Topic

healthcare reform

53 petitions

Started 3 weeks ago

Petition to Healthcare Industry

Petition for Data Autonomy to create Fair-Trade in Healthcare.

Data is the world's most valuable resource and there is no exception to any industry, especially healthcare.  Health insurance company's buy your medical data and other data about you, to determine your premium costs. They go through third party's to obtain information about you that's often outdated and incorrect, which results in high insurance costs.  Through Data Autonomy, not only can we generate people roughly $1,000 residual income per year. We can also get them negotiating with insurance to lower their premium costs, performing more transparent risk modeling which actually gives room to identify and mitigate risk. Where as now through third party data gathering, there is no room for health interventions and the only means of interaction is to raise costs.  This won't effect just insurance costs, but also the costs of drugs and other aspects of healthcare. Imagine if only company's who made reasonably priced medicines, were trusted with your data to build new medicines.  Data Autonomy, you owning your data makes it 100 times more valuable to research as they can ask questions, outsource for clinical trials, and follow up through your data with you. Data Autonomy will dramatically increase the development of medical science. Data Autonomy through company's like Unity Health Score is how we will fix healthcare. Sign the petition today and stand with us for making a better healthcare industry! 

Austin Jones
340 supporters
Update posted 1 month ago

Petition to Matt Hancock MP, Damian Hinds MP, David Gauke MP, Theresa May MP, Tulip Siddiq, MP Norman Lamb, Dawn Butler

