Petition to Barbara Newhouse, All Regional Chapters
Tell ALS Association: Improve home care for ALS patients immediately
ALS patients desperately need the ALS Association to ACT IMMEDIATELY to address and correct home care issues. There is miscommunication, as well as a knowledge deficit, of the home health services options available through insurance programs, including Medicare. There is also a great disparity between the home care coverage allowed by Medicaid as compared to Medicare. As a result, we are being forced into unnecessary and extreme circumstances, including: premature placement in skilled nursing facilities; family deterioration and collapse as a product of the immense strain placed upon it; bankruptcy, and, early death. The taxpayers are then unjustly burdened with the resolution of debt, increased health care costs from unnecessary skilled nursing facilities placements and increased utilization of government programs. The National ALS Advocacy Day & Public Policy Conference 2016 will be held in Washington D.C. on May 8-10, 2016. Barbara Newhouse, President & CEO of the ALS Association, MUST MAKE HOME CARE FOR ALS PATIENTS THE #1 PRIORITY TO BE ADDRESSED. Issues which must be resolved in 2016 include: Lobby Medicare and Congress to modify guidelines and regulations for home health services, including, but not limited to: Increase home health services coverage and hours per week allowed to equaling or being greater than those provided for by Medicaid. Add as an independent, sole qualifying factor for home health services the loss of use and mobility of upper and/or lower extremities. Increase the duration of home health services re-certification requirements from 60 day intervals to 180 day intervals. Ensure the process to receive home health services benefits is simple, streamlined and guarantees consistent and dependable access to the maximum allowable hours per week in each of the six disciplines*. Improve the ALS Association’s quality and effectiveness in serving the ALS community’s home care issues by implementing the following: Provide prompt, in-person information about ALS, as well as guidance on how the ALS Association will help manage the complexities of navigating 'the systems'. Require staff of all ALS clinics/centers, patient services and chapter support persons to be competent in Medicare home health services. This includes developing and disseminating in-depth knowledge of the “Medicare Benefit Policy Manual, Chapter 7 - Home Health Services”. To ensure compliance and effectiveness, the ALS Association must teach and train, monitor, as well as produce and publish a quarterly ALS community survey. Monitoring must ensure the consistency and quality of patient services amongst ALL ALS clinics/centers. Work closely with Medicare-certified home health agencies, and hold each agency accountable for providing ALS patients with the maximum benefit allowed in each of the six disciplines* of home health services, provided eligibility criteria has been met. Restrict interactions, relationships and referrals with home health agencies to only Medicare-certified home health agencies who offer all six disciplines* to patients. As a Gold Partner with the ALS Association, Bayada must become the standard and example of excellence in services for other Medicare-certified home health agencies to emulate. All six disciplines* must be available through their organizations, and they must also be in compliance with Medicare guidelines and regulations. Implement, and publicly report on, online patient surveys. Surveys should be simple and include a feedback option. This will allow ongoing monitoring of how ALS clinics/centers, patient services and chapter support persons are performing. Areas of interest to target in the survey should include: quality of information sharing of Medicare-certified home health services options, services accessibility, as well as Medicare-certified home health agencies performance in all six disciplines*. Update the alsa.org website to reflect current and relevant information, particularly the list of active ALS clinics/centers. * The six disciplines of home health services are: skilled nursing, home health aide, physical therapy, speech-language pathology, occupational therapy and medical social services. Additional information of note: ALS patients and their families are currently being drastically underserved by ALS clinics/centers, patient support services and ALS chapter-sponsored meetings. Random, nationwide ALS patient experiences with ALS clinics/centers, patient services and chapter support for patients and families demonstrates the lack of forthcoming information and assistance in identifying options in home health services. (Skilled home health services play a critical role in maintaining, slowing and preventing damage to major organs and body functions caused by immobility.) There also is a lack of knowledge and understanding of Medicare home health services which can be utilized to meet patient needs during the course of disease progression. Current miscommunication and conflict issues encountered include: Patients are either not told or are given discouraging information as to Medicare home health services options. Patients are told Medicare home health services are for short-term, rehabilitative purposes only. Patients are not provided information about Medicare home health services certification and re-certification details. Home health agencies are invited to support meetings to market their private pay services. Support meetings, and invited home health agencies, fail to advise patients of Medicare home health services and how patients can benefit from them.
