Petition to Donald J. Trump, Donald J. Trump, U.S. House of Representatives, U.S. Senate, President Donald Trump
Legalize Lyme Disease
Lyme disease has reached epidemic proportions. It is the fastest growing infectious bacterial disease in America. Generally contracted through a tick bite, new evidence shows it is also contractable via mosquito, spider, or fly bite , from mother to child in the womb , or potentially through unprotected sex . The CDC admits that it does not know how many people have Lyme disease. Estimates vary between 300,000 and 1.5 Million new cases diagnosed per year . These figures do not include tens of thousands of undiagnosed or misdiagnosed cases. 25% of all Lyme cases are children. When Lyme disease is not treated early it can be debilitating, even fatal. The spiral-shaped bacteria (Borrelia) bore their way through every tissue, organ, or bone, causing damage wherever they go. The bacteria knowingly avoid treatment areas in the body and by changing their shape, mimic non-threatening cells. They create intelligent biofilms to protect themselves from antibiotics and their host's natural immune response. Studies now show that 1 in 5 cases may go on to become chronic due to Borrelia "persisters" . Unfortunately, the CDC-approved test available for early detection fails approximately 50% of the time . And due to abysmal funding for research, effective treatments are experimental and often long-lasting. The CDC's illegal preferential treatment of out-of-date and inaccurate Infectious Disease Society of America (IDSA) Lyme Treatment Guidelines  support a government narrative that chronic Lyme does not exist. Thusly, insurance companies are not required to cover treatment costs and patients are left to pay for long-lasting treatment out of pocket. Lyme Literate Medical Doctors (LLMDs) who practice life-saving medicine for Lyme patients are forced to operate outside of the insurance industry, for risk of being shut down. Such little information and training is available to physicians across the country, patients are left to suffer for years before they even receive a diagnosis . By then, many have been misdiagnosed with any of the 300+ diseases that Lyme mimics . They have lost their jobs and are on disability. Some (including children and teens) are heavily affected by the neuropsychological effects of the disease and succumb to suicide . Others have died simply due to ignorance of doctors . This cannot continue. The CDC and IDSA have failed to control Lyme disease. As sufferers, care-takers, friends, family, and co-workers of those who are suffering, we urgently request from the President and all members of Congress: 1. Legislation Expanding The Definition Of Lyme Disease To Cover Chronic Lyme And Co-infections 2. Legislation Protecting Doctors Who Treat Chronic Lyme And Co-infections From Insurance Industry-driven Investigation And Shut-down 3. Heavily Increased Funding For Research Into Chronic Lyme Disease And Co-infections 4. Greatly Improved Testing With High Accuracy Rates (As Seen With Ebola And Other Infectious Diseases) 5. Education Of Doctors And The Public Regarding Symptoms And All Treatment Options -- This petition was originally featured on the We The People petition site. Thank you for signing and sharing with friends, coworkers, spiritual leaders, family members, loved ones, and strangers. It is time to Legalize Lyme disease, including chronic stage and co-infections! -- Sign to add your voice to establish proper legislation and funding of this global epidemic. Important resources: ILADS.org lymedisease.org lymestats.org lymediseasechallenge.org -- Sources:  New England Journal of Medicine: http://www.nejm.org/doi/full/10.1056/NEJM199006143222415Journal of Molecular Medicine: http://link.springer.com/article/10.1007/BF01711648Journal of Clinical Microbiology: http://jcm.asm.org/content/26/8/1482.full.pdfPubMed: http://www.ncbi.nlm.nih.gov/pubmed/4075471Folia Parasitologica: http://folia.paru.cas.cz/pdfs/fol/1998/01/11.pdf  Annals of Internal Medicine: http://annals.org/article.aspx?articleid=699780 PubMed: http://www.ncbi.nlm.nih.gov/pubmed/7648832  Journal of Investigative Medicine: http://www.lymedisease.org/lyme-sexual-transmission-2/Conclusions Raphael B. Stricker, MD On Sexual transmission of Lyme disease: https://twitter.com/NorVect/status/604992062421921792  Dr. Richard Horowitz discusses new case estimates with Congressional Candidate Zephyr Teachout: https://youtu.be/rTIeyKuo8JY  Scientific American: http://www.scientificamerican.com/article/lyme-disease-may-linger-for-1-in-5-because-of-persisters/  