52 petitions

Update posted 2 weeks ago

Petition to Florida State House, Florida State Senate

End the wait for Floridians with Developmental Disabilities

For more information, visit and our Facebook page What is the problem? There are approximately 21,000 Floridians with developmental disabilities (DD) on a waitlist to receive services from Florida's iBudget DD Medicaid Waiver. The Florida's iBudget provides homes and community-based services that support daily activities of living, personal, medical, and dental care. Many have been waiting in excess of 5 years. Although there has been recent additional funding to address this on-going issue, additional funding is urgently needed to make sustained progress to further reduce the iBudget Waiver waitlist. Who does this impact? The vast majority of people with DD live with their family. Without iBudget support, caring for individuals with DD can be very expensive and time consuming. Caregivers may have less time available to be employed with they are providing such assistance, and reducing their ability to save for future financial needs. Studies have found that two-thirds of Florida's caregivers earn less than $15,000 per year (Andresen et al., 2008), yet estimated direct costs for caring for their loved one with DD is $8,000 per year, a figure which rises to over $25,000 when including potential loss from their reduced earnings/labor force participation and reduced future income (Stabile & Allin, 2012). Under the American's with Disabilities Act (ADA), individuals with DD may be entitled to receive home and community-based services in the least restrictive environment and most integrated settings. Keeping these individuals on the waitlist for years may not only violate their right to access these services (Diament, 2016), but also hinder their capacity, growth, and motivation to pursue a fulfilling life. How does Florida compare to other states? Of 50 US states and the District of Columbia, Florida ranks 50th in spending for intellectual and developmental disability services. Florida's fiscal effort for DD services has decreased 10% since 2007 (Braddock et al., 2017). Recommended solution Increased funding to substantively reduce the iBudget waitlist will result in Floridians with DD and their families having appropriate supports to prosper and fully enjoy inclusive community life. We are petitioning for: 1) A sustained financial commitment to effectively reduce the waitlist by 10% each year and to address this ongoing backlog. 2) Reduce the age requirement for category 4 caregivers from 70 to 65.   Sources: 1. Andresen, E., Hall, A., DeFries E., & Ali, A. (2008). Agency for Persons with Disabilities (APD) waiver program wait list survey. Retrieved from Florida Office on Disability and Health, Stabile, M., & Allin, S. (2012). The economic costs of childhood disability. The Future of Children, 22, 65-96.3. Braddock, D., Hemp, R., Rizzolo, M.C., Tanis, E.S., Wu, J., & Haffer, L. (2017). The State of the States in Intellectual and Developmental Disabilities: 2017. Washington, DC: American Association on Intellectual and Developmental Disabilities.4. Diament, M. (2016, August 30). Waiting list placements may violate ADA. Disability Scoop. Retrieved from

Florida's DD Waitlist Campaign
2,569 supporters
Update posted 2 weeks ago

Petition to Centers for Medicare an Medicaid Services, Ohio State Senate, Ohio State House, Ohio Governor, Ohio Medicaid, OACBDD , Ohio Department of Developmental Disabilities, Disability Rights Ohio

