Petition to Donald J. Trump, Donald J. Trump, U.S. House of Representatives, U.S. Senate, President Donald Trump
Legalize Lyme Disease
Lyme disease has reached epidemic proportions. It is the fastest growing infectious bacterial disease in America. Generally contracted through a tick bite, new evidence shows it is also contractable via mosquito, spider, or fly bite , from mother to child in the womb , or potentially through unprotected sex . The CDC admits that it does not know how many people have Lyme disease. Estimates vary between 300,000 and 1.5 Million new cases diagnosed per year . These figures do not include tens of thousands of undiagnosed or misdiagnosed cases. 25% of all Lyme cases are children. When Lyme disease is not treated early it can be debilitating, even fatal. The spiral-shaped bacteria (Borrelia) bore their way through every tissue, organ, or bone, causing damage wherever they go. The bacteria knowingly avoid treatment areas in the body and by changing their shape, mimic non-threatening cells. They create intelligent biofilms to protect themselves from antibiotics and their host's natural immune response. Studies now show that 1 in 5 cases may go on to become chronic due to Borrelia "persisters" . Unfortunately, the CDC-approved test available for early detection fails approximately 50% of the time . And due to abysmal funding for research, effective treatments are experimental and often long-lasting. The CDC's illegal preferential treatment of out-of-date and inaccurate Infectious Disease Society of America (IDSA) Lyme Treatment Guidelines  support a government narrative that chronic Lyme does not exist. Thusly, insurance companies are not required to cover treatment costs and patients are left to pay for long-lasting treatment out of pocket. Lyme Literate Medical Doctors (LLMDs) who practice life-saving medicine for Lyme patients are forced to operate outside of the insurance industry, for risk of being shut down. Such little information and training is available to physicians across the country, patients are left to suffer for years before they even receive a diagnosis . By then, many have been misdiagnosed with any of the 300+ diseases that Lyme mimics . They have lost their jobs and are on disability. Some (including children and teens) are heavily affected by the neuropsychological effects of the disease and succumb to suicide . Others have died simply due to ignorance of doctors . This cannot continue. The CDC and IDSA have failed to control Lyme disease. As sufferers, care-takers, friends, family, and co-workers of those who are suffering, we urgently request from the President and all members of Congress: 1. Legislation Expanding The Definition Of Lyme Disease To Cover Chronic Lyme And Co-infections 2. Legislation Protecting Doctors Who Treat Chronic Lyme And Co-infections From Insurance Industry-driven Investigation And Shut-down 3. Heavily Increased Funding For Research Into Chronic Lyme Disease And Co-infections 4. Greatly Improved Testing With High Accuracy Rates (As Seen With Ebola And Other Infectious Diseases) 5. Education Of Doctors And The Public Regarding Symptoms And All Treatment Options -- This petition was originally featured on the We The People petition site. Thank you for signing and sharing with friends, coworkers, spiritual leaders, family members, loved ones, and strangers. It is time to Legalize Lyme disease, including chronic stage and co-infections! -- Sign to add your voice to establish proper legislation and funding of this global epidemic. Important resources: ILADS.org lymedisease.org lymestats.org lymediseasechallenge.org -- Sources:  New England Journal of Medicine: http://www.nejm.org/doi/full/10.1056/NEJM199006143222415Journal of Molecular Medicine: http://link.springer.com/article/10.1007/BF01711648Journal of Clinical Microbiology: http://jcm.asm.org/content/26/8/1482.full.pdfPubMed: http://www.ncbi.nlm.nih.gov/pubmed/4075471Folia Parasitologica: http://folia.paru.cas.cz/pdfs/fol/1998/01/11.pdf  Annals of Internal Medicine: http://annals.org/article.aspx?articleid=699780 PubMed: http://www.ncbi.nlm.nih.gov/pubmed/7648832  Journal of Investigative Medicine: http://www.lymedisease.org/lyme-sexual-transmission-2/Conclusions Raphael B. Stricker, MD On Sexual transmission of Lyme disease: https://twitter.com/NorVect/status/604992062421921792  Dr. Richard Horowitz discusses new case estimates with Congressional Candidate Zephyr Teachout: https://youtu.be/rTIeyKuo8JY  Scientific American: http://www.scientificamerican.com/article/lyme-disease-may-linger-for-1-in-5-because-of-persisters/  Journal of Infectious Diseases, Wisconsin State Laboratory of Hygiene/College of American Pathologists Proficiency Testing Program: http://www.lymedisease.org/lymepolicywonk-two-tiered-lab-testing-for-lyme-disease-no-better-than-a-coin-toss-time-for-change-2/  Advocates Call on CDC to Remove Expired Lyme Guidelines from all Publications https://www.webwire.com/ViewPressRel.asp?aId=202124  Study of over 6,000 Lyme patients: http://www.lymedisease.org/wp-content/uploads/2015/04/lymedisease.org-patient-survey-20151.pdf  Can Lyme Disease Be Chronic? Dr. Richard Horowitz: http://www.foxnews.com/health/2015/05/06/lyme-disease-debate-can-condition-be-chronic/  Psychology Today: https://www.psychologytoday.com/blog/emerging-diseases/200903/infection-can-change-your-personality-theres-plenty-proof?collection=126213  "Doctors Pushed ALS Diagnosis, Ignored Lyme", Valley Breeze: http://www.valleybreeze.com/2014-12-17/cumberland-lincoln-area/geraghtys-doctors-pushed-als-diagnosis-ignored-lyme#.Vub33JMrJE5  Tulane University study finds Lyme bacteria can survive antibiotic treatment months after infection https://news.tulane.edu/pr/study-finds-lyme-bacteria-can-survive-after-antibiotic-treatment-months-after-infection
Petition to Barbara Newhouse, Executive Directors of every ALS Association chapter, Board of Directors of every ALS Association chapter, Board of Trustees of every ALS Association chapter
Create a National Home Health & Respite Care Grant Program for People Living with ALS
Background: A person diagnosed with Amyotrophic Lateral Sclerosis (ALS) will experience savagely relentless and permanent muscle loss of their voluntary muscles. While the disease may initially start out differently for those affected, the inevitable end result is the same for all who choose to live long enough – complete paralysis. What may begin with simply being physically clumsy or slurring words, quickly evolves into losing the ability to move any part of the body, breathe on one’s own, swallow and talk. Ultimately for all, 24/7 care is required, particularly true if the person elects to have a tracheostomy and/or be placed on mechanical ventilation or assistance. What does one do when faced with these daunting physical challenges and yet chooses to remain living at home? For those who are fortunate enough to qualify for Medicaid or Veteran’s benefits, or have a long-term care policy, they receive home health benefits and are able to typically get by. Others may have enough family and friends to provide some care, although they often quickly become emotionally, physically and financially exhausted, needing respite care relief. For the rest, it’s a devastating struggle of epic proportions. Some are forced into bankruptcy to qualify for Medicaid, while others choose to end their lives prematurely to prevent their families from being obliterated by the enormous financial hardship and burden. They die to save their family’s hard-earned pension, children’s college fund and property. It’s sickening what happens to these families, yet no one talks about it. It’s a monumental failure of our society. These families just don’t have the discretionary funds to pay for caregivers, which can run from $52,000 to $104,000 annually (50 hours per week x $20 per hour = $52,000 annually, assuming overtime doesn’t have to be considered - or - 100 hours per week x $20 per hour = $104,000 annually, assuming overtime doesn’t have to be considered). How many of us could actually pay this much out of our own pockets? Not many. Even upper middle-class citizens would have great difficulty coming up with such an amount, and there are numerous cases of those who can’t. Money should never, absolutely never, play any part in deciding whether to live or die. It’s morally incomprehensible and unequivocally wrong. The ALS Association (ALSA) can and must help. They are the preeminent non-profit ALS organization in the United States, with chapters located throughout to serve the entire ALS community. Their marketing and fundraising potential in the ALS marketplace is unrivaled, and they have publicly committed to patient care being in their core plan as a primary mission, as it rightfully should be. The very lives of the people the ALS Association was formed to serve hang in the balance. Until there is a treatment or cure for all people living with ALS, there is nothing more urgent than home health care. As of the last financial statement