Journal of Infectious Diseases, Wisconsin State Laboratory of Hygiene/College of American Pathologists Proficiency Testing Program: http://www.lymedisease.org/lymepolicywonk-two-tiered-lab-testing-for-lyme-disease-no-better-than-a-coin-toss-time-for-change-2/  Advocates Call on CDC to Remove Expired Lyme Guidelines from all Publications https://www.webwire.com/ViewPressRel.asp?aId=202124  Study of over 6,000 Lyme patients: http://www.lymedisease.org/wp-content/uploads/2015/04/lymedisease.org-patient-survey-20151.pdf  Can Lyme Disease Be Chronic? Dr. Richard Horowitz: http://www.foxnews.com/health/2015/05/06/lyme-disease-debate-can-condition-be-chronic/  Psychology Today: https://www.psychologytoday.com/blog/emerging-diseases/200903/infection-can-change-your-personality-theres-plenty-proof?collection=126213  "Doctors Pushed ALS Diagnosis, Ignored Lyme", Valley Breeze: http://www.valleybreeze.com/2014-12-17/cumberland-lincoln-area/geraghtys-doctors-pushed-als-diagnosis-ignored-lyme#.Vub33JMrJE5  Tulane University study finds Lyme bacteria can survive antibiotic treatment months after infection https://news.tulane.edu/pr/study-finds-lyme-bacteria-can-survive-after-antibiotic-treatment-months-after-infection
Petition to Francis Collins, Jenni Glenn Gingery, Sean Tipton, Mary Green, Dr. Anuja Dokras, Dr. Barbara Levy, Jeremy Lazarus, Kevin Griffis, Polly Webster, Yvonne Lau, Richard Ricciardi
Recognize #PCOS Polycystic Ovary Syndrome as a significant health concern demanding national attention and government support.
Often unrecognized PCOS (Polycystic Ovary Syndrome) can cause many physical and emotional symptoms and for the up to 10% -20% of women and girls with Polycystic Ovary Syndrome Worldwide, it is estimated less than half know what it is or that they have it. Many women with PCOS, have gone years without the proper diagnosis and have silently suffered not knowing what was truly wrong. Even in today’s medically advanced era, women from around the country are experiencing the same lack of response from a medical community with little understanding of PCOS, except in cases when the infertility aspect are addressed. As a result, single women, adolescents, LGBT, older women and those not trying to get pregnant have little chance of being diagnosed!!! PCOS can be a precursor to many life threatening conditions including type II diabetes, hypertension, cancer, cardiovascular disease, stroke and kidney problems if left undiagnosed or untreated. This means PCOS contributes to some of the leading causes of death and disability in women today. So why does all of this this matter? PCOS is the leading cause of female infertility in women of reproductive age PCOS is the most common endocrine disorder in women PCOS affects an estimated 14 milluon reproductive-age women in the U.S. Over 50% of PCOS patients are obese 50% of PCOS patients have diabetes by age 40 Approximately 34% of women with #PCOS have #depression and 45% have anxiety. PCOS patients are at higher risk to develop high blood pressure, lipid disorders and coronary artery disease As many as 40% of PCOS patients as young as age 30-45 may have coronary calcification (a warning of heart attack risk) To put this in to further perspective... PCOS affects about 14 million women in the USA. That's more than the number of people diagnosed with Breast Cancer, Rheumatoid Arthritis, Multiple Sclerosis and Lupus combined!" - Louise Chang, MD Therefore, PCOS leaders, government officials, organizaions and advocates are charged with identifying strategies for achieving substantial improvement in the quality of health care and education for all patients living with the syndrome. PCOS patients can not and should not simply be dismissed as a gynecological or infertility problem! With more than half of the women with PCOS predestined to have prediabetes or type 2 diabetes before the age of 40, and increased risks for heart disease, stroke and endometrial cancer, finding ways to diagnose, screen and educate on the connection between thesee diseases to PCOS is imperative! Without the proper education and awareness of these connected disorders and the seriousness of PCOS as a metabolic endocrine disorder, these epidemics will continue to rise. The NIH needs to allocate more than 0.1% of funding to the approximately 30 million women affected in The United States and needs to engage and direct federal agencies to support more research, better physician education and better tools and resources for women and girls with the syndrome to live healthier lives with healthier outcomes!