Petition to Donald Trump, Paul Ryan, Mitch McConnell
Tell Trump, Ryan and O’Connell, No Obamacare Repeal without a Plan
We are petitioning our new leaders to do right by the American people by not rushing to repeal the Affordable Care Act until they show the American people a socially responsible and fiscally feasible plan for affordable, accessible health care. We heard throughout the presidential campaign that the GOP can do better than Obamacare. We also heard President-elect Trump clearly state, in a tweet: “I was the first & only potential GOP candidate to state there will be no cuts to Social Security, Medicare & Medicaid.” In his opening remarks to the new Congress on Jan 3rd, Speaker Paul Ryan declared: “And so I want to say to the American people, ‘We hear you. We will do right by you. And we will deliver.’" With respect to healthcare “to deliver” means improved access (in addition to the 20 million people added with Obamacare), improved health benefits, affordable health benefits and lower overall costs. To Repeal Obamacare through a backdoor budget reconciliation bill without including the plan for improvement is NOT “doing right by the American people”, it is nothing more than the old politics we have seen... “politics in the swamp.” The American people voted for real actions that will affect their lives positively. The GOP has to “get out of the swamp” and send their promised plan for improved affordable, accessible health care, including the transition plan from Obamacare, to the House floor to be voted on. Repeal without a plan is NOT a solution.
Petition to Bernie Sanders
Buffet Rule 2017 Congressional Reform Act
We The People are asking Congress to install the Buffet Rule with budget improvements to end the deficit.First, what could be changed: Pension of former Presidents .. . . .. . . . . ... . . Reduce from more than $200,000 to 35% of last year of Presidential salary. Salary of House/Senate members .. . . . .. . . . $174,000 Reduce 5% Salary of Speaker of the House .. . . . .. ... . . . $223,500 Reduce 20% Salary of Majority / Minority Leaders . . .. . . $193,400 Reduce 10% Fix Tax Code rather than reducing Medicare & Social Security http://www.bankrate.com/finance/taxes/tax-loopholes-mainly-benefit-rich-1.aspx CBO 2007 study: limiting malpractice awards lowers Medicare cost. http://content.healthaffairs.org/content/26/3/841.abstract Save Pentagon $125 billion in five ( 5 ) years recommended by DBB: https://apps.washingtonpost.com/g/documents/investigations/the-defense-business-boards-2015-study-on-how-the-pentagon-could-save-125-billion/2236/ #Reimagine Prison https://www.vera.org/publications/the-price-of-prisons-what-incarceration-costs-taxpayers GAO: 4 Ways Government Can Save http://www.federaltimes.com/story/government/management/budget/2016/04/13/4-ways-gao-says-government-can-save-money/82993642/ What should not be reduced: Median 2016 Salary of elementary school Teacher . . .. .$55,380 Average 2016 Salary of E3 deployed Soldier . . .. . . . . . . $24,984 not including cost of benefits Average 2016 Social Security of Retired Seniors .......... $16,092 Income of Medicaid recipient ............ .. ........ ................ $1,400 to $4,000 We CAN kill the deficit, saving Social Security and Medicare for ourselves! Warren Buffett, 2011, in an interview with CNBC, offered one of the best quotes about the debt ceiling: "I could end the deficit in five minutes," he told CNBC. "You just pass a law that says that anytime there is a deficit of more than 3% of GDP, all sitting members of Congress are ineligible for re-election". The 26th Amendment ( granting the right to vote for 18 year-olds ) took only three months and eight days to be ratified! Why? Simple! The people demanded it. That was in 1971 - before computers, e-mail, cell phones, etc. Of the 27 amendments to the Constitution, seven ( 7 ) took one ( 1 ) year or less to become the law of the land - all because of public pressure.This is one idea that really should be Installed: Congressional Reform Act 2017 1. No Tenure. A Congressman / woman collects a salary while in office (Buffet Rule) by election and receives no Federal pension when they're out of office unless they have worked for the Federal Government 20 years or more and that pension will be no more than 35% of their last year of salary. All other Federal Government non military employees must work 20 years or more to receive a Federal pension of no more then 35% of their last year of salary. 2. Government may not take or borrow from the Social Security Trust Fund for any reason. 3. Congress may not reduce SocSecurity/Medicare/Medicaid benefits. 4. Congressional pay will rise by the lower of CPI or 3%.5. Congress must equally abide by all laws they impose on the American people.Serving in Congress is an honor. The Founding Fathers envisioned citizen legislators, so ours should serve their term(s) as elected and then go home and go back to work. Congress hasn't proposed any way to kill the deficit while preserving Social Security and Medicare for us and for our children. It's time. FIX THE DEFICIT! SAVE SOCIAL SECURITY and MEDICARE!
