Petition to Barbara Newhouse, Executive Directors of every ALS Association chapter, Board of Directors of every ALS Association chapter, Board of Trustees of every ALS Association chapter
Create a National Home Health & Respite Care Grant Program for People Living with ALS
Background: A person diagnosed with Amyotrophic Lateral Sclerosis (ALS) will experience savagely relentless and permanent muscle loss of their voluntary muscles. While the disease may initially start out differently for those affected, the inevitable end result is the same for all who choose to live long enough – complete paralysis. What may begin with simply being physically clumsy or slurring words, quickly evolves into losing the ability to move any part of the body, breathe on one’s own, swallow and talk. Ultimately for all, 24/7 care is required, particularly true if the person elects to have a tracheostomy and/or be placed on mechanical ventilation or assistance. What does one do when faced with these daunting physical challenges and yet chooses to remain living at home? For those who are fortunate enough to qualify for Medicaid or Veteran’s benefits, or have a long-term care policy, they receive home health benefits and are able to typically get by. Others may have enough family and friends to provide some care, although they often quickly become emotionally, physically and financially exhausted, needing respite care relief. For the rest, it’s a devastating struggle of epic proportions. Some are forced into bankruptcy to qualify for Medicaid, while others choose to end their lives prematurely to prevent their families from being obliterated by the enormous financial hardship and burden. They die to save their family’s hard-earned pension, children’s college fund and property. It’s sickening what happens to these families, yet no one talks about it. It’s a monumental failure of our society. These families just don’t have the discretionary funds to pay for caregivers, which can run from $52,000 to $104,000 annually (50 hours per week x $20 per hour = $52,000 annually, assuming overtime doesn’t have to be considered - or - 100 hours per week x $20 per hour = $104,000 annually, assuming overtime doesn’t have to be considered). How many of us could actually pay this much out of our own pockets? Not many. Even upper middle-class citizens would have great difficulty coming up with such an amount, and there are numerous cases of those who can’t. Money should never, absolutely never, play any part in deciding whether to live or die. It’s morally incomprehensible and unequivocally wrong. The ALS Association (ALSA) can and must help. They are the preeminent non-profit ALS organization in the United States, with chapters located throughout to serve the entire ALS community. Their marketing and fundraising potential in the ALS marketplace is unrivaled, and they have publicly committed to patient care being in their core plan as a primary mission, as it rightfully should be. The very lives of the people the ALS Association was formed to serve hang in the balance. Until there is a treatment or cure for all people living with ALS, there is nothing more urgent than home health care. As of the last financial statement published for the ALS Association for fiscal year ending January 31, 2017, their total unrestricted assets were reported at $82,712,789, and total net assets were $104,468,596. Their financial position is strong. Below is a carefully considered, achievable plan to provide home health and respite care grants nationwide to all eligible applicants. While it is merely a drop in the bucket, it is a step in the right direction and will help so many. It is anticipated event participation will grow substantially with the implementation of this direct care program, thereby increasing funds raised. This could potentially offset the funds diverted for home health and respite care grants. National Home Health & Respite Care Program for the ALS Association to implement: Create a national home health and respite care grant program to be implemented in every chapter, permanent in nature, with an effective start date of no later than the end of the 3rd quarter of the ALSA fiscal year ending January 31, 2018. At the commencement of the program, funds from the specified sources will begin to be deposited and accrued. Evaluate grant applications and begin awarding grants, with an effective start date of the 2nd quarter of the ALSA fiscal year ending January 31, 2019. Ensure the program is consistent and fair for all ALS patients by implementing the exact same program in every ALSA chapter nationwide. Establish a separate budgetary account and unique account number in each chapter for deposits and withdrawals, specifically and solely for use for the home health and respite care grants. Funding will include a mandatory contribution from ALS Association National in the amount of $5 million in total per ALSA fiscal year quarter, with the first distribution occurring within one week of the initial launch of the program, which is scheduled to begin during the 3rd quarter of the ALSA fiscal year ending on January 31, 2018. Each subsequent quarterly deposit shall occur within one week of the start of each quarter of the ALSA fiscal year. The ALS Association National will determine what percentage to allocate to each chapter’s program by determining