published for the ALS Association for fiscal year ending January 31, 2017, their total unrestricted assets were reported at $82,712,789, and total net assets were $104,468,596. Their financial position is strong. Below is a carefully considered, achievable plan to provide home health and respite care grants nationwide to all eligible applicants. While it is merely a drop in the bucket, it is a step in the right direction and will help so many. It is anticipated event participation will grow substantially with the implementation of this direct care program, thereby increasing funds raised. This could potentially offset the funds diverted for home health and respite care grants. National Home Health & Respite Care Program for the ALS Association to implement: Create a national home health and respite care grant program to be implemented in every chapter, permanent in nature, with an effective start date of no later than the end of the 3rd quarter of the ALSA fiscal year ending January 31, 2018. At the commencement of the program, funds from the specified sources will begin to be deposited and accrued. Evaluate grant applications and begin awarding grants, with an effective start date of the 2nd quarter of the ALSA fiscal year ending January 31, 2019. Ensure the program is consistent and fair for all ALS patients by implementing the exact same program in every ALSA chapter nationwide. Establish a separate budgetary account and unique account number in each chapter for deposits and withdrawals, specifically and solely for use for the home health and respite care grants. Funding will include a mandatory contribution from ALS Association National in the amount of $5 million in total per ALSA fiscal year quarter, with the first distribution occurring within one week of the initial launch of the program, which is scheduled to begin during the 3rd quarter of the ALSA fiscal year ending on January 31, 2018. Each subsequent quarterly deposit shall occur within one week of the start of each quarter of the ALSA fiscal year. The ALS Association National will determine what percentage to allocate to each chapter’s program by determining the number of living ALS patients each chapter serves, as compared with the total number of ALS patients served throughout all chapters in the United States. Distributions from ALS Association National shall be in full, not incremental installments. Additionally, a mandatory 7% allocation from all “Walk to Defeat ALS” and “Ride to Defeat ALS” gross proceeds will be allocated to each chapter’s respective home health and respite care program accounts, as well as private donations specifically earmarked for such. Should this 7% mandatory contribution have a detrimental impact on a particular chapter’s operations, ALS Association National will waive the equivalent of this amount in the upward contribution from the chapter to ALS Association National. Individuals or groups may also establish their own fundraising events for the specific purpose of funding this program, with the capacity to allocate the funds raised to any chapter nationwide. Create a donation portal on the alsa.org website under each chapter, as well as on each chapter’s individual websites, which directs donations to each respective account. Market the program through chapter and national press releases, descriptive website information, email, social media and private solicitations. Actively solicit donations from private parties and organizations. The responsibility for this task lies with each chapter’s leadership and fundraising arm, as well as ALS Association National’s leadership. ALS Association National will hire an independent oversight committee to evaluate the program’s performance and adherence to the guidelines and criteria established herein. The committee will also send a survey to grant awardees to determine their level of satisfaction and any areas for improvement. This shall be done at the close of each fiscal year, beginning with the close of the ALSA fiscal year ending January 31, 2019. A public report shall be created by the committee no later than the end of the 1st quarter of each ALSA fiscal year. Reevaluate appropriate grant funding amounts each year based on the intake of funding and the residual balance at the end of each ALSA fiscal year. Each chapter will issue payment directly to a certified home health agency or an individual of the grant awardee’s choosing for either custodial type services or skilled nursing services. No person awarded a grant