Unfortunately, Doctors within your Clinical Establishment, have told the parents of Alfie several times, that they want to turn Alfie's life support machine off. His parents refuse to do this as they're seeing their son grow and getting stronger each day. The first discussion that the Hospital had with Alfie's parents suggesting to turn the life support off, was on New Year's Eve 2016. Doctors said that Alfie may only have hours to live and therefore, his mother and father baptised him. Alfie's heart rate was slowing down and from head to toe, he was cold. Miraculously, Alfie pulled through this! Alfie has had Neuro Doctors and an Epilepsy Panel say that he will never be able to cough, sneeze, breathe on his own or wake up but he has proved everyone wrong, who were involved in his care. He came out of the deepest coma that nobody expected him to do. That is a sign of a child who has got a lot of fight in him, not a child who is on deaths door. Not only did Alfie pull through this, he has also fought off many infections and has even come off life support once as you would know, but in recent weeks has had to go back onto it. We, the undersigned and both parents, believe that the only explanation for Alfie becoming more alert and pulling through many infections, that your Establishment didn't think was possible, is that he and his immune system is getting stronger. Therefore, thinking of withdrawing life support at this stage, would be unnecessary and premature. It has come to our attention that by withdrawing Alfie's life support considering he is visibly getting stronger, would be a breach of Alfie's Human Rights - Article 2: 'Right to Life' that is stated to be an 'Absolute Right' that nobody, can take away. We want the parents of Alfie, to be able to choose when it would be appropriate to withdraw life support, if it is necessary! We also want Alder Hey hospital to respect Alfie's parents wishes and give them the time and support, that would allow them to speak and research into other specialists that could possibly help diagnose and treat their son. Alder Hey Hospital, has been known for it's great quality of care for patients however, regarding this case, we know that a different approach could be taken which would prevent any harm coming to Alfie, that would therefore be irreversible.
Petition for the release of Charlie Gard from Great Ormond Street Hospital's care.
What do we want? We the undersigned call on the Prime Minister to help release Charlie Gard from the care of Great Ormond Street Hospital so that he can undergo treatment in another hospital of his family’s choosing. On April 11th 2017 a high court judge ruled that Charlie’s parents be stripped of their parental rights and Charlie be refused all treatment. Charlie’s parents are running out of time with their baby, we feel strongly that Charlie should have a chance to live. He literally has nothing to lose but potentially a healthier, happier life to gain. With the help of over 200 thousand people from all over the world, Charlie’s parents have managed to raise over £1.3m so that their son can benefit from treatment. Why do we want it? Charlie Gard was born perfectly healthy on the 4th August 2016. He was admitted to hospital at 8 weeks old and was diagnosed with a devastating disease called Mitochondrial Depletion Syndrome. Charlie’s condition is caused by disruption in the mitochondria, the part of the cell that provides energy to his muscles, kidneys and brain. After seemingly endless research and speaking to doctors all over the world, Charlie’s parents found a doctor in the US who has been treating children with similar types of Mitochondrial Depletion Syndrome using something called Nucleoside Bypass Therapy. Nucleoside Bypass Therapy could potentially repair Charlie’s mtDNA and help it synthesize again by giving him the naturally occurring compounds that his body isn’t able to produce, it’s a non-harmful, non-invasive oral medication. Charlie Gard has been accepted by doctors in the US and with funds having been raised we now need permission to remove Charlie Gard from the care of Great Ormond Street Hospital where doctors want to move him on to palliative care. Charlie’s parents have spent over 3,000 hours at his bedside and know him better than anyone else. They are absolutely convinced he is not in pain. When he feels their presence, he opens his eyes as much as he can and they do not believe he is blind. High Court judge Mr Justice Francis ruled that in all ‘likelihood’ Charlie had suffered severe and irreversible brain damage and there was little hope the treatment could achieve ‘anything positive for him. We do not believe that ‘in all likelihood’ is a strong enough reason to sentence Charlie to death. Charlie’s parents know his sleep/wake cycle and can wake him up by tickling his feet and soothe him to sleep by stroking his head. If his parents thought there was absolutely no hope they would not be fighting. We need to change things and show how determined parents can forge a path for other families encountering similar obstacles. We need to find treatments for incurable diseases. We need to give other people hope. We need to start saving lives starting with Charlie Gard.