Petition to U.S. House of Representatives, U.S. Senate, Paul Ryan, Mitch McConnell
Congress' Retirement Must Be Like Everyone Else's
Congress continually wants to modify both Social Security and Medicare to cut costs but fail to address their own bloated pension and health benefits. (A single individual's pension, alone, can exceed $100,000 annually.) It is simply unacceptable that taxpayer money continues to support benefits for Congress and its employees at a time when the rest of the citizens are being asked to accept benefit cuts. This petition is simple: Congress, including both the House of Representatives, Senate, and all of their non-Civil Service employees must be converted from the existing, extravagant pension and retirement medical plans to have only Social Security and Medicare eligibility before any legislation that changes the benefit calculations or payments for those programs can be proposed.
Petition to Colleen Hanabusa, Mazie Hirono, David y. Ige
Medicare For All needs our help, so let's create a Health Caucus in the HI Dem Party
Aloha! We want Universal Single Payer Health Care, aka, Medicare For All, but, congress needs persuasion, Governor Ige needs persuasion, so, let's up our organizing game by making a Health Caucus in the Hawaii Democratic Party. If Democratic Parties in all states form a health caucus aimed at getting HB676, Medicare For All, passed, we might create the enthusiasm the democratic party needs to do something we all want, and then based on that success, retaking congress in 2018 could become a possibility. I'm not sure how appealing the democratic parties current theme is: "the ACA is as good as it gets, don't ask for what the rest of the world has, just oppose republicans, and keep voting for us." With a Health Caucus, we can better represent people who are suffering from the economic injustice of our current 'private insurance' model of Health Care. Universal Health Care will wipe away many of the hardships currently faced by people with disabilities, rare diseases, who have low income, and might be a senior citizen. It will significantly lower the cost of health care while improving the delivery of health care. Business will save enormously, and, Universal Health Care makes Workers Compensation insurance unnecessary. Think about that; no more workers compensation insurance to pay for. Employees, when injured, just go to any doctor they want, without needing to prove that the injury was work related. http://www.pnhp.org/ Our first meeting is this Wednesday, May 17, at the Hi Dem Party HQ on Oahu. Event info can be found here: https://www.facebook.com/events/1690230837945550/ The meeting will be live streamed and is available for phone conference: Here is the info for the conference/video conferencingTo join the conference via phone: Dial: (712) 451-0200Access Code: 938390 To participate in the video conference: Online Meeting Link: https://join.freeconfere ncecall.com/dph2017 Online Meeting ID: dph2017 Aloha! Dennis B Miller Email: email@example.com https://www.facebook.com/groups/healthcareforallhawaii/ www.healthcareforall-hawaii.com
Petition to Donald Trump, U.S. House of Representatives, U.S. Senate
Tell Congress to Let Medicare Negotiate Lower Drug Prices
Most Tuesdays, I sit in a treatment room to fight my never-ending battle with incurable cancer. I am grateful for the drugs working to hold my blood disease in check. Unfortunately, what isn’t being held in check is the drug price. My drugs are priced at $20,000 per treatment. With 22 treatments this year, that’s $440,000. Outrageous. Before this, I took a drug that costs a typical Medicare patient $11,500 out-of-pocket every year. These are Americans with a median income of $24,150 per year. My wife - a breast cancer survivor - and I founded Patients For Affordable Drugs to amplify the voices of Americans struggling under crushing drug prices and to make policymakers and elected officials see