shall pay anything out of their own pockets for subsequent reimbursement. Should a certified home health provider or individual of the awardee’s choosing be unavailable in the awardee’s service area, the chapter will be responsible for contracting with a licensed home health aide, LVN or RN directly to provide the services the awardee requires. In such cases, the chapter will pay these individuals directly. Once again, no awardee will pay anything out of their own pocket for subsequent reimbursement. All donations to these accounts shall be tax-deductible to the donor. At the end of each fiscal year, each individual chapter will create and publish a public report indicating the total amount of donations received, the quantity of respite care grants issued, the quantity of home health grants issued, the total value of disbursements for each and the residual balance. Home health and respite care grants will be awarded for up to $7,500, depending on demonstrated need by the applicant. Applications received while funds are depleted shall be given priority consideration once funds become available again. Those registered with their chapter will receive notification of the program’s existence from support staff and via email. No funding for ALSA staff or administrative overhead, or any other expenses or fees, can be withdrawn from the contributions to these accounts. The accounts are to be used for the express purpose of receiving donations and paying out grants for this program. ALS Association National Home Health & Respite Care Program criteria: The applicant for whom the application is intended must have an official diagnosis of ALS or PLS, be registered with the chapter for which they are applying and live within the service area of the chapter to which they applied. The applicant need not attend an ALS clinic to be eligible. There are no income criteria to be met. Qualifying applicants may receive only one grant award during each ALSA fiscal year, and the grant award may be used in any increment over a 12-month period from the award date. Additionally, applicants may reapply and be awarded a grant during each ALSA fiscal year, which begins February 1 and ends January 31 each year. Applicant must live at a private residence, not a skilled nursing facility or similar, and have a home health or respite care need. Applicant is also encouraged to attempt to secure additional benefits potentially available to them, including, but not limited to, Medicaid, Veteran’s benefits, Medicare home health services, private insurance, long-term care plans and hospice. This often is difficult and time-consuming in nature, and there are often obstacles. For example, a patient in most states cannot be placed on hospice if they have life-sustaining procedures or equipment, such as a tracheostomy or mechanical ventilation. It is, therefore, an assumption of good faith that the applicant will attempt to secure such benefits to ensure grant funds are awarded to those most in need.
Petition to United States Congress
Demand the right to health care without discrimination
Nurses and the communities we serve demand the right to health care without discrimination. This is a central part of our nurse practice acts, state-by-state, and we call on the U.S. Congress to pass legislation to prevent the Health and Human Services (HHS) from implementing policies designed to give healthcare workers the unprofessional right to discriminate. The newly created "Conscience and Religious Freedom Division" of HHS is inviting health care workers to deny care for certain patients.* For example, a nurse might cite a religious objection to caring for a transgender person or refuse to include the spouse of a gay or lesbian person while planning care. This is wrong because: Healthcare workers’ unions and management all agree that all patients deserve quality care free from discrimination Millions of healthcare workers of every religion and no religion work together every day without incident Religious and professional codes alike forbid discrimination Hate has no place in our healthcare system We demand that Congress direct the Office of Civil Rights of HHS to disband the Conscience and Religious Freedom Division and instead work to eliminate bias in healthcare. As Dr. Martin Luther King Jr. said: “Of all the forms of inequality, injustice in health care is the most shocking and inhumane.”
Petition to John Cornyn, Ted Cruz, John Cornyn
Dexcom expenses covered by Texas Medicaid for all Type 1 Diabetic children.