Add PDA to ICD-11 urgently so the school refusal can be dealt with appropriately

My four-year-old son has been off nursery since the beginning of May due to nursery refusal and very irregular attendance ( once or twice a fortnight ) has been achieved with me being present at all times since the beginning of October with the use of strategies from NAS and PDA Society. Underpinning his avoidance is high anxiety about conforming to everyday demands and of not being in control of the situation, even the mention of nursery would send his anxiety levels off the scale.  My son's EHC plan is not fit for its purpose as it does not accurately reflect his level of need, and this is a reflection of me not being listened to and my son's needs not being understood. My son was supposed to start a mainstream school this Sep that was named on his EHC plan against my wishes and after it was confirmed that the school could not meet his needs. The LA has originally rejected my request for deferment saying that it was not in my son's best interest not to start the school this September although there was no plan in place on how to resume his attendance at nursery or the importance of a transition to school if his attendance at the nursery could be resumed. At the TAC meeting, I have requested the network to watch the video footage of difficulties dropping my son at nursery, and his nursery refusal which was also witnessed by the Speech and Language Therapist at nursery at the end of April. As the CDT - Child Development Team refused to provide information about my son's nursery refusal or failure of ASD interventions applied to LA despite all my efforts to communicate this EHC Coordinator made an assumption that my son is simply refusing to attend because he is 'bored'. When I set on a quest to obtain a differential diagnosis for PDA also known as Pathological Demand Avoidance ( autism sub-type ) for my son as 'typical' ASD interventions were having more of an adverse effect on him, my son already has a diagnosis of ASD since Mar last year I had no idea about the challenges that were to follow. I was puzzled by my son's autism as children with ASD I saw at special needs nurseries were nothing like him. I had a light bulb moment when I came across the PDA profile in children with autism. As a result, I have attended the PDA conference in Reading and parental program for PDA in Norwich. The CDT disagreed that my son may have PDA and refused to engage further, instead, I was asked to go back to my son's GP and pursue the PDA assessment myself. After a year of waiting and chasing my son's GP, a request for an assessment has finally been approved via IFR, however, I was told that my son can only be assessed at South London and Maudsley which has no specific policy for PDA, therefore cannot assess or diagnose PDA. While in the middle of a complaint to NHS about their services and after I have submitted letters about my son's nursery refusal and failure of ASD interventions applied by the Early Years Coordinator, the clinicians made a referral to social care. The professionals meeting was held without my knowledge and with the select few where other professionals involved in my son's case were excluded from attending, three out of four of these professionals were involved in the referral to social care in the middle of my complaint about their services. Based on this "professionals meeting" my son's case has been escalated to the Child Protection Conference as my son is apparently at risk of serious harm ( "We are concerned that the child's needs are not being met appropriately due to the mother not acknowledging the diagnosis given. Mother's unwillingness to move away from her views regarding PDA despite professional advice. The mother may begin to find S behaviour unmanageable if the appropriate parenting strategies are not put into place. S does not attend nursery regularly and therefore is missing out on key learning and developmental opportunities." )  The joint plan on how to resume my son's attendance was put in place with my son's nursery back in September based on recommendations from PDA Society and National Autistic Society and revised when needed where my son's response to a variety of situations would be the main indicator. The most recent revision also includes recommendations from the latest SALT report. I am still unsure whether school environment can work for my very inquisitive son loves to spend time outdoors or on the public transport and who thrives on novelty and variety. I have no choice but to finance a private assessment for PDA taking place in February and the Tribunal Hearing has been provisionally scheduled for end-March. After joining several ASD, PDA and school refusal groups on Facebook I was horrified to see that school refusal is an ASD issue and not just a PDA issue however 70% of PDA children are out of school (the highest number in comparison to other ASD profiles). Not only parents struggle to obtain ASD diagnosis or EHC plans for their children, but they are also pressurised into imposing the attendance on their autistic children ( diagnosed or undiagnosed ) which negatively impacts their mental health.  The 2018 survey conducted by the PDA Society highlights that the school environment does not work for many children with PDA. If this is the case then both children and parents should be supported appropriately and not ignored, dismissed, penalised, reported to social care or sent to attend parenting courses that do not work for children with PDA as PDA is not a parenting issue and most importantly left without support because they've reached the ultimate avoidance - nursery/ school refusal. After consulting with IPSEA - Independent Parental Special Education Advice I understand that education does not necessarily need to take place in the school setting as incorrectly advised by LA if the child's high anxiety and demand avoidant behaviour is preventing them from attending the setting as LA has a duty to provide Education Otherwise than at School under s61 Children and Families Act 2014 for such children. Thank you Dagmar I would like to thank Sidings Early Years ( my son's nursery), PDA Society, National Autistic Society and IPSEA for all their support and advice and everyone who signed this petition, much appreciated. Essential Reading: Fears vulnerable children with rare form of autism are being left behind by NHShttp://www.itv.com/news/calendar/2018-05-15/fears-vulnerable-children-with-rare-form-of-autism-are-being-left-behind-by-nhs/ Being MisunderstoodExperiences of the Pathological Demand Avoidance Profile of ASDhttps://www.pdasociety.org.uk/resources/research-summary/2018-survey Teachers Guide to Understanding PDAhttps://www.pdasociety.org.uk/education/teachers-guide Education: Stories of PDAhttps://www.pdasociety.org.uk/resources/pda-case-studies/case-studieseducation New global diagnostic manual mirrors U.S. autism criteria ( NO MENTION OF PDA )https://www.spectrumnews.org/news/new-global-diagnostic-manual-mirrors-u-s-autism-criteria/ The £70 million council costs of fighting – and losing – against parents at the SEND Tribunal https://specialneedsjungle.com/70million-council-costs-parents-send-tribunal/ Image Courtesy of PDA Bookletfile:///C:/Users/HP/Desktop/PDA_Booklet.pdf

D H
1,226 supporters
Started 4 months ago

Petition to Our LGBTQIA+ Colleagues and Friends in the Field of Sexual Health and Recovery

To Our LGBTQIA+ Colleagues and Friends in the Field of Sexual Health and Recovery...

