Petition to Kemp Hannon, Richard Gottfried, John Flanagan, Carl Heastie
Enact the "Dream law" Bill S1165/ A5514 for all Transplant Patients 2018
TITLE OF BILL : An act to amend the public health law, in relation to deeming central venous lines as medically necessary Dream Shepherd is an 12-year-old girl who has courageously battled Sickle Cell Disease and who suffered a stroke in 2010 at the age of five. In December 2014, as part of a study, Dream received a stem cell transplant as part of her treatment plan and fight against Sickle Cell Disease. After the transplant she remained in the hospital for several months, while Doctors worked to stabilize her immune system, which was crucial to her discharge and transplant success. Additionally while in the hospital Dream had a Central Venous Line placed into her heart. The Central Venous Line has strict care requirements. In New York State Health Facilities only Registered Nurses are legally allowed to administer I.V. medications with use of a Central Venous Line; which have to be properly managed to ensure that Dream, and other's with a Central Line, do not acquire infections, especially if immuno-compromised. This central line goes directly into the right atrium of the heart, and requires immediate action should there be a disconnection for any reason as a patient with this type of line can exsanguinate should this go unmonitored or unnoticed. In addition to the high risk of infections, other complications of Central Venous Lines include Air Embolism, Pneumothorax, Pinch-off, Syndrome, Drug Precipitates, Thrombosis, Catheter Occlusion, Catheter Malposition, and Sepsis a severe blood infection caused by bacteria, viruses, and fungi. Sepsis is extremely serious and can be life-threatening. Due to the high potential for dangerous infections, as part of discharge planning, Dream's mother, who is not a medical professional, made a request for a skilled private duty nurse to care for Dream's central venous line. This request was denied by the insurance company as it was "not deemed medically necessary." Due to this rejection by the insurance company, the hospital informed Dream's mother, that she was required to provide the necessary care to Dream's central venous line. Not ensuring that Dream would have the correct and proper skilled nurse to provide the care after discharge which could have caused irreparable harm, including the worst outcome. Attempting to force the mother to provide the care would have required her to lose her job and source of income, along with saddling her with the anxiety of overseeing the medical attention that if not done properly, could lead to the loss of her daughter's life. That is a position no family member or friend should ever be in.
Petition to Margaret Jones, Dr. Julian Allen, MD, Dr. Samuel B. Goldfarb, MD, Debby Mcgrath, MSS
PLEASE, PLACE PATIENCE LEE MALDONADO-RIVERA ON LUNG TRANSPLANT LIST!!!
PLEASE HELP MY CHILD!!! Patience Lee Maldonado-Rivera is 12 years old and has been fighting IPF since she was 2! Her every breath counts! Children's hospital of Philadelphia is saying my child is not a candidate for transplants through their hospital! WE NEED HELP! Help not only for my child and our family but every organ needed person and their families! A person let alone a child should not be turned down for any organs for any reason at all! This is why we have organ donors all over the world! Patience AKA Coco is strong bright little girl who has fought so hard. Thanks to my Mother & Father and my brother Angel and Coco's sister Jadessa for always looking after my little girl. Of course we know the heavenly father and Coco's daddy, who passed away are always keeping her safe. You can follow her progress on Facebook she currently has 2 pages: TEAM COCOLEE and TEAMCOCOLEE INSTAGRAM PAGE: @Teamcocolee GO FUND HER PAGE AT: http://www.gofundme.com/teamcocolee WE FIGHT PULMONARY FIBROSIS!!! PLEASE HELP US FIGHT!
Petition to University of California Board of Regents, Sherry Lansing, Reece Fawley, Susan Desmond-Hellmann, UCSF Kidney Transplant Center, Dianne Feinstein, Barbara Boxer
UCSF: Don't Let Jesus Navarro Die, Approve His Kidney Transplant
Please join me in signing this urgent petition. Without a kidney transplant, an Oakland father named Jesus Navarro will die. I was once in need of a transplant, but thankfully I was able to receive a kidney from a Nicaraguan friend of mine. UCSF never asked me if I was a legal resident. Now, Jesus Navarro, a dedicated, hard-working family man who has health insurance needs this life-saving procedure. He even waited for 6 years to come to the top of the list for recepients. His wife wishes to donate her kidney to him. UCSF hospital has told Jesus that the only reason he would not be able to get a transplant is becuase of his immigration status. As I see it, this is a matter of life and death. Jesus has received hundreds of messages of support stating that he should be allowed to receive a transplant. Immigration status should not determine someone's fate. Sign the petition to convince the UCSF Kidney Transplant Clinic to do the right thing and let Jesus receive this life-saving transplant. Thank you. P.S. You can read more on Jesus' story: Jesus Navarro has a donor match in his wife and private insurance to pay for a kidney transplant. But UC San Francisco Medical Center refuses to perform the operation because administrators cannot be sure he will be able to afford follow-up care given his status as an illegal immigrant. This man does not deserve to die.