Petition to U.S. House of Representatives, U.S. Senate, New Hampshire State House, New Hampshire State Senate, New Hampshire Governor, The US Senate, Beth Bell, MD, Sylvia Burwell, Dr. Tom Frieden, Rima Khabbaz
Calling for a Congressional investigation of the CDC, IDSA and ALDF
We are experiencing a health crisis here in New Hampshire and across the country with the growing epidemic of Lyme disease. A number of legislators have personally been affected and have introduced legislation to address this problem. Here are just a few recent examples. Massachusetts Representative David Linsky: “The occurrence of Lyme disease has reached near epidemic proportions in Massachusetts. Virtually every family in Massachusetts has been affected by Lyme disease in some way. Lyme disease is a public health crisis in the Commonwealth.” Read more… Connecticut, Rhode Island, New York Senator Richard Blumenthal: "Today for me culminates more than a decade of work and probably a decade more, because I've seen firsthand the devastating, absolutely unacceptable damage done by Lyme disease to individual human beings, Connecticut children and residents whose lives have been changed forever as a result of Lyme disease” Read more…. New Jersey, Pennsylvania Congressman Chris Smith: "It seems everywhere I go, someone comes up to me to talk about how Lyme disease has severely impacted their lives or someone they know," Read more… Virginia Virginia Governor’s Task Force Chair Michael P Farris, Esq: "Doctors here in Virginia are committing malpractice by saying the ELISA test is sufficient." Read more… Texas Sen. Harris says he was severely affected by the disease, but “got a lucky break.” His doctor, constrained by a disciplinary board that limited antibiotic use for tick-borne illness to 1 month or less, arranged for 17 physicians to take turns writing prescriptions for Sen. Harris’s treatment. Read more… Two HoustonTexas physicians tested their chronically ill patients for Lyme disease via CDC Western blot criteria finding all patients positive for the infection in a state where the prevalence of Lyme infected ticks is only about 1-2%. “No history of bull’s-eye rash or illness following tick bite was reported by these patients.” The CDC defines “Lyme disease” exclusively as a zoonotic illness. Congenital and gestational transfer cases have been disregarded for reasons not evident to us”. Read more… Congenital Transmission of Lyme: 28 Peer-Reviewed Studies After spending four years on this subject the following statement from a physician on the front lines treating the late stage Lyme epidemic for a quarter century rings true: “In the fullness of time, the mainstream handling of chronic Lyme disease will be viewed as one of the most shameful episodes in the history of medicine because elements of academic medicine, elements of government and virtually the entire insurance industry have colluded to deny a disease.” We have studies proving persistent infection after antibiotic treatment for mice, dogs, ponies, monkeys, cows, iris biopsy, and ligamentous tissue but if you perform a simple Yahoo search for the following statement, “There is no convincing scientific evidence that chronic Lyme exists” you will find the top search results are connected to “elements of academic medicine” involved in the denial of the late stage Lyme epidemic. Persistent Lyme infection: 273 Peer-Reviewed Studies Circular reasoning: "Suppress all evidence and then proclaim there is no evidence" “One way to stop an epidemic is to redefine it by narrowing the disease's diagnostic criteria so tightly that it's hard for any chronically ill Lyme patient to fit the profile and obtain insurance reimbursement.” Read more… The following CDC letter (Dec 1996) addressed to former Senator Alfonse D’Amato promising to inform the medical community that the CDC’s Lyme case definition was created for reporting purposes only and not intended for clinical diagnosis is yet another failure on the part of the CDC to follow up on their responsibilities. Countless numbers of Lyme patients have been denied treatment and insurance reimbursement as a result of the restrictive case definition. Read more… Jan 2004 testimony from Paul Mead, M.D., M.P.H. Medical Epidemiologist from the CDC’s Division of Vector-Borne Infectious Diseases: “No surveillance case definition