Petition to Blue Cross Blue Shield
Have insurance cover Radicava for ALS for my dad and others.
My father Joe was diagnosed with Amyotrophic Lateral Sclerosis (ALS) March of 2017. Insurance is denying coverage to the drug(Radicava) that is helping slow down this awful disease and allowing him to live his life to the fullest. The news of ALS was devastating to him, his family, and his friends. ALS is a disease that causes death to the neurons. It is a terminal disease and most patients live 2-5 years after diagnosis. ALS takes away your ability to swallow, walk, eat, breathe, speak, etc. ALS does not mess with your mind (cognitive capabilities). July of 2015 was the last time I saw my father while he was still in complete control of his body. I wish I had known that the next time I saw him it would be different. You see, I lived across the country but I would call my father every day and we would talk for hours. That fall, family began to notice something was different about his speech. At first I was worried it was a stroke or some other horrible issue. Over the next few months he had many appointments and different tests run but the doctors could not figure out the cause of his declining health. In March of 2017 he was admitted to the hospital so doctors could determine what was wrong with him. At this time he was losing his balance and repeatedly falling. Then, March 13, 2016, I was driving home from a nine month pregnancy check when I saw the text, it read "I have ALS". A flood of tears came down my face. I couldn't breathe. The next few days were a blur for me. A few weeks later I gave birth and when my daughter was five days old I drove across the country to see my dad. He was walking but he was wobbly. He could talk but people had a hard time understanding him. My heart broke into a million pieces so I can't imagine how he must have felt or how scared he was. Progression was very quick! By June if I called my dad I could not understand him. That was hard. We would spend hours on the phone. By July he was using a wheelchair and a walker. In August he was in a wheel chair, his speech declined dramatically, and his fine motor skills were weak. Last spring, shortly after he was diagnosed it was announced that after 20 years there was a new drug to help slow the progression of ALS. This drug was an infusion called Radicava. Before Radicava came along the only other drug on the market was Riluzole. Riluzole can help patients live a few months longer but is nowhere near as powerful as Radicava. People using Radicava have seen their disease progression slow down by 33%. The initial infusions require you receive them for 14 days then rest for 14 days. Every cycle after that initial infusion 10 out of 14 days are required then 14 days rest. It took several months for the drug to hit the market and when it did it came with a big price tag. Radicava is $146,000 a year or $1000 per treatment. It seemed like insurance was going to cover it. My father started in October and we were all excited to see the results. It didn't take long to see that he had more energy and his speech had become clearer. On his second cycle of infusions he was able to grasp objects and pull himself up to stand. We were all amazed because we hadn't seen him be able to do this for a couple of months. Now it is January and he has been on Radicava for three months. We haven't seen any progression with his ALS. If not for this medication he would have gotten worse. Just two weeks ago I noticed his speech was even a little more clear and he rolled to his side in bed. That was huge news for us. Then we found out the insurance company is now stating they will not cover the Radicava infusions. We pressed for the reason why it wasn't covered and were told his breathing test isn't at 80%. In order to have coverage his test much show greater than 80%. This is ridiculous. Mostly because ALS patients usually cannot even close their mouth around the mouth piece used in the test. Many pulmonologists will not do this test because it is highly inaccurate for ALS patients. In the end, why does this test matter? He is breathing on his own. They want to take away his quality of life because of an inaccurate breathing test? What does that mean for someone who has asthma and develops ALS? What about someone who is on oxygen and then contract ALS? I understand this medication is expensive but there are many that are more expensive. I understand that this is a new drug. The truth is that he has been on it for months now and clearly it is helping. The research is there to show that it helps slow progression by 33%. I need blue cross blue shield to approve this medication for my father and any other person who has ALS because they deserve to be able to fight ALS. They deserve the best quality of life they can get. I understand this isn't a cure, but Radicava helps those with ALS live life to the fullest for as long as possible. Today Radicava is our best option, maybe tomorrow we will have a cure, a reversal, or something that slows progression even more.