Ohio to Address Shortage of Home Care Providers

There is a shortage of nurses and personal care attendants across the state of Ohio. In fact there is a nationwide shortage. In Ohio it is more complex then any other state.  Our state has unfair auditing practices that drive our providers out. We continually have problems with providers being paid on a consistent basis as well.  In addition our state GPS tracks people with disabilities and their providers through the use of Electronic Visit Verification. The Federal Law doesn't require GPS tracking. Ohio has done this to cut down on fraud and in the process violated the Civil Rights of both consumers and providers. Thus making more people leave. Ohio has also pushed 80% of the state into managed care. This also has created many access barriers for Ohioans statewide. If a person on managed care needs a home care provider they are far and few in between. For some of the managed care plans it can take an approved or established Medicaid Provider up to six months to get a home care aide or nurse approved on managed care.  Consumers are one step away from ending up in nursing homes. The state just doesn't give a  dam. We as consumers demand something be done. Our providers are put through so much with PCG and unfair auditing practices. Then to wait months and months to be credentialed by privatized Medicaid  plans is creating access barriers to care.  It bad enough managed care itself limits the ability to find providers in medical world as well. We need more providers The problems go beyond Medicaid. Those who get services from the County DODD boards also have a shortage in providers. One mother from Akron called over 500 providers since May and still doesn't have an aide to work for her son. This is wrong!  We need our SSA's and Case managers calling helping these families find providers. It is ridiculous that people have gone 60, 90, or even six months without the care they need for their children or adults with disabilities.  I call on the Governor to declare a shortage of homecare workers, I call on Ohio Medicaid to do the same and the Ohio Board of Developmental Disabilities. I call on CMS to declare a shortage. We have folks who are going to end up in nursing homes and institutions if something is not done to help situation. I call on the head of CMS to examine situation in Ohio because no one is listening. I call on my State Representatives and my State Senators please for the sake of our children and adults with disabilities who want to be our community.  I also call on Disability Rights Ohio. Consumers have called you with problematic situations yet get no response. Please step up before our people end up in nursing homes and institutions.  We want up to date provider directories, fair auditing practices, better training for SSA's and Case managers for helping consumers find providers. In addition we want EVV requirements spelled out because chaos and confusion is causing providers to leave. We want DODD boards to work together to find people providers if not declare a shortages to help these families. We want Ohio Department of Medicaid to fix the process for established Medicaid Providers when it comes to being providers under managed care. Lastly we want you to declare a shortage of providers and help find way to get more providers on board. We want solutions not more laws that push out providers. Our loves matter just as much as yours.  #OurHomesNotNursingHomes   

Alicia Hopkins
862 supporters
Update posted 2 months ago

Petition to Jay Adams, Gale Adcock, John Ager, Kelly M. Alexander, Kelly M. Alexander, Jr., Dean Arp, John Autry, Cynthia Ball, Chaz Beasley, Mary Belk, John R. Bell, IV, Larry M. Bell, MaryAnn Black, Hugh Blackwell, John M. Blust, James L. Boles, Jr., Beverly G. Boswell, John R. Bradford, III, William Brawley, William D. Brisson, Cecil Brockman, Mark Brody, Dana Bumgardner, Justin P. Burr, Deb Butler, Becky Carney, Mike Clampitt, George G. Cleveland, Jeffrey L. (Jeff) Collins, Debra Conrad, Kevin Corbin, Carla D. Cunningham, Ted Davis, Jr., Jimmy Dixon, Josh Dobson, Nelson Dollar, Andy Dulin, Beverly M. Earle, Jeffrey Elmore, John Faircloth, Jean Farmer-Butterfield, Susan C. Fisher, Elmer Floyd, Carl Ford, John A. Fraley, Terry E. Garrison, Rosa U. Gill, Ken Goodman, Charles Graham, George Graham, Holly Grange, Destin Hall, Duane Hall, Kyle Hall, Edward Hanes, Jr., Jon Hardister, Pricey Harrison, Kelly E. Hastings, Cody Henson, Yvonne Lewis Holley, D. Craig Horn, Julia C. Howard, Howard J. Hunter, III, Pat B. Hurley, Frank Iler, Verla Insko, Darren G. Jackson, Joe John, Linda P. Johnson, Bert Jones, Brenden H. Jones, Jonathan C. Jordan, Donny Lambeth, David R. Lewis, Marvin W. Lucas, Chris Malone, Susan Martin, Pat McElraft, Chuck McGrady, Allen McNeill, Graig R. Meyer, Henry M. Michaux, Jr., Rodney W. Moore, Tim Moore, Marcia Morey, Bob Muller, Gregory F. Murphy, MD, Garland E. Pierce, Larry G. Pittman, Larry W. Potts, Michele D. Presnell, Amos L. Quick, III, Robert T. Reives, II, Bobbie Richardson, William O. Richardson, Dennis Riddell, David Rogers, Stephen M. Ross, Jason Saine, John Sauls, Mitchell S. Setzer, Phil Shepard, Michael Speciale, Bob Steinburg, Sarah Stevens, Scott Stone, Larry C. Strickland, John Szoka, Evelyn Terry, John A. Torbett, Brian Turner, Rena W. Turner, Harry Warren, Sam Watford, Donna McDowell White, Linda Hunt Williams, Shelly Willingham, Michael H. Wray, Larry Yarborough, Lee Zachary, John M. Alexander, Jr., Deanna Ballard, Chad Barefoot, Dan Barrett, Tamara Barringer, Philip E. (Phil) Berger, Dan Bishop, Dan Blue, Danny Earl Britt, Jr., Harry Brown, Jay J. Chaudhuri, Ben Clark, Bill Cook, Warren Daniel, DON DAVIS, Jim Davis, Cathy Dunn, Chuck Edwards, Milton F. Fitch, Jr., Joel D. M. Ford, Valerie P. Foushee, Rick Gunn, Kathy Harrington, Ralph Hise, Rick Horner, Brent Jackson, Jeff Jackson, Joyce Krawiec, Michael V. Lee, Paul A. Lowe, Jr., Tom McInnis, Floyd B. McKissick, Jr., Wesley Meredith, Paul R. Newton, Louis Pate, Ronald J. Rabin, Bill Rabon, Shirley B. Randleman, Gladys A. Robinson, Norman W. Sanderson, Erica D. Smith, Jeff Tarte, Jerry W. Tillman, Tommy Tucker, Terry Van Duyn, Joyce Waddell, Trudy Wade, Andy Wells, Mike Woodard, Roy Asberry Cooper III, Richard Hill, Melissa Campbell