is 100% accurate. There will always be some patients with Lyme disease whose illness does not meet the national surveillance case definition.” Read more… Seronegativity in Lyme borreliosis: 103 Peer-Reviewed Studies There has been a combined effort on the part of the CDC, IDSA and ALDF to use the media for propagating the Lyme disease disinformation campaign following Chomsky's propaganda model. They have used Medscape, Family Practice News, The New England Journal of Medicine, The Lancet Infectious Diseases and now The American Heart Association to spread the disinformation. This deliberate campaign is aimed at purposely confusing our medical community to keep case numbers artificially low by omitting the late stage of the disease entirely as there is absolutely no medical training whatsoever for the later stages of this disease (Willful Ignorance) so patients are often ping ponged though the medical community for years or decades before obtaining a late stage Lyme diagnosis. Nine Steps to Deny an Epidemic on a National Level 101 Letter to the editor of Clinical Infectious Diseases questioning the validity of Dr Alan Steere’s research. Read more…. Letter to the editor of Clinical Infectious Diseases questioning the validity of Dr Gary Wormser’s research. Read more…. Dr Alan MacDonald’s letter to the editor of Clinical Infectious Diseases questioning the reality of the abstract by Lantos, Auwaerter, and Wormser: Read more….. Agenda-driven bias: “People with these types of agendas may be more likely to abuse meta-analysis due to personal bias” NEJM editor: “No longer possible to believe much of clinical research published” When “evidence based medicine” has been spun to fit bias agendas and the patient voice has been intentionally ignored who investigates the dishonest science? Email message sent to the editors of the publications listed above announcing this petition. Read more… It’s all about the VACCINE It has become blatantly obvious that the CDC will go to great lengths to insure that Lyme disease remains within its narrow definition in order to fit the vaccine model. Chronic Lyme does not fit any vaccine model. The CDC has long known about the virulence and persistence of this spirochete focusing on a vaccine as the cure-all to this world wide epidemic. The late stage/chronic Lyme community has become collateral damage for a vaccine market in the course of a government sponsored initiative as Baxter’s phase III clinical trials are underway. The CDC has aligned itself with institutions/researchers with a bias against persistent infection and has misused its authority by inappropriately allotting government funds to Mass General Hospital (Dr Alan Steere) and New York Medical College (Dr Gary Wormser) as identified in the following communications. Read more…. The Principle Investigators of the two previous Lyme vaccines: Allen C. Steere for SmithKlineBeecham's LymeRix and Gary Wormser for Connaught's vaccine (which never made it to market) have conceptualized a disease that would enable vaccine development. The one-size-fits-all Lyme treatment guideline (lead author: Gary Wormser) matches the conceptualized disease. A preventive vaccine for Lyme disease would not satisfy the FDA if a chronic persistent infection and seronegative disease exist. Post-treatment Lyme disease syndrome is simply a fabricated medical condition disguising treatment failure. Seronegativity in Lyme borreliosis: 103 Peer-Reviewed Studies It remains questionable that a Lyme disease vaccine is practical for an infection that produces a lack of immunological memory (unlike Measles, Mumps etc.) so the Wormser study fabricating a six year strain-specific immunity makes perfect sense for the marketing/acceptance of such vaccine as identified in a letter to Editor in Chief, Ferric C. Fang, M.D. Infection and Immunity. Read more… The producers of the documentary, “Under Our Skin,” submitted a Freedom of Information Act (FOIA) request to investigate possible conflicts-of-interest of three Centers for Disease Control (CDC) employees who control public health policy for Lyme disease. (Barbara Johnson, Paul Mead and David Dennis) That request was finally fulfilled (May 2012) from the Department of Health and Human Services (five years later!). The information received is highly redacted with approximately half the