Petition to Barbara Newhouse, Executive Directors of every ALS Association chapter, Board of Directors of every ALS Association chapter, Board of Trustees of every ALS Association chapter
Create a National Home Health & Respite Care Grant Program for People Living with ALS
Background: A person diagnosed with Amyotrophic Lateral Sclerosis (ALS) will experience savagely relentless and permanent muscle loss of their voluntary muscles. While the disease may initially start out differently for those affected, the inevitable end result is the same for all who choose to live long enough – complete paralysis. What may begin with simply being physically clumsy or slurring words, quickly evolves into losing the ability to move any part of the body, breathe on one’s own, swallow and talk. Ultimately for all, 24/7 care is required, particularly true if the person elects to have a tracheostomy and/or be placed on mechanical ventilation or assistance. What does one do when faced with these daunting physical challenges and yet chooses to remain living at home? For those who are fortunate enough to qualify for Medicaid or Veteran’s benefits, or have a long-term care policy, they receive home health benefits and are able to typically get by. Others may have enough family and friends to provide some care, although they often quickly become emotionally, physically and financially exhausted, needing respite care relief. For the rest, it’s a devastating struggle of epic proportions. Some are forced into bankruptcy to qualify for Medicaid, while others choose to end their lives prematurely to prevent their families from being obliterated by the enormous financial hardship and burden. They die to save their family’s hard-earned pension, children’s college fund and property. It’s sickening what happens to these families, yet no one talks about it. It’s a monumental failure of our society. These families just don’t have the discretionary funds to pay for caregivers, which can run from $52,000 to $104,000 annually (50 hours per week x $20 per hour = $52,000 annually, assuming overtime doesn’t have to be considered - or - 100 hours per week x $20 per hour = $104,000 annually, assuming overtime doesn’t have to be considered). How many of us could actually pay this much out of our own pockets? Not many. Even upper middle-class citizens would have great difficulty coming up with such an amount, and there are numerous cases of those who can’t. Money should never, absolutely never, play any part in deciding whether to live or die. It’s morally incomprehensible and unequivocally wrong. The ALS Association (ALSA) can and must help. They are the preeminent non-profit ALS organization in the United States, with chapters located throughout to serve the entire ALS community. Their marketing and fundraising potential in the ALS marketplace is unrivaled, and they have publicly committed to patient care being in their core plan as a primary mission, as it rightfully should be. The very lives of the people the ALS Association was formed to serve hang in the balance. Until there is a treatment or cure for all people living with ALS, there is nothing more urgent than home health care. As of the last financial statement published for the ALS Association for fiscal year ending January 31, 2017, their total unrestricted assets were reported at $82,712,789, and total net assets were $104,468,596. Their financial position is strong. Below is a carefully considered, achievable plan to provide home health and respite care grants nationwide to all eligible applicants. While it is merely a drop in the bucket, it is a step in the right direction and will help so many. It is anticipated event participation will grow substantially with the implementation of this direct care program, thereby increasing funds raised. This could potentially offset the funds diverted for home health and respite care grants. National Home Health & Respite Care Program for the ALS Association to implement: Create a national home health and respite care grant program to be implemented in every chapter, permanent in nature, with an effective start date of no later than the end of the 3rd quarter of the ALSA fiscal year ending January 31, 2018. At the commencement of the program, funds from the specified sources will begin to be deposited and accrued. Evaluate grant applications and begin awarding grants, with an effective start date of the 2nd quarter of the ALSA fiscal year ending January 31, 2019. Ensure the program is consistent and fair for all ALS patients by implementing the exact same program in every ALSA chapter nationwide. Establish a separate budgetary account and unique account number in each chapter for deposits and withdrawals, specifically and solely for use for the home health and respite care grants. Funding will include a mandatory contribution from ALS Association National in the amount of $5 million in total per ALSA fiscal year quarter, with the first distribution occurring within one week of the initial launch of the program, which is scheduled to begin during the 3rd quarter of the ALSA fiscal year ending on January 31, 2018. Each subsequent quarterly deposit shall occur within one week of the start of each quarter of the ALSA fiscal year. The ALS Association National will determine what percentage to allocate to each chapter’s program by determining the number of living ALS patients each chapter serves, as compared with the total number of ALS patients served throughout all chapters in the United States. Distributions from ALS Association