5 petitions

Update posted 3 days ago

Petition to Jeremy Hunt

Provide Tapering Strips to help users who want to stop taking anxiety & depression drugs

Provide Tapering Strips to help users who want to stop taking anxiety & depression drugs Psychoactive prescription drugs (such as antidepressants, antipsychotics and anti-anxiety medications) are often very difficult to stop taking. Many people experience difficulties stopping or reducing their drugs even with the support of Doctors and Psychiatrists. Because stopping or reducing these drugs is so difficult, many people feel trapped into taking these tablets for many years, giving them side effects and costing the NHS money in providing unnecessary prescriptions. Many of these drugs cause a physical dependance and the best way to avoid any unpleasant symptoms is to reduce the dosage slowly over an extended period. As it is now, many people who want to stop have no option but to reduce to the lowest possible dosage then “jump off” which can be extremely challenging. Some users simply carry on taking a drug beyond the point at which it was effective and useful to avoid the challenge of stopping. A Dutch research team, led by Dr. Peter Groot and working with the not-for-profit Cinderella Therapeutics foundation have created the solution that this petition is calling for, website is in Dutch but an English translation is on the way Listen to my interview with Dr. Groot here: What we want We want the UK medical authorities to trial and implement Tapering Strips which provide the most commonly prescribed medications in decreasing doses over a period of time.  We need Tapering Strips to help the millions of users of psychoactive pharmaceutical drugs because: Many tablets are only available in increments that are so large that they are useless for gradual lowering (tapering) of the dose.  Liquid forms for some medications are available but tend to be hugely expensive and therefore the NHS will not provide them.  Pill cutting is, at best, a hit and miss affair and can lead to withdrawal. Many doctors and psychiatrists confuse the symptoms of withdrawal with a return of the symptoms that the tablet was originally prescribed for. These kits would save a significant amount of time for General Practitioners, Psychiatrists and Community Mental Health teams. These kits would help users of psychiatric medications stop taking them safely and in a controlled fashion, giving them control over their drug intake. This solution exists and has already helped over 2,000 Dutch patients. We should adopt this approach UK wide and learn all we can from the Dutch researchers leading the study. This is vital work, and the solution is elegant and brilliantly simple. For more information visit:

James Moore
2,167 supporters
Update posted 5 months ago

Petition to Philip Hammond, Jeremy Hunt

Give Epilepsy services the £89.4m from drug company fines

On 7 December the Competition and Markets Authority (CMA) fined pharmaceutical company Pfizer and drug distributor Flynn Pharma a record £84.2m and £5.2m respectively after they increased the price of lifesaving anti-epilepsy drugs by up to 2,600%. (Guardian) While this is a fantastic achievement we now need to convince the government to invest this £89.4m back into epilepsy care. The NHS were forced to continue to use this medication despite the inflated prices, because when a specific medication is prescribed, any changes could decrease the quality of life for those suffering with epilepsy causing seizures and other life threatening effects. The money should be made available to the NHS to improve community epilepsy services. Phenytoin sodium - an anti-epilepsy drug used by an estimated 48,000 people across the UK - had been increased from £2.83 to £67.50 for a 100mg pack, meaning the NHS was having to spend around £50m a year (for 4 years!!) on this medication. This was reduced to £54 a pack, but is still far more expensive than anywhere else in Europe. (Telegraph) Dr Martin Brunet, the GP who flagged this issue back in 2012 before it was taken up by the CMA, went on Radio 4's PM show to discuss this issue. (Radio 4 PM) He feels this funding should be used to fund epilepsy nurses across the UK. I think this is a fantastic idea! As an epilepsy sufferer, nurses who specialise in this field provide brilliant care and advice to those who need support. In 2010 Epilepsy Action research determined that "at least 60 per cent of people with epilepsy (nearly 280,000 people in the UK) will require ongoing access to an adult, paediatric or learning disability epilepsy specialist nurse (ESN)." (Epilepsy Action) They have been underfunded for many years, but this fine provides a unique opportunity to have epilepsy nurses in communities across the UK. So let's turn this tale of corporate greed into a good news story and convince the UK Government to use this money fund a new generation of epilepsy nurses! So please sign the petition, share with your friends and network, and most critically at this stage: write to your MP! Let's work together to make a real difference to people's lives. Thank you, Andy

Andrew Palmer
4,136 supporters
Update posted 6 months ago

Petition to lorraine belmonte, fibromyalgia organisation, doctors

Recognise fibromyalgia as a disbilitating illness

We fibro suffers are unable to find jobs due to our illness we are NOT faking it and (i know personally) can not find employment as we can not be trusted to get to work every day whether part time or full time...  But at the same time are unable to claim any disabilty rewards or proper health care and medication   I myself am a 42 year old woman with two small children and it tugs badly at my heart that I can not be the same parent for them as most small children have   5 mins of running around and thats me out for the rest of the day may even several ...picking my son up from school always tires me out and i just collapse once home    I hardly sleep due to the pain im in at night  which makes me groggy the next day My short term memory has just disappeared to the point i am now having to write EVERYTHING down so as not to forget...and yes sometimes i even forget where that book has gone to...   I wish to go to work as sitting around in doors can sometimes be a lil bit boring  and get out and make new freinds...but as soon as you tell employers about your illness they politley say NO and who can blame them..   I just want more help with my medication I want it to be recognised as an actual illness and disibilty I want help to make my live better to live in for ME but most of all my FAMILY    Please sign this potition for me and 10's of other sufferes in the UK  help give us a voice   help us to be heard a little lOUDER xx   We need this to be seen as bad as it is like they do in AMERICA 

lorraine belmonte
338 supporters
This petition won 9 months ago

Petition to Paula Clark, Ian Austin MP

Child-friendly medication at Russell's Hall Hospital

My daughter is a regular in-patient at Dudley Group NHS (Russell's Hall Hospital) - Paediatrics, due to her asthma. Her treatment is always the same - nebulisers, steroids and antibiotics.  Previously the hospital used to give children soluble steroids as part of their treatment as this is easier for them to take. Over the last 12 months these have been replaced with a non-soluble variety, which are being crushed and soaked in water for children to take - I reiterate, these steroids are not intended to be soluble, thus do not dilute correctly! These 'non-soluble' (attempted diluted) are making most children  vomit and more distressed than they are already are, thus needing the medications to be re-issued and re-attempted.  Many of the doctors and nurses at Dudley Group NHS (Russell's Hall Hospital) from conversations I had with them believe that this is "absolutely stupid" (quote - unnamed doctor) and "ridiculous" (quote [another] unnamed doctor).  These have been withdrawn due to cost implications, however I would argue that this is a cost-neutral benefit and prescriptions are having to be made twice (sometimes 3 times) because the medication is no longer child-friendly. That said, the Dudley Group NHS (Russell's Hall Hospital) are quite prepared to use soluble steroids if they are provided for them (during our most recently in-patient stay, Russell's Hall Hospital used our soluble steroids that we provided to us by our GP as part of a rescue pack). We had no problem in getting our child to take these, but regularly heard children unduly becoming distressed/vomiting because of this problem. DON'T DISTRESS PARENTS AND CHILDREN ANYMORE THAN THEY ALREADY ARE, BY 'FORCING' A NON-CHILD FRIENDLY MEDICATION ON THEM, ESPECIALLY WHEN A "CHILD FRIENDLY ALTERATIVE IS AVIALABLE ON THE NHS !!

Gareth Payne
309 supporters