information cut. What does the CDC know about Lyme disease that requires hiding from the public? The Centers for Disease Control has betrayed the public trust. For more on the FOIA see Poughkeepsie Journal article # 1 article # 2 By Mary Beth Pfeiffer Mary Beth Pfeiffer of the Poughkeepsie Journal highlighted the worst conflicts of interests between federal officials and a core group of researchers receiving government grants in the “ties that bind” page. Read more… Who is responsible for the “highly pathogenic” clone of the Lyme disease bacteria, (Borrelia burgdorferi) found in Europe and North America as reported by the journal Emerging Infectious Diseases? Read more… The following list establishes who knew what and when identifying their contribution to the disinformation campaign aimed at denying persistent Borrelia infection. When subpoenas are issued CDC officials cannot claim conflicts of scheduling issues and must attend to testify under oath regarding the mishandling of Lyme disease. Congressional Investigation Subpoena List 1. CDC Officials DAVID DENNIS (1) (2) (3), C. Ben Beard, Barbara Johnson (1), Paul Mead (1), Joseph Breen Former NIH Lyme Program Officers Phillip Baker, Edward McSweegan (1)(2) 2. IDSA Lyme Treatment Guideline Authors (1) (2) (3) (4) Gary P Wormser (1), Raymond J. Dattwyler (1), Eugene D. Shapiro, John J Halperin (1), Allen C. Steere (1), Mark S Klempner (1), Peter J. Krause, Johan S. Bakken, Franc Strle, Gerold Stanek, Linda Bockenstedt (1), Durland Fish (1) (2), J. Stephen Dumler, Robert B. Nadelman Academic Medicine Paul Auwaerter, Arthur Weinstein (1) 3. The American Lyme Disease Foundation Phillip Baker, (1) (2) Executive Director Please call your legislator and respectfully urge immediate action from the U.S. Senate and U.S. House of Representatives to fully investigate the facts surrounding the failures of leadership and management deficiencies by requesting a Congressional investigation of the CDC, IDSA and ALDF (Find your Senator) (Find your Representative) Yolanda Foster on Lyme disease, one of the "Real Housewives of Beverly Hills” Dr Alan MacDonald on Alzheimer's and Lyme disease, “The Biology of Lyme Disease: An Expert's Perspective” Remarks: World Wide Lyme Rally & Protest Kenneth B. Liegner, M.D. Lyme disease testing flaws and conflicts of interests The Barry Marshall affect on chronic disease Inconvenient truths Bullying of Lyme patients List of abbreviations CDC: Centers for Disease ControlIDSA: Infectious Disease Society of AmericaALDF: American Lyme Disease Foundation Carl TuttleHudson, NH03051 Website: New Hampshire Lyme Misdiagnosis Letter to the Editor, The Lancet Infectious Diseases Published May 2012 The Tuttle family was featured on New Hampshire Chronicle’s “Living with Lyme” with the program archived on their site in six small segments for viewing on the computer Part 1, Part 2, Part 3, Part 4, Part 5, Part 6
Petition to U.S. House of Representatives, Paul Ryan, Nancy Pelosi
Support legislation to keep dialysis patients insured. Tell Congress to pass H. R. 3976.
Low-income Americans with high-cost chronic conditions, like kidney disease, often require charitable assistance to pay for their health insurance premiums. But some insurance companies are refusing to accept payments from non-profit organizations. This puts low-income and financially struggling patients at risk of losing their insurance. Patient advocates for the American Kidney Fund started a petition to help address this crisis. We are fighting to ensure that all kidney dialysis patients can maintain access to their life-saving treatment. The Access To Marketplace Insurance Act would do just that, and we are calling on Congress to pass it into law. The Access to Marketplace Insurance Act, was introduced in the House of Representatives last October. The bill would require insurance companies to accept payments from nonprofit organizations like the American Kidney Fund that serve people who are living with serious health conditions and need charitable assistance to stay insured. Now Congress must take the next step and pass this legislation to ensure that ALL low-income Americans living with chronic conditions can keep their insurance and get the care they need. Please sign and share this petition calling on Congress to vote on this vital legislation right away.
