39 petitions

Update posted 3 weeks ago

Petition to Barbara Newhouse, All Regional Chapters

Tell ALS Association: Improve home care for ALS patients immediately

ALS patients desperately need the ALS Association to ACT IMMEDIATELY to address and correct home care issues.  There is miscommunication, as well as a knowledge deficit, of the home health services options available through insurance programs, including Medicare.  There is also a great disparity between the home care coverage allowed by Medicaid as compared to Medicare.  As a result, we are being forced into unnecessary and extreme circumstances, including:  premature placement in skilled nursing facilities; family deterioration and collapse as a product of the immense strain placed upon it; bankruptcy, and, early death.  The taxpayers are then unjustly burdened with the resolution of debt, increased health care costs from unnecessary skilled nursing facilities placements and increased utilization of government programs. The National ALS Advocacy Day & Public Policy Conference 2016 will be held in Washington D.C. on May 8-10, 2016.  Barbara Newhouse, President & CEO of the ALS Association, MUST MAKE HOME CARE FOR ALS PATIENTS THE #1 PRIORITY TO BE ADDRESSED.  Issues which must be resolved in 2016 include: Lobby Medicare and Congress to modify guidelines and regulations for home health services, including, but not limited to: Increase home health services coverage and hours per week allowed to equaling or being greater than those provided for by Medicaid. Add as an independent, sole qualifying factor for home health services the loss of use and mobility of upper and/or lower extremities. Increase the duration of home health services re-certification requirements from 60 day intervals to 180 day intervals. Ensure the process to receive home health services benefits is simple, streamlined and guarantees consistent and dependable access to the maximum allowable hours per week in each of the six disciplines*. Improve the ALS Association’s quality and effectiveness in serving the ALS community’s home care issues by implementing the following: Provide prompt, in-person information about ALS, as well as guidance on how the ALS Association will help manage the complexities of navigating 'the systems'. Require staff of all ALS clinics/centers, patient services and chapter support persons to be competent in Medicare home health services.  This includes developing and disseminating in-depth knowledge of the “Medicare Benefit Policy Manual, Chapter 7 - Home Health Services”.  To ensure compliance and effectiveness, the ALS Association must teach and train, monitor, as well as produce and publish a quarterly ALS community survey.  Monitoring must ensure the consistency and quality of patient services amongst ALL ALS clinics/centers. Work closely with Medicare-certified home health agencies, and hold each agency accountable for providing ALS patients with the maximum benefit allowed in each of the six disciplines* of home health services, provided eligibility criteria has been met. Restrict interactions, relationships and referrals with home health agencies to only Medicare-certified home health agencies who offer all six disciplines* to patients. As a Gold Partner with the ALS Association, Bayada must become the standard and example of excellence in services for other Medicare-certified home health agencies to emulate.  All six disciplines* must be available through their organizations, and they must also be in compliance with Medicare guidelines and regulations. Implement, and publicly report on, online patient surveys.  Surveys should be simple and include a feedback option.  This will allow ongoing monitoring of how ALS clinics/centers, patient services and chapter support persons are performing.  Areas of interest to target in the survey should include: quality of information sharing of Medicare-certified home health services options, services accessibility, as well as Medicare-certified home health agencies performance in all six disciplines*.  Update the website to reflect current and relevant information, particularly the list of active ALS clinics/centers. * The six disciplines of home health services are: skilled nursing, home health aide, physical therapy, speech-language pathology, occupational therapy and medical social services. Additional information of note: ALS patients and their families are currently being drastically underserved by ALS clinics/centers, patient support services and ALS chapter-sponsored meetings.  Random, nationwide ALS patient experiences with ALS clinics/centers, patient services and chapter support for patients and families demonstrates the lack of forthcoming information and assistance in identifying options in home health services.   (Skilled home health services play a critical role in maintaining, slowing and preventing damage to major organs and body functions caused by immobility.)  There also is a lack of knowledge and understanding of Medicare home health services which can be utilized to meet patient needs during the course of disease progression.   Current miscommunication and conflict issues encountered include: Patients are either not told or are given discouraging information as to Medicare home health services options. Patients are told Medicare home health services are for short-term, rehabilitative purposes only. Patients are not provided information about Medicare home health services certification and re-certification details.  Home health agencies are invited to support meetings to market their private pay services. Support meetings, and invited home health agencies, fail to advise patients of Medicare home health services and how patients can benefit from them.   

Catherine Scott
11,673 supporters
Update posted 1 month ago

Petition to Bernie Sanders

Buffet Rule 2017 Congressional Reform Act

We The People are asking Congress to install the Buffet Rule with budget improvements to end the deficit.First, what could be changed: Pension of former Presidents .. . . .. . . . . ... . .  Reduce from more than $200,000 to 35% of last year of Presidential salary. Salary of House/Senate members .. . . . .. . . . $174,000 Reduce 5% Salary of Speaker of the House .. . . . .. ... . . . $223,500 Reduce 20% Salary of Majority / Minority Leaders . . ..  . . $193,400 Reduce 10% Fix Tax Code rather than reducing Medicare & Social Security CBO 2007 study: limiting malpractice awards lowers Medicare cost. Save Pentagon $125 billion in five ( 5 ) years recommended by DBB: #Reimagine Prison GAO: 4 Ways Government Can Save What should not be reduced: Median 2016 Salary of elementary school Teacher . . .. .$55,380 Average 2016 Salary of E3 deployed Soldier . . .. . . . . . . $24,984 not including cost of benefits Average 2016 Social Security of Retired Seniors .......... $16,092 Income of Medicaid recipient ............ ..  ........ ................  $1,400 to $4,000 We CAN kill the deficit, saving Social Security and Medicare for ourselves! Warren Buffett, 2011, in an interview with CNBC, offered one of the best quotes about the debt ceiling: "I could end the deficit in five minutes," he told CNBC. "You just pass a law that says that anytime there is a deficit of more than 3% of GDP, all sitting members of Congress are ineligible for re-election". The 26th Amendment ( granting the right to vote for 18 year-olds ) took only three months and eight days to be ratified! Why? Simple! The people demanded it. That was in 1971 - before computers, e-mail, cell phones, etc. Of the 27 amendments to the Constitution, seven ( 7 ) took one ( 1 ) year or less to become the law of the land - all because of public pressure.This is one idea that really should be Installed: Congressional Reform Act 2017 1. No Tenure. A Congressman / woman collects a salary while in office (Buffet Rule)  by election and receives no Federal pension when they're out of office unless they have worked for the Federal Government 20 years or more and that pension will be no more than 35% of their last year of salary. All other Federal Government non military employees must work 20 years or more to receive a Federal pension of no more then 35% of their last year of salary. 2. Government may not take or borrow from the Social Security Trust Fund for any reason. 3. Congress may not reduce SocSecurity/Medicare/Medicaid benefits. 4. Congressional pay will rise by the lower of CPI or 3%.5. Congress must equally abide by all laws they impose on the American people.Serving in Congress is an honor. The Founding Fathers envisioned citizen legislators, so ours should serve their term(s) as elected and then go home and go back to work. Congress hasn't proposed any way to kill the deficit while preserving Social Security and Medicare for us and for our children. It's time. FIX THE DEFICIT!    SAVE SOCIAL SECURITY and MEDICARE!  

Jean M Seim
2,261 supporters