the number of living ALS patients each chapter serves, as compared with the total number of ALS patients served throughout all chapters in the United States. Distributions from ALS Association National shall be in full, not incremental installments. Additionally, a mandatory 7% allocation from all “Walk to Defeat ALS” and “Ride to Defeat ALS” gross proceeds will be allocated to each chapter’s respective home health and respite care program accounts, as well as private donations specifically earmarked for such. Should this 7% mandatory contribution have a detrimental impact on a particular chapter’s operations, ALS Association National will waive the equivalent of this amount in the upward contribution from the chapter to ALS Association National. Individuals or groups may also establish their own fundraising events for the specific purpose of funding this program, with the capacity to allocate the funds raised to any chapter nationwide. Create a donation portal on the alsa.org website under each chapter, as well as on each chapter’s individual websites, which directs donations to each respective account. Market the program through chapter and national press releases, descriptive website information, email, social media and private solicitations. Actively solicit donations from private parties and organizations. The responsibility for this task lies with each chapter’s leadership and fundraising arm, as well as ALS Association National’s leadership. ALS Association National will hire an independent oversight committee to evaluate the program’s performance and adherence to the guidelines and criteria established herein. The committee will also send a survey to grant awardees to determine their level of satisfaction and any areas for improvement. This shall be done at the close of each fiscal year, beginning with the close of the ALSA fiscal year ending January 31, 2019. A public report shall be created by the committee no later than the end of the 1st quarter of each ALSA fiscal year. Reevaluate appropriate grant funding amounts each year based on the intake of funding and the residual balance at the end of each ALSA fiscal year. Each chapter will issue payment directly to a certified home health agency or an individual of the grant awardee’s choosing for either custodial type services or skilled nursing services. No person awarded a grant shall pay anything out of their own pockets for subsequent reimbursement. Should a certified home health provider or individual of the awardee’s choosing be unavailable in the awardee’s service area, the chapter will be responsible for contracting with a licensed home health aide, LVN or RN directly to provide the services the awardee requires. In such cases, the chapter will pay these individuals directly. Once again, no awardee will pay anything out of their own pocket for subsequent reimbursement. All donations to these accounts shall be tax-deductible to the donor. At the end of each fiscal year, each individual chapter will create and publish a public report indicating the total amount of donations received, the quantity of respite care grants issued, the quantity of home health grants issued, the total value of disbursements for each and the residual balance. Home health and respite care grants will be awarded for up to $7,500, depending on demonstrated need by the applicant. Applications received while funds are depleted shall be given priority consideration once funds become available again. Those registered with their chapter will receive notification of the program’s existence from support staff and via email. No funding for ALSA staff or administrative overhead, or any other expenses or fees, can be withdrawn from the contributions to these accounts. The accounts are to be used for the express purpose of receiving donations and paying out grants for this program. ALS Association National Home Health & Respite Care Program criteria: The applicant for whom the application is intended must have an official diagnosis of ALS or PLS, be registered with the chapter for which they are applying and live within the service area of the chapter to which they applied. The applicant need not attend an ALS clinic to be eligible. There are no income criteria to be met. Qualifying applicants may receive only one grant award during each ALSA fiscal year, and the grant award may be used in any increment over a 12-month period from the award date. Additionally, applicants may reapply and be awarded a grant during each ALSA fiscal year, which begins February 1 and ends January 31 each year. Applicant must live at a private residence, not a skilled nursing facility or similar, and have a home health or respite care need. Applicant is also encouraged to attempt to secure additional benefits potentially available to them, including, but not limited to, Medicaid, Veteran’s benefits, Medicare home health services, private insurance, long-term care plans and hospice. This often is difficult and time-consuming in nature, and there are often obstacles. For example, a patient in most states cannot be placed on hospice if they have life-sustaining procedures or equipment, such as a tracheostomy or mechanical ventilation. It is, therefore, an assumption of good faith that the applicant will attempt to secure such benefits to ensure grant funds are awarded to those most in need.