the heavy toll on real people. We don’t accept funding from organizations that profit from the development and distribution of prescription drugs. The craziest part about drug prices is that Congress can fix it. Right now, Medicare is forced to accept prices dictated by drug companies. Drug corporations and their lobbyists rigged the system to give themselves monopoly pricing power. They charge whatever they want for new drugs and often raise prices for old drugs with impunity. In fact, the law explicitly prohibits Medicare from negotiating the price of drugs. It’s time for change. As long as Medicare can’t bargain, patients will pay higher prices. Sign your name and tell the President and Congress that Medicare should negotiate lower drug prices for patients and taxpayers. Sincerely,David Mitchell, Patients For Affordable Drugs Co-Founder and President
Petition to Kevin Brady, U.S. House of Representatives, Mike Enzi
HELP PEOPLE WITH ORPHAN DISEASES GET THEIR LIFE-SAVING MEDICATIONS
I am one of about 400,000 people in the U.S. who suffer from relapsing multiple sclerosis, a disabling disease which affects the central nervous system. Other rare diseases include ALS (Lou Gehrig's Disease), muscular dystrophy and sarcoidosis. I lost my career to this disease, as I have become totally disabled. Treatment for these diseases is very costly. There is no cure for MS, but the disease can be managed. There are currently 12 FDA-recognized therapy medications, and even less for relapses. My daily therapy medication costs $6,500 per month, and the relapse medication costs $40,000 per treatment. This far exceeds my and my husband's total income, as my husband is totally disabled from a stroke. Obviously, very few people can afford these treatments, especially when they are fully disabled. There is help available; the drug companies which make these orphan drugs have programs that allow the patient to receive the drugs at low cost or for free. HOWEVER, PEOPLE WHO ARE ON MEDICARE CANNOT RECEIVE THIS HELP. A provision of the Social Security Act designed to prevent Medicare fraud also makes it a felony for a drug company to directly assist a patient financially if that patient has purchased a Medicare Part D prescription plan which covers these drugs. Many Part D plans do not even cover these drugs, but those which do leave the patient with expensive co-insurance of thousands of dollars in order to get these life-saving drugs which are simply unaffordable, especially for those who cannot work because of their disease. YOU CAN HELP! PLEASE LET CONGRESS KNOW THAT IT MUST AMEND THE SOCIAL SECURITY ACT TO PERMIT DRUG COMPANIES TO PROVIDE PATIENTS WITH RARE DISEASES WITH DIRECT FINANCIAL ASSISTANCE SO THAT THEY CAN GET THEIR LIFE-SAVING MEDICATION!!!
Petition to Donald Trump, Paul Ryan, Mitch McConnell, Charles Schumer, Orrin Hatch, Nancy Pelosi, Marco Rubio, Bill Nelson
Please Save the Medicare Program.
Please save the Medicare system Mr. Paul Ryan wants to turn the program into a premium support system. Which would give people a fixed amount of money to purchase private insurance. The Association of Community United, Inc. together with We the People of the United State of America ask you to join us in protecting Medicare and ensure Republicans do not succeed in efforts to change the Medicare program. President-Elect Donald Trump campaigned on promises not to cut Medicare and other public health programs. Medicare works wonders for millions of American families, providing affordable access to today's most advanced health care. Poll after poll invariably confirms its popularity. But will Medicare continue to work for us and for the next generations? That's the question that congress and the Trump administration need to be asking in the coming months. At The Association of Community United, Inc. we continue to believe passionately in this program, which has allowed our citizens and handicaps to age with dignity.