Topic

justice

57 petitions

Update posted 2 weeks ago

Petition to Biogen Idec

Demand Biogen to reduce the price of Spinraza [Life-saving treatment for SMA] Worldwide

My name is Kiana. I am 24 years old, a post-graduate filmmaker, amateur rapper and nominated as one of the #30under30 inspirational women in Scotland 2017.    I also have a condition called SMA, [Spinal Muscular Atrophy] that causes me to have weak muscles – I explain SMA in my video here. For the first time in the history of SMA, we have an FDA approved treatment. One that has proven to be life-saving and life-changing for those who have had access to it.  This treatment is Spinraza. It costs $750 000 in the first year and $350 000 in subsequent years, for the entirety of the patient's life, or until another treatment is found.  While a handful of countries have approved Spinraza, many countries are still to process the approval, some have rejected the drug and hundreds of thousands of people do not have access to this treatment. The price is most certainly a substantial reason for this.  We are on the verge of future breakthrough treatments for SMA, but currently Spinraza is the only hope for many people. Spinraza is being called the most expensive treatment in the century - perhaps in history. While we appreciate the company's efforts in making this treatment and harvesting the technology, we will not accept barriers to this reaching the people who need it most.  Biogen are making a profit from this drug already. Meanwhile, children and adults with SMA are dying, and losing motor function every minute. Time is a luxury we don’t have. Medical knowledge must serve the people and we are entering an era where we have the technology to save and improve lives. But these innovative technologies are entering the market with a heavy price tag.  I know we have a solution and we have a choice.  Demand that Biogen makes each dose of Spinraza $10 000. While this is still not cheap it will allow greater access and better use of government resources. Our lives, happiness and the right to move our arms and legs are priceless. If you want to understand the importance of this drug for those with my condition, read my blog.  Sign, share, and fight with me. #Spinraza4all

Kiana Kalantar-Hormozi
13,113 supporters
Started 1 month ago

Petition to Kathleen Wynne, Justin Trudeau, Ontario Ministry of Education, Mitzie Hunter

End Discriminatory Funding for Catholic/Public/Independent Schools in Ontario

The current school funding system in Ontario provides full funding for the public system and one private group and no funding for other independent schools. These other schools meet the same provincial requirements (and in many cases exceed them), and reduce the number of students in the public system. Catholics have the option of paying taxes and educating their children in the system of their choice at no additional cost. There is no reason to give that option to one group, at the exclusion of others. The result of this is that many families (including mine), pay their taxes and pay additionally for their children to attend an independent school. Many of these families, and the schools they attend, are not wealthy at all. This petition is not asking for funding for elite, private schools for the wealthy - simply to end an unjust funding practice. Many of these families take on debt and make significant financial sacrifices for their children to get the education they are seeking, while schools may also operate on a very tight budget. Many independent schools in other provinces receive some provincial funding.* However, Ontario has instead opted to give full funding to one group, at the expense of all others. The UN declared this is discriminatory in 1999,** and it needs to change.   Please equalize funding for all schools effective immediately, along with any possible back pay to make up for the many years of imbalance. As long as the Catholics receive any funding, all other schools that meet provincial requirements must receive the same (up to a certain, reasonable cap, based on public school spending/capita and other relevant criterion). If Catholic school funding is adjusted, the other schools must match accordingly. If no other private schools receive funding, then all funding should be removed from the Catholic board. Why is this important? * http://www.ourkids.net/school/provincial-funding-for-private-schools * https://www.fraserinstitute.org/article/private-schools-are-not-subsidized ** http://www.cbc.ca/news/canada/un-says-funding-of-catholic-schools-discriminatory-1.175008

Stephanie Janzen-Martin
22 supporters