Petition to Secretary of Health and Human Services, U.S. House of Representatives, U.S. Senate, President of the United States
Protest High Cancer Drug Prices so all Patients with Cancer have Access to Affordable Drugs to Save their Lives
A. Background• Cancer drug prices are increasing at an alarming rate (1), which is causing harm to patients. • Prices have increased more than tenfold (2) between 2000 (average price $5,000-$10,000 per year) and today (average price of new cancer drugs exceeds $120,000 per year). • The average price of cancer drugs is increasing by about $8,500 (3,4) a year. The average household income today for a family of four is $52,000, down 8% from a decade ago (5). • Even patients with insurance have out-of-pocket expenses of 20-25% (6). Since each American has a 1 of 3 lifetime chance of developing cancer, every one of us is at risk of being unable to pay for the prescription medicines that will control and cure our cancer.• This could force many families to decide whether to pay $25,000 a year for one cancer drug, about half the household income, or forgo the treatment to save the money for other necessities. • The high price of cancer drugs is causing harm (7) by shortening the lives of patients who cannot afford the treatment. This is an injustice (8) that creates differential treatment conditioned by financial status. B. PetitionWe request that our President, the Secretary of Health and Human Services (HHS), and all Members of the United States Congress, consider our petition and protest against high cancer drug prices by implementing the following strategies: 1) Allow Medicare to negotiate drug prices by removing all current legal restrictions. Allow Medicare to have the same right to negotiate drug prices as the U.S. Department of Veterans Affairs now enjoys; 2) Allow the importation of cancer drugs across U.S. borders, for personal use. Prices in Canada are sometimes close to fifty percent less than what we pay for the exact same cancer drugs in the United States; 3) Enact and sign into law, new federal legislation that prevents drug companies from delaying access to generic drugs (“Pay-for-Delay”) and extending the life of drug patents (Patent “Evergreening”); 4) Create a post FDA drug approval mechanism/organization/group/ concerned parties (that include the strong voice of patients and their advocates) to estimate/propose a fair price for the new treatment, based on its value to patients and health care; 5) Allow organizations such as the PCORI – the Patient-Centered Outcomes Research Institute (nonprofit, nongovernmental organization located in Washington, DC. created by the Patient Protection and Affordable Care Act) to include drug prices in their assessments of the value of drugs and treatments; 6) Request nonprofit organizations that represent cancer specialists and their patients - such as ASCO, ASH, ACS, LLS, and NCCN - develop guidelines to incorporate prices of drugs relative to treatment value. C. Conclusion• In the United States, all cancer patients must have immediate access to affordable prescription drugs in order to save their lives. • We believe the measures as outlined above, will allow market forces to work in favor of lower cancer drug prices. This will provide all cancer patients with equal access to the best treatments now available. • We believe the measures as outlined above, will be fair to both the cancer patient and to pharmaceutical companies. • This is Justice. References 1. Kantarjian H, Rajkumar SV. Why Are Cancer Drugs So Expensive in the United States, and What Are the Solutions? Mayo Clin Proc. In Press 2/2015. 2. Kantarjian H, Steensma D, Rius SJ, Elshaug A, Light D. High Cancer Drug Prices in the United States: Reasons and Proposed Solutions. J Oncol Pract. 2014; 10(4): 208-211. 3. Howard D, Bach P, Berndt E, Conti R. Pricing in the Market for Anticancer Drugs. Journal of Economic Perspectives. 2015; 29(1): 139-162. 4. Silverman E. High Prices for Cancer Drugs are set at Launch: “It’s Where the Action Is”. Wall Street Journal Pharmalot. January 21, 2015. Accessed online February 16, 2015. http://blogs.wsj.com/pharmalot/2015/01/21/high-prices-for-cancer-drugs-are-set-at-launch-its-where-the-action-is/ 5. Household Income in the United States. Wikipedia. Accessed online February 26, 2015: http://en.wikipedia.org/wiki/Household_income_in_the_United_States 6. Gould E. Increased Health Care Cost Sharing Works as Intended. It Burdens Patients Who Need Care the Most. Accessed online January 15, 2015: http://www.epi.org/publication/bp358-increased-health-care-cost-sharing-works/ 7. Kantarjian H. 119 Collaborator Experts in CML. The price of drugs for chronic myeloid (CML) is a reflection of the unsustainable prices of cancer drugs: from the perspective of a large group of CML experts. Blood. 2013; 12(22): 4439-4442. 8. Kantarjian H. Relevance of the Hippocratic Oath in the 21st Century. The ASCO Post. October 2014; 5(16). Image courtesy of amenic181 at FreeDigitalPhotos.net. This image is for illustration purposes only, and a simulation of cancer medications and their high cost.
Petition to Debra Houry MD Director, Chuck Rosenberg, Dr. Scott Gottlieb, Nora Volkow, M.D., Dr. Thomas Price, Seema Verma
Make Opioids Available to Chronic Pain Patients Again!
