150 petitions

Update posted 23 hours ago

Petition to NHS England, National Institute for Health and Care Excellence (NICE)

Don’t delay funding for vital new drugs and treatments

We urgently need your help to stop plans that would delay vital new drugs and treatments getting to patients. A final decision is expected in two weeks - make your voice heard today! NHS England and The National Institute for Health and Care Excellence (NICE) have put forward proposals which threaten to have a devastating impact on access to vital new health treatments for millions of people. There is a real risk that some patients may die while life extending treatments are kept just out of reach. We urgently need you to sign this petition calling on NHS England to reconsider. NHS England and NICE are proposing that if any new treatment is approved for use on the NHS in England, but will cost more than a set amount per year overall, then access can be restricted and delayed with no limits on how long this can last. If this was set at £20 million as in their draft proposal this would mean that around 1 in 5 new treatments will potentially be delayed. This undermines what our health service is supposed to be all about. Personal storiesAlan Oliver, 66, Widnes said: “For 4.5 years I have been taking abiraterone - a breakthrough treatment for the advanced stages of prostate cancer. It’s been my wonder drug. Despite knowing that on paper I’m very ill, I feel very much alive and well. Abiraterone has without question given me several extra years, it has allowed me to enjoy my 4 grandchildren, 3 of whom are now in school, and I just couldn't put a price on this. It scares me that if this so called cost-cap comes in, then in the future drugs like abiraterone would not get through the threshold and people like me could potentially have the chance of precious time with loved ones held just out of reach. It seems to me that there must surely be another way that gives people in my situation in the future a fairer deal." Kathleen Moss has HER2+ incurable secondary breast cancer. She said: "It’s difficult enough to get new breast cancer drugs approved by NICE. It’s so unfair to think that effective treatments that have managed to overcome this hurdle could be delayed in reaching the patients that need them." The NHS needs to keeps its costs under control, however this is not the solution. It is an arbitrary approach which is bad for patients and a betrayal of NHS principles – the more people a treatment may help, the more likely it could be to be delayed.  This is a radical departure from the current way that drugs are evaluated as set out in the NHS constitution. We believe negotiation with the pharmaceutical industry should happen alongside treatment development to give the best chance of them being at a reasonable price by the time they are ready for the clinic. Time is running out to stop this happening. Join us and call for these plans to be scrapped and for NHS England and its partners to develop a way forward with patients at its heart. In addition to Prostate Cancer UK, the following charities are supporting this petition: Association of Medical Research Charities, Asthma UK, Brain Tumour Research, Breast Cancer Care, Breast Cancer Now, Beating Bowel Cancer, Bowel Cancer UK, Kidney Cancer Support Network, Leukaemia Care, Ovacome, Pancreatic Cancer UK, Roy Castle Lung Cancer Foundation, Tackle.

Prostate Cancer UK
23,929 supporters
Update posted 2 days ago

Petition to Philip Hammond, Jeremy Hunt

Give Epilepsy services the £89.4m from drug company fines

On 7 December the Competition and Markets Authority (CMA) fined pharmaceutical company Pfizer and drug distributor Flynn Pharma a record £84.2m and £5.2m respectively after they increased the price of lifesaving anti-epilepsy drugs by up to 2,600%. (Guardian) While this is a fantastic achievement we now need to convince the government to invest this £89.4m back into epilepsy care. The NHS were forced to continue to use this medication despite the inflated prices, because when a specific medication is prescribed, any changes could decrease the quality of life for those suffering with epilepsy causing seizures and other life threatening effects. The money should be made available to the NHS to improve community epilepsy services. Phenytoin sodium - an anti-epilepsy drug used by an estimated 48,000 people across the UK - had been increased from £2.83 to £67.50 for a 100mg pack, meaning the NHS was having to spend around £50m a year (for 4 years!!) on this medication. This was reduced to £54 a pack, but is still far more expensive than anywhere else in Europe. (Telegraph) Dr Martin Brunet, the GP who flagged this issue back in 2012 before it was taken up by the CMA, went on Radio 4's PM show to discuss this issue. (Radio 4 PM) He feels this funding should be used to fund epilepsy nurses across the UK. I think this is a fantastic idea! As an epilepsy sufferer, nurses who specialise in this field provide brilliant care and advice to those who need support. In 2010 Epilepsy Action research determined that "at least 60 per cent of people with epilepsy (nearly 280,000 people in the UK) will require ongoing access to an adult, paediatric or learning disability epilepsy specialist nurse (ESN)." (Epilepsy Action) They have been underfunded for many years, but this fine provides a unique opportunity to have epilepsy nurses in communities across the UK. So let's turn this tale of corporate greed into a good news story and convince the UK Government to use this money fund a new generation of epilepsy nurses! So please sign the petition, share with your friends and network, and most critically at this stage: write to your MP! Let's work together to make a real difference to people's lives. Thank you, Andy

Andrew Palmer
4,064 supporters
Update posted 3 days ago

Petition to Jeremy Hunt,, Phillip Dunne, Nicola Blackwood, Simon Steven, Ian Dodge, National Director for Comissioning Strategy, NHS., Professor Dame Janet Finch

Give every mother the chance to save people like Ruby with cord blood donation.

Last year, my friend Ruby cancelled a playdate between my daughter and her two children because she felt unwell and needed to see the GP about a worrying lump. That lump turned out to be a complex form of blood cancer and now, within 3 months, Ruby is desperately searching for a stem cell donor to save her life.The more people that register to donate, the higher the chance those like my friend Ruby have to find a match and survive. We learnt that there’s a really easy way to donate stem cells by giving away umbilical cords after childbirth. Only 6 hospitals offer this service to donate through the NHS and the charity Anthony Nolan offer collection at 4 additional hospitals. This can save a person’s life but not enough people know that they can do this. That’s why I’m calling for more awareness and opportunities to donate umbilical cords.  Ruby, 37, is from El Salvador via Australia and now lives and works as a social worker in London. Since being diagnosed with Acute Lymphoblastic Lympho-Leukaemia, she’s soldiered through two rounds of intensive chemotherapy in hospital.At times she has been separated from her children because of the risk of toddler colds to her compromised immune system – she heard her daughter Sofia, who was one in February, say ‘Mama’ for the first time through Facetime. One hospital that lets you donate is Barnet General and is local to me. I gave birth to my daughter at another hospital because I wasn't made aware that cord blood donation was possible. Had I known, I would have chosen to do so especially now seeing my friend fight for her life. It hurts to know that we missed such an easy chance to potentially save a life. Many of Ruby's friends and family have become parents recently and we were all astonished at how little cord blood donation is publicised and offered to new mothers. There are hundreds of thousands of wasted opportunities for those desperately searching right now.Sadly, Ruby is not alone. Every 20 minutes someone in the UK is diagnosed with blood cancer and 2,000 people a year will need a life saving stem cell or bone marrow donation from a stranger. It is even harder for those like Ruby from diverse backgrounds to find a match. Ruby is passionate about letting people know about the lack of diversity on the register and improving the chances of all people.We call on the NHS and Central Government to increase the opportunities for (and education around) donating cord blood to help people with blood disorders so that people like my friend Ruby have a chance of survival.Thank you.---Support Ruby, Sam, Daniel and Sofia at Facebook Page : 'Register for Ruby'  Google Search:  'Register for Ruby' You can also quickly and easily register to go on the database for donation yourself as an adult (if between 17-55 and in relatively good health) at DKMS. Please read, register and share.

Elspeth Fuller
54,107 supporters