It's time to raise the limits for Medicaid's CAP-DA Program! Not institutionalize my GF!!!

RE: Community Alternatives Program for Disabled Adults (CAP-DA) funded by Medicaid through the Home and Community-Based Service Waiver, 42 CFR § 440.180, authorized under section1915(c) of the Social Security Act. Just so everyone is on the same page, the above NC general statute is the one we're addressing and the one that needs to change, so please share this with everyone you know. My significant other, Melissa, is 47 years old and has been a quadriplegic since a tragic car accident when she was 19. She lives independently only because she has in home care givers through the Community Alternatives Program for Disabled Adults (CAP-DA). The CAP-DA waiver assists her by providing a nursing aid a few hours/day to help with basic activities of daily living as well as providing the funds needed for additional medical supplies. She also has a strong family support system nearby that helps to provide any additional necessary attention. Without the Medicaid/CAP-DA waiver she would be forced to live in a nursing facility and not in her own home. This would pose a much greater cost to the state and her health both physically and mentally. The CAP waiver is a different category then the disabled only Medicaid. The CAP Program is designed to reduce costs by providing participants with care in their home instead of a Nursing Home. The FPL change would only apply to a limited amount of people since the program has a limited amount of openings available. It would only change for those that the state of NC has already qualified for the waiver! This would reduce cost in the end because the deductible is forcing nursing home placement which is very expensive. Each state sets that program qualifier with Medicaid for that state. We are asking the North Carolina legislators for an increase of the income percentage of the Federal Poverty Level(FPL) allowed for disabled adults in the Community Alternative Program for Disabled Adults(CAP-DA) and/or allow a payment in the amount of excess income by disabled adults to continue to qualify for Medicaid and the CAP-DA waiver. Forcing well-adjusted disabled individuals that have been and wish to continue living on their own to be institutionalized, separating them from their families, from their friends, and their from their communities which is both cruel and counter productive from a financial standpoint. If someone is even $1 over the income limit that has been set by North Carolina, they must pay a deductible each MONTH in order to keep their Medicaid/CAP-DA benefits which are extremely difficult to gain access to anyway. In other words, all income over $262/month must be paid out as Melissa's deductible wiping out most of her total income that she has to use to pay her other expenses such as rent, electricity, food, etc. No one can live on $262 a month. This deductible has not been revised or even revisited since the 1980's. The current income limits for the CAP-DA program for North Carolina recipients needs to be changed. It is 100% of the Federal Poverty Level (FPL) which sounds sufficient at first glance, but this number is well below the percentages set by other comparable states. It is also, outdated due to the fact that it was set in the 1980’s. This is requesting a legislative determination to increase these income limits to a more appropriate level. In 42 other states, this limit has already been changed and is much higher like in Tennessee where the income eligibility is set at 300% of the FPL. Melissa’s only income is the social security(SS) benefits extended to her from her father’s eligibility since she was disabled at such a young age. She is unable to work nor get a raise or promotion. Unfortunately, her father passed away recently. His death did allow her to get the largest raise she can ever hope to get. However, it bumped her SS benefit/income up to a few dollars over NC Medicaid's CAP-DA income limit of $1012/mo. The relief of getting an increase in income to help pay for her food, rent, utilities, etc. was soon doused when she found out she could lose her CAP-DA benefits even though her disability needs have not changed. Melissa has been a CAP-DA beneficiary for eight years and has not been hospitalized nor had any major health problems outside of her disability while living in the community. Statistics show that living in a nursing home away from family and friends often leads to depression and an overall decline in physical and mental health which inevitably will cost more for NC Medicaid and, ultimately for the NC taxpayers. I fully appreciate the need to identify qualifying benefit income maximums. My comments are for the impact on the unemployable disabled who have already proven to be eligible for CAP-DA when earning any income from working is not possible. The impact to Federal and NC state funding that is needed for the Medicaid program wouldn't increase at all. In fact, the program is designed to save Medicaid money by keeping the participants out of very costly nursing facilities and in their own homes. The impact to the participants, however, would be astronomical because I don't know anyone who would choose to live in an institution over living at home. On behalf of Melissa and people like Melissa who strive to normalize life in the face of a disability most can't even imagine having or living with. Please consider my/our request to sign this petition for the people who often get overlooked and are well under represented. Thank you so much for taking the time to read this and thank you even more if you can help us make a much needed change to this.