As federal and state regulators rush to curtail access to opioid mediations that have claimed so many lives, the rules they have enacted fall hard on chronic pain patients who are suffering tremendously. We legitimately need relief from pain, and opiates lessen the pain better than any other option, and we have tried them all. The CDC Guidelines and the DEA rule changes have stopped many physicians from prescribing opiates or if they still do prescribe, they have lowered the strength, leaving chronic pain patients unable to function. With worries of the DEA breathing down their necks, physicians now fear for their careers instead of caring for their patients’ wellbeing. Chronic pain patients need opiate medications to make our lives tolerable and worth living. Many of us have trouble walking or using our arms, so we need our medications to allow us to function. We want to live our lives independently with the ability to contribute to society as much as possible, but many of us are bedridden now. Our quality of life has been taken away. We want our productive lives back or else suicide will be our only remaining option. We want to live productively again! It’s not fair to punish those of us who legitimately need opiates due to a disease or injury, in an effort to curtail another group that chooses to abuse the medications we need to live our lives in a productive way. Allowing us to have our opiate medications again enables us to work, cook, do housework, exercise, sleep, and lead more productive lives. If only these lawmakers and physicians could actually feel the pain we must endure; they would definitely stop this overzealousness immediately. We must have the following enactments immediately: 1. Create new CDC Guidelines for treating chronic pain patients that allow opiates to lessen our pain and enable us to function in life. No more blindly following Opioid Guidelines incorrectly due to fear from the DEA! 2. More physicians who treat chronic pain patients with opiates and without fear for their careers by prescribing what we need to function, not reducing the strength of our medications, which is sidelining us. 3. The DEA needs to stop creating so many obstacles for chronic pain patients to obtain opiate medications, because these difficulties cause more stress and pain which makes the disease/injury even worse. 4. Awareness of the suffering of chronic pain patients by state and federal lawmakers and all aspects of the medical community by promoting the following information: Pain News Network http://www.painnewsnetwork.org/stories/2016/8/15/5-myths-about-the-cdc-opioid-guidelines Boston Globe https://www.bostonglobe.com/metro/2016/06/18/the-other-side-america-war-opioids/i9YYLR0bGWFdP9z1T1pwjI/story.html STAT News https://www.statnews.com/2016/07/15/chronic-pain-opioids-patients/ The Painful Truth by Lynn Webster, M.D. http://thepainfultruthbook.com/documentary/ Stop torturing those of us who live with chronic pain and help us to live our lives as comfortable as possible while being productive once again!
Petition to Austrian Society of Endocrinology and Metabolism, International Society of Endocrinology, Society for Endocrinology, American Thyroid Association, American Board of Internal Medicine, European Society of Endocrinology, American Medical Association- Council Of Medical Education, European Thyroid Association, Danish Endocrine Society, Dutch Endocrine Society, German Society for Endocrinology, Hungarian Society of Endocrinology & Metabolism, Italian Society for Endocrinology, General Medical Council, Svenska Endokrinologföreningen, The Canadian Society of Endocrinology and Metabolism, Asia & Oceanic Thyroid Association, Brazilian Endocrinology & Metabolism Society, Society for Behavioral Neuroendocrinology, Association of Program Directors in Endocrinology, Belgian Endocrine Society/ European Neuroendocrine Association, The Japanese Endocrine Society, The National Health and Medical Research Council of Australia, Puerto Rico: Sociedad Puertorriquena de Endocrinologia y Diabetologia, La Asociacion Mexicana de Tirodes, The Endocrine Society of India, Indian Thyroid Society, Polish Society of Thyroid, Polish Society of Endocrinology, Polish Society of Pediatric Endocrinology, Sociedad Chilena de Endocrinologia y Diabetes, The Endocrine Society of Australia, Peruvian Society of Endocrinology, The Endocrine Society of Australia, World Health Organization, Latin American Thyroid Society, The Royal College of Physicians, Chinese Society of Endocrinology, Philippine Society of Endocrinology & Metabolism, Philippine Medical Association
Endocrinologists: Patients with Thyroid Dysfunction Demand Better Care