My name is Krista Jameson. My daughter Brianna is 13 years old. She was diagnosed with Type 1 Diabetes at 11 years old on October 2, 2015. That day is the day her life changed. She was and still is just a child that wants to feel like a normal child. But sadly she does not feel normal at all. Along with many other Texas children suffer from Type 1 Diabetes. For those that do not understand what it means to be a Type 1 Diabetic (T1D) I will explain. Type 1 Diabetes, also known as Juvinille Diabetes is not the same as Type 2 Diabetes. There is absolutely nothing anyone can do in order to avoid becoming a T1D. It is not brought on by poor diet or lack of physical exercise. It just happens, out of no where, with no warning. Your pancreas simply put, stops producing insulin. My daughter Brianna as well as thousands of other Texas children, have to portion food as if they were on a diet in order to account for every single carb they eat or drink. They can eat anything they want as long as they count carbs and give insulin injections. These children must check their blood glucose levels multiple times a day by poking their fingertip with a needle to bring blood to the surface. Insert a drop of blood onto a test strip that is put into a blood glucose meter which tells them their blood glucose level. The average range is different for each child. For my daughter her target range is 70-130. If she is lower she feels extremely shaky and is on the verge of passing out if she does not eat or drink an item with fast acting carbs such as fruit snacks, syrup or juice. Many nights I wake up to her attempting to scream for me as she is so weak and shaky that she can not even get out of bed to reach her meter let alone get up to get the carbs she needs. I pray every night that if she goes low she is able to feel it before it goes too low and is able to wake up and wake me up so I can correct it. If she goes too high she can end up with ketones in her urine which is in simple form, sugar overflowing in her body spilling into her urine. She feels sick, skin looks pale, slurs her words, continuously vomits and can end up in a diabetic coma which we have battled to keep her from twice in less than a few months, staying in ICU at the children's hospital on constant insulin drips fighting to remove the ketones from her urine. This causes children to miss school and parents to miss a lot of work ultimately costing parents their job, such as has been the case with myself. With every meter reading over 130 she must take one unit of insulin for every 30 which she is over. In addition to this she also has to count her carbs and add one unit for every eight carbs she eats. She takes this insulin in the form of a shot. So every single meal for the rest of her life until a cure is found she will receive 2 needles in her body, one in her finger and one either in her stomach, legs, arms, hips or bottom several times a day. On minimum she needs to check when she wakes up, at breakfast, lunch, before athletics class, after athletics class, when she arrives home from school and eats a snack, at dinner, at bed time, as well as I must check her every single night 1-2 times a night between 1- 3am possibly more. My child can not sleep a full recommended 8-10 hours because I have to wake her up every couple of hours as I poke her with needles. She is constantly tired at school and grouchy from the lack of continuous sleep. She is also in sports as I want her to feel as normal as possible. She has to check before every athletic practice and event and after, When they have games out of town there are times myself and her school nurse are not around from 2pm to 10pm on event days. These days it is on her to remember to do everything. She may be 13 but she is still a child. I worry all evening then find out she has been having 500-600+ blood glucose levels and she feels horrible. Wouldn't it be amazing if there was something that could alert her of any low or high readings, as well as myself while away from her, her father, her coach that may be at another area of the field in order to avoid her body deteriorating and costly ICU visits for days at a time while she fights for her life? Wouldn't it be amazing if these children such as herself did not have to be woken up multiple times in a night and could sleep peacefully? Wouldn't it be amazing if a child could spend the night at a friends house for once and feel like a child, instead of feeling like a prisoner to diabetes? Wouldn't it be amazing if parents could be alerted in the middle of the night of dropping or rising numbers? Guess what THERE IS A DEVICE THAT DOES THIS! The Dexcom is a device that requires a small transmitter to be inserted into the skin and the device sticks in place for up to 10 days. This drastically cuts down finger pokes and middle of the night wake ups. The device checks the child's blood glucose every five minutes with out a finger poke. The level is transmitted to the meter and also the child's cell phone alerting the child when needed as well as the parents phones which are entered into the device and any other important people such as school nurses and coaches. This would allow myself and all other parents to monitor our children while they are out of our care at sporting events and at friends houses trying to be a normal child. As well as while they sleep giving parents peace of mind. This would give children freedom and a sense of normalcy in turn possibly reducing the amount of money spend by Medicaid on ICU stays for days and also allow parents to not miss work because life threatening levels are able to be detected hours sooner than traditional blood glucose meter readings. Medicaid would spend less on mental healthcare as well. Due to the lack of sleep and ability to do the same things as other children such as sleepovers my daughter has been hospitalized on a suicidal watch for five days, two different times in a month. Which was paid for by Medicaid as well. The Dexcom device is an amazing device that is helping so many parents with T1D children to allow their children to feel a little more normal. The problem is that Medicaid in Texas will not cover the Dexcom device and the supplies required. Parents like myself, a single mother, and full time college student, can not afford to pay out of pocket so the children suffer. Stop making the children suffer and help to give them a portion of their childhood back. You can not take diabetes away from the child but you can reduce their stress from being a T1D. Sign this petition in order to have Medicaid cover all expenses required for the Dexcom device for all children.
