151 petitions

Update posted 3 days ago

Petition to Jeremy Hunt,, Phillip Dunne, Nicola Blackwood, Simon Steven, Ian Dodge, National Director for Comissioning Strategy, NHS., Professor Dame Janet Finch

Give every mother the chance to save people like Ruby with cord blood donation.

Last year, my friend Ruby cancelled a playdate between my daughter and her two children because she felt unwell and needed to see the GP about a worrying lump. That lump turned out to be a complex form of blood cancer and now, within 3 months, Ruby is desperately searching for a stem cell donor to save her life.The more people that register to donate, the higher the chance those like my friend Ruby have to find a match and survive. We learnt that there’s a really easy way to donate stem cells by giving away umbilical cords after childbirth. Only 6 hospitals offer this service to donate through the NHS and the charity Anthony Nolan offer collection at 4 additional hospitals. This can save a person’s life but not enough people know that they can do this. That’s why I’m calling for more awareness and opportunities to donate umbilical cords.  Ruby, 37, is from El Salvador via Australia and now lives and works as a social worker in London. Since being diagnosed with Acute Lymphoblastic Lympho-Leukaemia, she’s soldiered through two rounds of intensive chemotherapy in hospital.At times she has been separated from her children because of the risk of toddler colds to her compromised immune system – she heard her daughter Sofia, who was one in February, say ‘Mama’ for the first time through Facetime. One hospital that lets you donate is Barnet General and is local to me. I gave birth to my daughter at another hospital because I wasn't made aware that cord blood donation was possible. Had I known, I would have chosen to do so especially now seeing my friend fight for her life. It hurts to know that we missed such an easy chance to potentially save a life. Many of Ruby's friends and family have become parents recently and we were all astonished at how little cord blood donation is publicised and offered to new mothers. There are hundreds of thousands of wasted opportunities for those desperately searching right now.Sadly, Ruby is not alone. Every 20 minutes someone in the UK is diagnosed with blood cancer and 2,000 people a year will need a life saving stem cell or bone marrow donation from a stranger. It is even harder for those like Ruby from diverse backgrounds to find a match. Ruby is passionate about letting people know about the lack of diversity on the register and improving the chances of all people.We call on the NHS and Central Government to increase the opportunities for (and education around) donating cord blood to help people with blood disorders so that people like my friend Ruby have a chance of survival.Thank you.---Support Ruby, Sam, Daniel and Sofia at Facebook Page : 'Register for Ruby'  Google Search:  'Register for Ruby' You can also quickly and easily register to go on the database for donation yourself as an adult (if between 17-55 and in relatively good health) at DKMS. Please read, register and share.

Elspeth Fuller
55,878 supporters
Update posted 5 days ago

Petition to Nicola Sturgeon

Reintroduce no-delay NHS dental registration on the Isle of Lewis

We call on the Scottish government to allow NHS dental registration on the Isle of Lewis. For a number of years, there has been a complete lack of dentists working on Lewis with whom a resident who is not already registered can register as an NHS patient. Instead there is an emergency-only service, and there is a "waiting-list" for registration. A resident is allowed to join the list, and then they may be allowed to register perhaps six or 12 months later if enough patients die or leave the island. Lewis has a population of nearly 20000 people, and it also has a large hospital. Until 2014 it was possible to register as an NHS dental patient here, and it is obviously still possible if the Scottish Government decides to recognise and solve the existing problem. People on the Isle of Lewis and everywhere else in Britain are entitled to have routine maintenance of their teeth conducted within the NHS. The whole principle of the NHS is that all British citizens may have their medical and dental needs met. This cannot happen when we are not even allowed to register as patients. A promise that we may possibly be able to register in a year's time is not registration. The only way we can register as NHS dental patients at the moment is to travel away from the island, to a town such as Inverness. Such a journey not only requires considerable expense but depending on a person's employment and family circumstances would also usually necessitate an overnight stay on the mainland. For many of us this would mean great inconvenience. For example we would need to arrange childcare and find alternative ways to ensure that other family responsibilities are looked after. Many residents simply cannot afford the expense and inconvenience of travelling to Inverness every few months for dental treatment. The deterioration in dental health on this island that results from the Scottish Government's inaction is obvious. The Scottish Government must therefore reintroduce no-delay dental registrations for residents on the Isle of Lewis as a matter of urgency. We do not want talk. We want action.

Margaret Murray
73 supporters