Thyroid patients are increasingly aware that there is a deficiency in thyroid knowledge among endocrinologists. As specialists of the endocrine system, the title, endocrinologist, expresses expertise and richness in experience. Despite the promise of this title, we, the patients with thyroid dysfunction, are still suffering. The quality of our lives is diminished due to the difficulty we have finding doctors who are effective in thyroid management. The patient experience seems to demonstrate that there are large numbers of endocrinologists who are unable to diagnose thyroid disorder and/or have outdated knowledge of treatment methods. Please sign this petition in an effort to increase awareness of this problem and hopefully, effect change. Then, spread the word for others to join us: e-mail, tweet, post this petition to your support groups and Facebook profile. "Like" us on Facebook. "Follow" us on Twitter. We need a large support base to gain the credibility we deserve. Visit ThyroidChange for further resources and information. The petition calls for the following actions:1) Doctors must demonstrate proficiency in diagnosis of and treatments in thyroid disorders BEFORE receiving his/her board certification in Endocrinology. This could be a more comprehensive section of the existing board examination that includes the use of testing Free T3, Free T4, Reverse T3, thyroid antibodies along with TSH. Endocrinologists should also be proficient in the use of thyroid treatment which includes the use of natural dessicated thyroid medication, T3-only medication, T4-only medication, as well as combination therapies.2) Board-certified endocrinologists who treat thyroid disorder must keep up-to-date on current thyroid disorder treatments. Such treatments should be incorporated into the already established continued medical education (CME) programs. Continuing education in this area should be maintained to keep certification in Endocrinology. It is inexcusable that endocrinologists are treating thyroid patients and not reading current practices in that discipline such as the use of natural thyroid, T3-only medication and T3/T4 combination therapies.Many patients are speaking out about the inadequacy of T4-only synthetic drugs. Patients on natural thyroid typically express the improvement in the quality of their life. Improvements are also reported by patients using T3/T4 treatments or T3-only, as opposed to synthetic T4-only. However, T4 synthetic drugs are usually the only prescriptions considered. The dosage on the prescription is based on TSH level. Patients report that the TSH level does not necessarily correlate with symptoms. Thus, a patient may have a target TSH level, but still be under-treated. New tests, such as Free T3, Reverse T3 and Free T4, tell a revealing story; however, endocrinologists generally are not utilizing these tests. Instead, they test for Total T4 and Total T3, but these do not quantify what hormones are free and useable within the body. Patients with thyroid dysfunction complain of difficulty with mood management and lethargy. To remedy this, endocrinologists recommend anti-depressants or refer us to psychiatrists. This is a travesty and an oversight. Research demonstrates an improvement of depression using T3 medication. However, thyroid patients find it challenging to find endocrinologists willing to prescribe Cytomel or natural thyroid, which contain T3. The failure of an endocrinologist to correctly attribute the psychological and systemic symptoms of a thyroid patient to thyroid dysfunction perpetuates the patient's illness. This usually leads to the prescription of a pharmaceutical that may alleviate the reported symptoms, but ignores the root cause; the mismanaged thyroid.Thyroid dysfunction and ineffective treatment of thyroid dysfunction is also correlated with high cholesterol levels. When a patient has high cholesterol, endocrinologists prescribe dangerous statins when T3 supplementation can lower our cholesterol more safely.Endocrinologists may be skilled in diabetes and innovative in this sub-specialty, but appear to be lacking the knowledge and expertise in thyroid diagnoses and management. This is unacceptable. As a result, patients are forced to self-educate, self-treat or worse, receive inadequate treatment and suffer needlessly. Many patients feel failed by the medical community and are turning to online sources and sharing knowledge. One such online source is the method pioneered by Paul Robinson who has created and published a method of administering thyroid hormone, mainly T3, according to circadian rhythm or T3CM. Patients are finding relief with his T3CM method. Paul Robinson is not a doctor, rather, he is a patient who has suffered over twenty years from inadequate thyroid treatment.This petition is bringing the underground movement created by thyroid patients the mainstream attention that it deserves. This is an international patient revolution, and we demand change. It is inexcusable that patients continually encounter endocrinologists who perpetuate their illnesses by insufficient or outdated knowledge.Each signature on this petition represents a patient, or a person who loves a patient who has been misdiagnosed, mistreated or dismissed by their endocrinologist. There must be someone who takes notice and hears our voice. Read our stories. We are collectively asking our endocrinologists to hear our plea. This petition is our initiative to restore our faith in our doctors.We believe that with awareness will come change. Please help us end the unnecessary suffering of thyroid patients worldwide. Written by: Michelle T. Campeau Edited by: Denise Roguz