After an upsetting shaming incident on a health care professional listserv occurred, a group of concerned colleagues/LGBTQIA+ allies were inspired to create this "Open Letter of Support to our LGBTQIA+ colleagues and friends in the field of sexual health and recovery." Many contributed to this letter, and we hope many more will join us by signing this online petition, in solidarity! Dear LGBTQIA+ Colleagues and Friends,   We are writing to unequivocally celebrate LGBTQIA+ presence — especially in the field of sexual health and recovery! Regardless of our own sexual and gender orientations, identities, expressions and issues, we stand with you and behind you, grateful for your unique and profound contributions to those we all seek to help – individuals, couples, groups and communities struggling to find sovereign, flourishing, safe expressions of sexuality.   While none of us can ever truly speak for another’s experience, we truly recognize the challenges all peoples face from active and covert bias, homophobia, transphobia, sexism, vilification and outright hateful bashing rampant in our culture (and sadly, in our professional field). We are united in our belief that these human rights violations are wrong and must stop. On behalf of fellow trauma, sexuality and addiction treatment colleagues, or even if we, ourselves, have lashed out at you in ignorance or hatred, and for any past participation we may have had in such behaviors or thoughts; we apologize for this harm to you. You did not deserve it; you have never deserved it. We are sad and outraged that this happens to you. We all can, and must do better.   We honor your courage, your strength, and your resilient efforts to continue to provide scholarship, research, education, and service in our field. We are grateful that you have found ways to survive and thrive despite the oppression that yet exists – you are an inspiration!   We believe that any and all efforts to condemn, spiritually abuse (for example by calling natural sexual and gender identities “desires” or “alternative lifestyles,” and urges a “sin” or restricting "spiritually acceptable" sexuality as between a cis woman and cis man only, or citing that it’s okay to be LGBTQIA+ as long as you don’t “act on it”) or otherwise belittle, control, or manipulate your “non-heteronormative” sexual orientation – or gender identification-- is unethical and demonstrative of professional incompetence. This includes what has euphemistically been called “Reparative Therapy” (thankfully now illegal in some progressive U.S. states), and all other clinical attempts to change your sexual or gender expression.   May you feel safe with us and others in our field! We know that despite our intent to be supportive, we still have biases and may act or fail to act in ways that leave you feeling unsafe, unseen, hurt, or unsupported. We recognize the exhaustion all marginalized groups feel in educating non-marginalized groups, and take responsibility to continue to learn about our LGBTQIA+ culture, and grow in our ability to act with hospitality and unity. We also welcome, if you would be willing, direct feedback about how:   a) We have contributed to your feeling unsafe, unseen, hurt or unsupported, and  b) How we might best remedy this.   For those of you treating clients suffering from sexual addiction, out-of-control sexual behaviors, and/or sexual compulsion, we particularly express our gratitude. We recognize the polarization in this branch of our field, and we are gaining more understanding about why. Special thank you to leaders in our field who have contributed to this growing understanding.    