4 petitions

Update posted 1 month ago

Petition to Kemp Hannon, Richard Gottfried, John Flanagan, Carl Heastie

Enact the "Dream law" Bill S1165/ A5514 for all Transplant Patients 2018

TITLE OF BILL : An act to amend the public health law, in relation to deeming central venous lines as medically necessary Dream Shepherd is an 12-year-old girl who has courageously battled Sickle Cell Disease and who suffered a stroke in 2010 at the age of five. In December 2014, as part of a study, Dream received a stem cell transplant as part of her treatment plan and fight against Sickle Cell Disease. After the transplant she remained in the hospital for several months, while Doctors worked to stabilize her immune system, which was crucial to her discharge and transplant success. Additionally while in the hospital Dream had a Central Venous Line placed into her heart. The Central Venous Line has strict care requirements. In New York State Health Facilities only Registered Nurses are legally allowed to administer I.V. medications with use of a Central Venous Line; which have to be properly managed to ensure that Dream, and other's with a Central Line, do not acquire infections, especially if immuno-compromised. This central line goes directly into the right atrium of the heart, and requires immediate action should there be a disconnection for any reason as a patient with this type of line can exsanguinate should this go unmonitored or unnoticed. In addition to the high risk of infections, other complications of Central Venous Lines include Air Embolism, Pneumothorax, Pinch-off, Syndrome, Drug Precipitates, Thrombosis, Catheter Occlusion, Catheter Malposition, and Sepsis a severe blood infection caused by bacteria, viruses, and fungi. Sepsis is extremely serious and can be life-threatening.  Due to the high potential for dangerous infections, as part of discharge planning, Dream's mother, who is not a medical professional, made a request for a skilled private duty nurse to care for Dream's central venous line. This request was denied by the insurance company as it was "not deemed medically necessary." Due to this rejection by the insurance company, the hospital informed Dream's mother, that she was required to provide the necessary care to Dream's central venous line. Not ensuring that Dream would have the correct and proper skilled nurse to provide the care after discharge which could have caused irreparable harm, including the worst outcome. Attempting to force the mother to provide the care would have required her to lose her job and source of income, along with saddling her with the anxiety of overseeing the medical attention that if not done properly, could lead to the loss of her daughter's life. That is a position no family member or friend should ever be in.

Diana Lemon
15,937 supporters
Started 7 months ago

Petition to Shannon Buttermore

Organ Opt-Out aka Implied Consent USA

 "As of August 1, 2016, there were 120,004 people waiting for life-saving organ transplants in the USA.  Of these, 96,645 were awaiting kidney transplants."                                                                 (compliments of Wikipedia/Organ donation)  I was diagnosed at 5 with deformed ureters which grew into the sides of my bladder, in turn causing reflux pushing the waste from my bladder back up into my kidneys.  By the age of 7 I had an operation to connect my ureters the correct way.  Although this has worked with some people diagnosed sooner then myself it was not enough to keep my kidneys.  By the Age of 16 I was looking into which kind of dialysis would best fit my needs, I was put on the transplant list and had 10% function of both kidneys.     I had just become a sophomore in high school, was a cheerleader, felt tired at times but felt what I knew at "normal healthy". It was a typical day at school when my dad picked me up saying he received notice that I was going to be the proud recipient of a kidney!  But this wasn't just any kidney, this was someone who had taken the time to talk to his family, checked the box on his driver's license or a person who's family chose to remember his life by saving many other lives!   Looking back now 18 years out, I am happily married, we have 3 healthy happy children,  life is lived it to its fullest!  My kidney function is doing great although we hit a few road bumps I still look to many more happy healthy years.  In the back of my mind I know that no matter the transplant we are all on barrowed time.  I WILL eventually need another life saving transplant. This selfless act  from my donors family saved up to 8 lives that day!  Not only did these organs save lives but they also helped to save families from watching there loved ones go under life saving treatments just to wait for an organ, treatments that can make you bedridden, sick, tired all the time and are a last resort for those on the waiting list. On average 20 people die each day while waiting for a life saving organ transplant.    As of 2010, 24 European countries have some form of presumed consent (opt-out) system, with the most prominent and limited opt-out systems in Spain, Austria and Belgium yielding high donor rates.  Donations may be for research, or more commonly healthy transplantable organs and tissues my be donated to be transplanted into another person. This petition is for an "Opt-out" law.  This means that you will automatically be registered as an organ donor.  While views of organ donation are positive there is a large gap between the numbers of registered donors compared to those awaiting organ donation on a global level.  Right now about 15% of people in the US have "opt-in", this means that you have given consent to become an organ donor. Other things to consider putting into such a law would be that if you have religious or personal preference, clear wording with an explanation of what this "opt-out" law would involve. I am extremely grateful for this amazing gift that I received.  If you choose to sign my petition you choose to save lives.  I know that this isn't for everyone and I accept that.  There are many reasons to choose either way, signing this doesn't mean you cant opt-out if you choose. This allows an easier way for those to give consent and to save lives!  Thank you for reading this.   ~Shannon Buttermore (18 year deceased doner kidney recipient)       

shannon Buttermore
690 supporters
This petition won 6 years ago

Petition to University of California Board of Regents, Sherry Lansing, Reece Fawley, Susan Desmond-Hellmann, UCSF Kidney Transplant Center, Dianne Feinstein, Barbara Boxer

UCSF: Don't Let Jesus Navarro Die, Approve His Kidney Transplant

Please join me in signing this urgent petition. Without a kidney transplant, an Oakland father named Jesus Navarro will die. I was once in need of a transplant, but thankfully I was able to receive a kidney from a Nicaraguan friend of mine. UCSF never asked me if I was a legal resident. Now, Jesus Navarro, a dedicated, hard-working family man who has health insurance needs this life-saving procedure. He even waited for 6 years to come to the top of the list for recepients. His wife wishes to donate her kidney to him. UCSF hospital has told Jesus that the only reason he would not be able to get a transplant is becuase of his immigration status. As I see it, this is a matter of life and death. Jesus has received hundreds of messages of support stating that he should be allowed to receive a transplant. Immigration status should not determine someone's fate. Sign the petition to convince the UCSF Kidney Transplant Clinic to do the right thing and let Jesus receive this life-saving transplant. Thank you. P.S. You can read more on Jesus' story: Jesus Navarro has a donor match in his wife and private insurance to pay for a kidney transplant. But UC San Francisco Medical Center refuses to perform the operation because administrators cannot be sure he will be able to afford follow-up care given his status as an illegal immigrant. This man does not deserve to die.

Donald Kagan
142,166 supporters