Petition to Guardian Services of Penn, Judge Platt
My mother, Phyllis A. Dickens had her civil rights violated and had her property stolen
My mother has died &; not the way she wanted to , at home surrounded by loved ones . I planned a memorial service and am in the process of raising funds for a very special headstone for the special bond we had. I can be found on FB. Below is how it came to all of THIS! UPDATE: My mother is STILL being kept at Sunrise Nursing Home in West Chester Pa . There phone number is 6103994474 against her will. In their own words she “is sharp as a tack” and are considering moving her into a more “INDEPENDENT LIVING UNIT” BUT STILL REFUSE TO LISTEN AND FOLLOW HER WISHES TO LIVE WITH HER FAMILY. Please contact Sunrise and Ashley Kelly to voice your concerns over my moms constitutional rights being violated and the state selling off assets to pay for care she doesn’t need! Dear Sir /MadamHello, my name is Shannon Saucier and I am contacting you to ask for your help on behalf of my 74 year old mother, Phyllis Britton. My mother is a resident of the state of Pennsylvania & has been since 1949. Parkesburg, Pennsylvania is where she & my father built a home, raised my brother, John , and myself . In October of 2017, she was pulled over in Salem , Virginia due to driving erratically from dangerously high blood sugar. She was returning home after the burial of my father, William Britton. The state troopers had her transported to Catawba Hospital once they concluded that she was not intoxicated with neither alcohol or drugs and she has been there ever since . Against her will. For over 3 months they have refused to release her regardless of the fact that she is not a threat to herself or others. She has broken no laws in ANY state , she has a support system here in her home state of Pennsylvania, and the financial means to have a visiting nurse if it’s necessary. I also live less than 15 minutes away and have offered to bring her home, to my house. All to no avail. When my mother was first admitted to Catawba , no one tried to contact myself or my brother , who are her legal next of kin and they have yet to ever call and notify us of anything. Catawba Psychiatric Hospital has also failed to contact any of my mothers long term physicians in Pennsylvania for her medical history. Although I was able to have one of her long term physicians to speak to her on the phone & he is of the opinion that she should be released. Now , on January 5,2018 my mother was transferred to Roanoke Hospital from Catawba Psychiatric Hospital after being found by an aide unresponsive from dangerously low blood sugar. So low in fact , that the machine couldn’t give a read out . Again, Catawba Psychiatric Hospital failed to notify neither my brother or myself about the decline in my mothers health while in their care. Then behind my back I found out that the PA Chester County Department of Aging was urging the VIRGINIA Hospital not to go ahead with their discharge plan. All the while telling me , my mother and my aunt that she would be going home they were working to put her in a facility behind her back with the help of an estranged brother they got named temporary guardian. They have her now in a nursing home here in PA with a room as small as a bathroom with no tv and no window. I’ve been told that if she wants a tv that I would have to purchase it and pay the monthly cable bill- this is a place that is not only getting her social security and pensions that total around $4000/month plus owns assets in the hundreds of thousands. Now that I have had him removed as guardian, an independent guardian has been named and the PA Chester County Department of Aging is not supposed to have any further involvement, I’m asking to have my mothers and my own wish granted that she return home to us to be cared for and no longer have a judge, Social Worker or guardian obstruct her happiness in her golden years. And I can assure you her room will have windows, a tv and whatever else her heart desires instead of warehousing her like a criminal oops I think even criminals get TVs now
Petition to Aetna Coventry Medicare, Aetna
Approve transfer of James Gillespie to a hospital that can help him recover.