Petition to Jeff Flake, John McCain, Donald Trump
Fight For Those Who Fought For You
As federal patients, Veterans are being prescribed extremely addictive pharmaceuticals linked to widespread death across the country. Despite this fact, these pills remain at a lower classification within the Controlled Substances Act (CSA) than cannabis. Cannabis has helped many people suffering from debilitating conditions such as PTSD, cancer, chronic pain, addiction withdrawal and has statistically lowered the suicide rate in states where it is “legal.” Veterans Health Administration (VA) primary care teams should be educated on how to best implement cannabis into a veterans treatment plan. When a patient is a legal medical cannabis card holder as well as a veteran, they should be afforded the freedom to use cannabis within the VA system as a recognized medical alternative to psychiatric drugs without any discrimination or unjust actions against them. Do you agree: Should veterans be able to treat themselves with medical marijuana? If you do, please join us in the fight to provide veterans safe access and compassionate care within the Veterans Health Administration.
Petition to Dianne Feinstein, Kamala Harris, Jerry Brown, Boeing, Senator Henry Stern, Barbara Lee, Mohsen Nazemi
No more kids with cancer: clean up the Santa Susana Field Lab
When my daughter Grace Ellen was diagnosed with a very rare form of cancer, at age four, I thought that our family had the worst, most devastating luck. But after spending months in the hospital with her, we learned that she was one of 50 children who may have been poisoned by one of the worst nuclear meltdowns in America. Sign to demand that the Department of Toxic Substances Control (DTSC) safely and completely clean the Santa Susana Field Lab and prevent any more children from getting cancer. Grace Ellen’s form of cancer is incredibly aggressive. At age four she was put on several clinical trials, had ten times the normal amount of chemotherapy, and spent two years fighting her cancer. A year and a half later her cancer came back. Today she’s inpatient again, having finished more radiation and intense chemotherapy, and is healing from a bone marrow transplant. She’s addicted to morphine, unable to eat or drink, and is fighting for her life in the hospital isolation floor. It haunts me to know her cancer might have been avoidable. She, like the other 49 children, grew up within 20 miles the Santa Susana Field Lab, land which was developed in the 1940s to conduct nuclear research. In 1959 an uncontained partial meltdown of a sodium reactor caused such a devastating radiation leak that many consider it to be the worst nuclear disaster in U.S. history –and it was completely covered up for years. Our community has up to 60% higher cancer rates, we have decades of EPA reports to prove it. But the Boeing Company, who partially owns the site, is proposing that the land be open to families for recreational use, even while the disaster has still not been cleaned up. It is the Department of Toxic Substance Control’s job to clean up this mess, but they aren’t taking any meaningful action. Instead they released an Environmental Impact Report that proposes to leave vast amounts of the radioactive and carcinogenic waste on site permanently. They know our children are sick and dying, but Boeing doesn't care. They care about stockholders and profits more than people, and the government isn’t doing anything to stop them. I will protect my children even if I have to tear down mountains with my bare hands – and I am one of many parents fighting for our kids. To win this, we need our nation to stand with us to demand that DTSC clean up this disaster once and for all. Will you join us? #SantaSusana
Petition to Netflix
Keep the show "Archer" on Netflix
To start, I have been watching Archer for a few months now. It is easily one of the things that keeps me happy, entertained, and is my main choice on Netflix. However, it has said that Archer will be taken off of Netflix by March 14th, which I am devastated about. The show isn't insanely popular, but it has gained a lot of traction this year and a new season is even coming out. Please hear me out on this and see how many people agree! I use Netflix service so heavily for that show.. If we could have the show on for a much longer time, just keeping it on, I would be insanely happy as well as multiple others. It has helped me with my depression, and I would be very grateful!
Petition to Netflix
Keep 'How I Met Your Mother' on Netflix!
I can't believe that Netflix is even considering taking 'How I Met Your Mother' away from me! I actually started crying when I received this news. 'HIMYM' has been my favorite show since it first aired. I am currently watching it for the 25th time (Not exaggerating). This show has helped me through some of the hardest times in my life. I have grown very close to the characters and will never get tired of watching them grow together. EVER. I have turned MANY people onto this amazing show and I know they will back up this request. PLEASE keep this show on Netflix, these characters are like family to me.