Petition to Total Health Care, Linda Alexander, Total Health Care marketing, Total Health Care info, Randy Narowitz, CEO, Marcie Johnson, Chief Administrative Officer, Daniel Lennon, President
My mom has terminal cancer, don't turn your back on her
My name is John. My mom, Karen Oberg, was diagnosed with Stage 4 Lung Cancer about 9 months ago. While this has been a really hard time for us, I've been fortunate to be able to take leave from my job and spend these last months with her. Things were going well until recently when scans revealed the cancer was still very prevalent. From what doctors told us, she may only have one or two months to live. I need your help because our insurance company is bullying us around right in the middle of my mom's second-line chemotherapy. Her insurance company, Total Health Care, is not living up to its promise -- or name. Out of the blue, Total Health Care decided they would no longer allow my mom to continue going to the University of Michigan to receive treatment. The insurance company has been covering us for the University of Michigan for seven months now, so why are they all of a sudden refusing to continue her coverage when she only has months to live? On Monday, January 20, no more than 12 hours before she was scheduled to receive chemotherapy treatment, we got a call from U of M notifying us that Total Health Care refused to continue covering my mom's treatment there. We were heartbroken upon hearing this, and we were confused about why Total Health Care didn't have the heart to call us directly. After hours upon hours of pleading with Total Health Care over the phone, they wouldn't budge. This is especially frustrating because we're waiting to hear about the status of an operation which can help alleviate some of my mom's pain. The care and compassion we felt from U of M means nothing to them, and my mom is being looked at as nothing more than a dollar sign and a statistic to this insurance company. After a poor experience with a misdiagnosis from my mom's previous hospital and after establishing incredible relationships with doctors at U of M, we have built a true bridge of trust. It's the only place my mom feels comfortable, and as she recently told me, "Hearing bad news at U of M is easier than taking good news from the other hospitals we've been to." Even with a three hour round trip, we know the University of Michigan has so much care and compassion, which we feel from all of the U of M staff and doctors, particularly her oncologist. Their warmth is unmatched throughout the health care system. I ask and thank you for supporting us in our effort to convince Total Health Care to allow us to continue receiving treatment at University of Michigan. After being through so much together, my mom and I want these last few months together to be as joyful as possible. Quality health care from doctors we know and trust is all we ask for. She is currently not receiving chemotherapy because of her discontinued service. Continuing treatment at University at Michigan is how that can happen and we are so thankful for you support on my petition!
Petition to U.S. Representative Val Demings, Senator Marco Rubio, Senator Rick Scott, Florida Representative Geraldine Thompson, Timothy Hearn
You should not have to leave the hospitals to breathe!!
I among many others have asthma and am very sensitive to perfumes, colognes, and many other strong scents. I have had numerous hospitalizations and every time there is a delay in my nursing care as they can not find a nurse to care for me that does not have on perfume or other strong scents. Nursing Staff, Respiratory Therapists, and Doctors wearing perfumes are counter indicative to patients trying to receive medical care, especially those with pulmonary issues. There is no medical reason for perfumes and scents would be an attribute to the health care of patients. This petition would be to ask the for the U.S. and Florida public officials to come up with and pass legislation to prohibit scents in medical facilities such as hospitals, nursing homes, and other health care organizations. I have also asked the Joint Commissions of Accreditation for Hospitals to add it to their list when examining these facilities but it really needs to be a law in order to help all patients not just those who are seeking accreditation. By making these prohibitive, it would make recovery for those with breathing issues avoid reactions and causing alternate breathing issues. It is not just those with breathing issue but others that have allergies and sensitivity to perfumes, colognes, and strong scents.