Psychology has a dark history of pathologizing LGBTQIA+ sexual and gender expression with harmful labels. Religious justification for oppression of all sexuality and gender fluidity, and particularly LGBTQIA+ people, remains rampant. And, at its beginning, a segment of the sex addiction movement did contain an uncorrected bias of conservatism that did, though mostly now improved, cause harm and understandable aversion. May we continue to find our way back together, so we can join to help those suffering.   Today we have learned to be more careful, honest about our limits in identifying with (if we do not consider ourselves members of) the LGBTQIA+ community, and to turn to those of us and/or you who have the lived experience as experts. We celebrate your participation on all levels to continue to grow our field to better serve those in need.   Thank you again for being you and doing what you do!   In solidarity and gratitude,   Staci Sprout, LICSW, CSAT (she/her/hers)   Sonja Rudie, MA, LMHC, CSAT-S (she/her/hers)   Kathy Pearson, MA, LCPC, CSAT, CMAT (she/her/hers)   Michael Johnson, PhD (he/him/his)   Linda C Paoli LCSW CSAT (she/her/hers)   Pamela Kohll, MS, LMHC, CSAT-S, CCPS, CHFP (she/her/hers)   Amy Bloom, LICSW, CSAT, CMAT   Alexandra Katehakis, Ph.D, LMFT (She/her/hers)   Mavis Humes Baird, CADC (PA) CASAC (NY), CMAT-S, CSAT-S, ICADC, NCC-II (She her hers; ne/nir/nirs curious)   Jackie Richter, MS, LPC, CSAC   Enod Gray, LCSW, CSAT, CPLC (she/her/hers)   Renee Katz, PhD, CSAT   Elizabeth Ogren, M.Ed., LPC, CSAT (she/her/hers)   Robert Weiss, LICSW, CSAT-S   Judy Kelly, LCSW, CSAT, CDWF (she/her/hers)   Brad Gilbert MFT, CSAT (he/him/his)   D.J. Burr, MA, LMHC, S-PSB   Mari A. Lee, LMFT, CSAT-S (she/her/hers)   Geoff Goodman, Ph.D., CST, CSAT-S (he/him/his)   Elizabeth Edge LCSW, CSAT   Kelly McDaniel LPC, NCC, CSAT   Sara Harowitz, Psy.D.   Kelly L. Ross, MA, LMHC   Eric Besterling MA, LPC, LCAS, CSAT, CCS-I (he/him/his)   Tracy Zemansky Ph.D., CSAT (she/her/hers)   Debra Kaplan MA, MBA, LPC, CMAT, CSAT-S (she/her/hers)   Debi Hartwell MA, CCC, CSAT-S (she/her/hers)   Kevin Medican MS, LPC, CSAT, CMAT (he/him/his)   William Freuerborn DSW, LCSW, CSAT-S (he/him/his)   Mario Dartayet-Rodriguez MS, LCSW, CSAT (he/him/his)   Kate Parkinson MFT, CSAT, CHFP (she/her/hers)   Jackie Pack LCSW, CSAT-S, CMAT (she/her/hers)   Sandra S Maddock, LCSW, CSAT (she/her/hers)    Hope Ray, LPC, CSAT, CHFP (she/her/hers)   Piper Grant, PsyD, MPH, CSAT (she/her/hers)   Penny A. Norford, PhD, LPC, CSAT-S (she/her/hers)   Vicki Tidwell Palmer, LCSW, CSAT, SEP    Darrin Ford, MA, LMFT, CSAT, MBAT-S (he/him/his)   Gregory Pospisil, LMFT, CSAT (he/him/his)   Deborah Schiller LPC, CSAT-S, CMAT-S (she/her/hers)   Amelia Huelskamp PhD she/her/hers   Diane Hovey PhD, CSAT, LMFT   Aline Zoldbrod PhD   Ralph Earle PhD   Marcus Earle PhD   Sylvia Stroebel BS   Ronit Argainan   Peggy Albano LMHC, C–SAT, CST, GC-C   Patricia A Smith LPC, LMFT   Michael Bohan MD   Roger Northway MS, CSAT   Cara Weed LCSW CSAT   Cheryl Brown LADAC –C   Alexis Polles MD   Darrell Mead PhD   Patsy Evans PhD, LMFT–C, DOM   Wayne Kunkel BS, MBA   Tim Kiernon, MMFT, LMFT   Mike Tanis, D.Min, LMFT, NCC   Eric Griffin-Shelley PhD   Jim Prager MSW   JC Montgomery MD, CSAT–S   Beth G Wilson   Aliki Pishev LICSW, CSAT-C   Dan Drake LMFT, LPCC, CCPS–S, CSAT-S   Gina Kaye M. Ed.   Janice Caudill PhD   Jennifer Cole, RN, CPC   Amy Groh LPC   Steve Doulin PhD, CRS   Erica Sarr PsyD, CRS   Anna Layton    We hope many others will add their signature to ours! :-)  

Staci Sprout
292 supporters