I need help! (NO DONATION- only signatures & prayers please!) My father went into the hospital for a gallstone, 78 days ago. UPMC Hamot dropped him and broke his back after surgery. He is now paralyzed with a tracheotomy/feeding tube/colostemy bag/catheter. He has a bed sore the size of a volleyball on his back that is going to need surgical intervention. They just informed us that after 6 weeks of doing all of the above, that they recommended to heal him, there is nothing they can do, because of his acuity! AFTER THEIR EGREGIOUS CARE DID THIS TO HIM!!! We can transfer him to UPMC in Pitt but they aren't going to do anything either. Just let him lay there We need him out of there immediately!! It is my belief that 98% of their staff is amazing, but 2 % are killers.I am going to release a story a day of their negligence, and trust me I have them! We have never left Dad alone, someone always stays to advocate, but what good does it do when they give you attitude and drop him right in front of you, after you begged 4 120lbs aides to not lift your post op- 400lb 6'5' father!! It's called GRAVITY. (Especially, if you do not use the proper procedure by inflating the bed or the Hover mat!).We want to take my father to another hospital- either Select Specialty Hospital or Cleveland Clinic but my parent's insurance #AetnaCoventryMedicare (#AetnaCoventryHealthcare) will not approve the move saying he is fine at UPMC or can go to a 1 star Nursing home. WHY won't they approve it when the facility's we want to go to accept their insurance?When we can go somewhere that a top Neurosurgeon can see him and see if we in fact CAN do something? Dad hasn't even had an MRI of his spine because he can't fit in the non open air MRI machine at his current hospital!! Even if there was no surgery Select Specialty Hospital (Erie, PA) at least can give him some rehab so we can see if he can gain any use of his legs and maybe prepare him for his new life. Why? Because one of the ppl who works @AETNA CoventryMedicare told us on the sly, "The insurance doesn't "want to pay another "entry fee" to an acute facility!" Please sign this petition that hopefully can get the insurance moving.I need your help saving my father's life! Thank you. (Again, sign & share, say a prayer- but do not DONATE- the donation does not go to us, but to the website)
Petition to The Department for Health and Social Care, Michelle Obama, Scott Morrison, António Guterres, Justin Trudeau, Emmanuel Macron, Pedro Sánchez, United States Department of Health and Human Services, United Nations, Ban Ki-moon (Secretary-General of the United Nations), Council of the European Union, SameYou
Let's Help Emilia Clarke & SameYou Save Lives
According to the Lancet Neurology Commission, 50 million people worldwide suffer from brain injury, annually. If you sign this petition and spread this message through all platforms, however, we can work towards making life better for those who could never fully recover, by promoting and benefiting SameYou, a charity that works to increase funding and access to neuro-rehabilitation worldwide. Maybe you are someone who has been through this, who is going through this, who will go through this, who knows/loves someone who is going through this, or maybe not. Either way, I beg you to please help this cause, and visit sameyou.org. Here you will be able to donate directly to the cause, learn more about both the charity and issue, and make a huge difference. Please help me, help them, help everyone, I beg you. Thank you.
Petition to MSUM President Anne Blackhurst, Vice-President Brenda Ameson-Hill
Continuation of Medical and Pharmacy Services of Hendrix Center
The MSUM administration decided to discontinue the medical and pharmacy services at the Hendrix Clinic and Counseling Center at the MSUM campus beginning July 1, 2019 and primarily support mental health counseling services. Many students, especially those without vehicles and international students, rely on Hendrix to receive immediate medical assistance and its pharmacy for easily accessible medication. Students DESERVE easily accessible medication. If you attend MSUM, this affects YOU! Even if you do not use Hendrix, many of your peers and friends do. Changes of this nature set an extremely dangerous precedent for the discontinuation of vital programs at YOUR university. I urge you to consider signing this petition. Changes like this do not support the Dragon values we hold ourselves to. While accommodations like taxi vouchers and the usage of MAT Bus to access medication were discussed by administration, I believe these to be rather impractical solutions. I question the practicality of ill students in pain scheduling time to catch a bus to go get simple medication as well as returning using public transportation. This inconvenience coupled with Minnesotan winter weather is extremely impractical to expect students to suffer through to access the medication they need to get better. Additionally, how are students supposed to catch up with their homework, classwork and other assignments, along with recovering from their illnesses and other obligations, when they will be wasting so much time trying to procure their medication? Being unable to access medication for students within walking distance from the MSUM campus is a scary change to undergo. MSUM follows a policy where most freshmen have to live on-campus. How can such a policy be ethically enforced when students living on-campus do not have access to medication they need? A justification for discontinuing important medical/laboratory and pharmacy services at Hendrix was cited to be under-utilization. While this may be true in absolute statistical terms, this justification does not account for the nature of healthcare services. I, for example, have been fortunate to have never needed to utilize these services at Hendrix my first three years at MSUM. However, in a situation where I may need immediate medical attention, I never once felt as unsafe as I do today, because I knew that Hendrix and its services were present at MSUM, where I spend majority of my day. In essence, it was never about visiting Hendrix regularly, but knowing that the services were readily available anytime I may need them, within a few minutes’ walk. And I am confident that this is the same for majority of my peers. I am starting this petition in hope that the MSUM administration truly sees how many students value the Hendrix Clinic and Counseling Center and wish to preserve its services, for themselves and for future generations of Dragons. Want more information? Find my open letter to MSUM Administration at: https://drive.google.com/file/d/1A_SLI_o5DGhgzO99lgKbie9jU53S-33q/view?usp=sharing