Petition to Francis Collins, Jenni Glenn Gingery, Sean Tipton, Mary Green, Dr. Anuja Dokras, Dr. Barbara Levy, Jeremy Lazarus, Kevin Griffis, Polly Webster, Yvonne Lau, Richard Ricciardi
Recognize #PCOS Polycystic Ovary Syndrome as a significant health concern demanding national attention and government support.
Often unrecognized PCOS (Polycystic Ovary Syndrome) can cause many physical and emotional symptoms and for the up to 10% -20% of women and girls with Polycystic Ovary Syndrome Worldwide, it is estimated less than half know what it is or that they have it. Many women with PCOS, have gone years without the proper diagnosis and have silently suffered not knowing what was truly wrong. Even in today’s medically advanced era, women from around the country are experiencing the same lack of response from a medical community with little understanding of PCOS, except in cases when the infertility aspect are addressed. As a result, single women, adolescents, LGBT, older women and those not trying to get pregnant have little chance of being diagnosed!!! PCOS can be a precursor to many life threatening conditions including type II diabetes, hypertension, cancer, cardiovascular disease, stroke and kidney problems if left undiagnosed or untreated. This means PCOS contributes to some of the leading causes of death and disability in women today. So why does all of this this matter? PCOS is the leading cause of female infertility in women of reproductive age PCOS is the most common endocrine disorder in women PCOS affects an estimated 14 milluon reproductive-age women in the U.S. Over 50% of PCOS patients are obese 50% of PCOS patients have diabetes by age 40 Approximately 34% of women with #PCOS have #depression and 45% have anxiety. PCOS patients are at higher risk to develop high blood pressure, lipid disorders and coronary artery disease As many as 40% of PCOS patients as young as age 30-45 may have coronary calcification (a warning of heart attack risk) To put this in to further perspective... PCOS affects about 14 million women in the USA. That's more than the number of people diagnosed with Breast Cancer, Rheumatoid Arthritis, Multiple Sclerosis and Lupus combined!" - Louise Chang, MD Therefore, PCOS leaders, government officials, organizaions and advocates are charged with identifying strategies for achieving substantial improvement in the quality of health care and education for all patients living with the syndrome. PCOS patients can not and should not simply be dismissed as a gynecological or infertility problem! With more than half of the women with PCOS predestined to have prediabetes or type 2 diabetes before the age of 40, and increased risks for heart disease, stroke and endometrial cancer, finding ways to diagnose, screen and educate on the connection between thesee diseases to PCOS is imperative! Without the proper education and awareness of these connected disorders and the seriousness of PCOS as a metabolic endocrine disorder, these epidemics will continue to rise. The NIH needs to allocate more than 0.1% of funding to the approximately 30 million women affected in The United States and needs to engage and direct federal agencies to support more research, better physician education and better tools and resources for women and girls with the syndrome to live healthier lives with healthier outcomes!
Petition to Environmental Protection Agency
Ban Asbestos in the US Now, Without Loopholes or Exemptions
My daughter was just 10 years-old when my husband, Alan, was diagnosed with a cancer caused by exposure to asbestos, a deadly material which is still being used in the U.S. today. Families like mine have fought for decades to get the Environmental Protection Agency (EPA) to ban the use of asbestos, but instead the administration allows imports and use to continue. Alan’s disease was incurable – but it was also entirely preventable. Asbestos kills an estimated 39,000 people in the US every year, yet the EPA has not banned companies from continuing to use it. They are knowingly poisoning Americans. In 2004, Doug Larkin and I co-founded the Asbestos Disease Awareness Organization to fight for families battling mesothelioma. We vowed that we would fight with all of our strength to prevent other families from going through the pain, devastation, and loss that we experienced. Emily and I were there with Alan when he took his last breaths. I lost my soulmate and my daughter lost her father because our government refused to stand up to greedy corporations. The EPA has now spent decades of time and taxpayer dollars on asbestos research. They know it is deadly, yet hundreds of tons of raw asbestos are allowed every year to be used in our country. It’s long past time that the EPA banned this deadly material once and for all. Enough is enough.