Ricky Hill
444 supporters
Update posted 2 months ago

Petition to Don Davis

Vehicles for the Vulnerable

Like many families with disabled family members, transportation is a struggle with my son Jayden and me.  A wheelchair accessible van would alleviate our issues, but the cost is too high for a working mother with student loan debt and other expenses that come with daily life. Medicaid can help, but their policies make it nearly impossible to get what families need. They help with accessible vehicles in two ways. They will either pay to add modifications to an unmodified vehicle, or they will help with the purchase of a previously modified vehicle by paying the cost of the conversion toward the total price of the vehicle. Recently, I requested an already modified vehicle, and was approved but only for $7,175.00. A conversion costs upwards of $20,000. I learned that for unmodified vehicles, Medicaid pays for nearly 20 conversion items, but will only cover four items on a previously modified vehicle. Many conversion items on previously modified vehicles are necessary for even the most basic conversion. For example, any vehicle with a ramp needs a lowered floor, but that item isn't covered by Medicaid for previously modified vehicles, though it IS covered on unmodified vehicles. If Medicaid would cover the same conversion items on a previously modified vehicle as they do on unmodified vehicles, I would be able to purchase the vehicle and finance the remaining cost. I don't want to buy an unmodified vehicle because there is no guarantee modifications would be approved, and the conversion process itself takes eight to ten weeks. I have already been battling Medicaid for over three months. Please sign this petition to require Medicaid to cover the same conversion items on a previously modified vehicle that they cover on a modified vehicle. My child should not have to be confined to our home over a policy which can be revised to work in favor of our disabled children, rather than against them. ********* While I'm fighting this policy, I still need adequate transportation for my son. Therefore, I am posting the link to a GoFundMe Campaign to raise the money to purchase a vehicle in the meantime. Any money raised will be applied to the cost of the vehicle, whether Medicaid helps or not. Thanks again!********

Rebecca Fontes
99,124 supporters