National shall be in full, not incremental installments. Additionally, a mandatory 7% allocation from all “Walk to Defeat ALS” and “Ride to Defeat ALS” gross proceeds will be allocated to each chapter’s respective home health and respite care program accounts, as well as private donations specifically earmarked for such. Should this 7% mandatory contribution have a detrimental impact on a particular chapter’s operations, ALS Association National will waive the equivalent of this amount in the upward contribution from the chapter to ALS Association National. Individuals or groups may also establish their own fundraising events for the specific purpose of funding this program, with the capacity to allocate the funds raised to any chapter nationwide. Create a donation portal on the alsa.org website under each chapter, as well as on each chapter’s individual websites, which directs donations to each respective account. Market the program through chapter and national press releases, descriptive website information, email, social media and private solicitations. Actively solicit donations from private parties and organizations. The responsibility for this task lies with each chapter’s leadership and fundraising arm, as well as ALS Association National’s leadership. ALS Association National will hire an independent oversight committee to evaluate the program’s performance and adherence to the guidelines and criteria established herein. The committee will also send a survey to grant awardees to determine their level of satisfaction and any areas for improvement. This shall be done at the close of each fiscal year, beginning with the close of the ALSA fiscal year ending January 31, 2019. A public report shall be created by the committee no later than the end of the 1st quarter of each ALSA fiscal year. Reevaluate appropriate grant funding amounts each year based on the intake of funding and the residual balance at the end of each ALSA fiscal year. Each chapter will issue payment directly to a certified home health agency or an individual of the grant awardee’s choosing for either custodial type services or skilled nursing services. No person awarded a grant shall pay anything out of their own pockets for subsequent reimbursement. Should a certified home health provider or individual of the awardee’s choosing be unavailable in the awardee’s service area, the chapter will be responsible for contracting with a licensed home health aide, LVN or RN directly to provide the services the awardee requires. In such cases, the chapter will pay these individuals directly. Once again, no awardee will pay anything out of their own pocket for subsequent reimbursement. All donations to these accounts shall be tax-deductible to the donor. At the end of each fiscal year, each individual chapter will create and publish a public report indicating the total amount of donations received, the quantity of respite care grants issued, the quantity of home health grants issued, the total value of disbursements for each and the residual balance. Home health and respite care grants will be awarded for up to $7,500, depending on demonstrated need by the applicant. Applications received while funds are depleted shall be given priority consideration once funds become available again. Those registered with their chapter will receive notification of the program’s existence from support staff and via email. No funding for ALSA staff or administrative overhead, or any other expenses or fees, can be withdrawn from the contributions to these accounts. The accounts are to be used for the express purpose of receiving donations and paying out grants for this program. ALS Association National Home Health & Respite Care Program criteria: The applicant for whom the application is intended must have an official diagnosis of ALS or PLS, be registered with the chapter for which they are applying and live within the service area of the chapter to which they applied. The applicant need not attend an ALS clinic to be eligible. There are no income criteria to be met. Qualifying applicants may receive only one grant award during each ALSA fiscal year, and the grant award may be used in any increment over a 12-month period from the award date. Additionally, applicants may reapply and be awarded a grant during each ALSA fiscal year, which begins February 1 and ends January 31 each year. Applicant must live at a private residence, not a skilled nursing facility or similar, and have a home health or respite care need. Applicant is also encouraged to attempt to secure additional benefits potentially available to them, including, but not limited to, Medicaid, Veteran’s benefits, Medicare home health services, private insurance, long-term care plans and hospice. This often is difficult and time-consuming in nature, and there are often obstacles. For example, a patient in most states cannot be placed on hospice if they have life-sustaining procedures or equipment, such as a tracheostomy or mechanical ventilation. It is, therefore, an assumption of good faith that the applicant will attempt to secure such benefits to ensure grant funds are awarded to those most in need.
Petition to LSBPNE
MANDATE LPN CEUs IN LOUISIANA!!
My name is Daisy Montgomery, nursing license 20120172, and I've been an LPN since 2012. I've been out of work for a while due to my own personal choices, and at this point I've lost a lot of my nursing knowledge, and I think that's a normal side effect of a nurse not putting in to practice or at least exposing herself to information throughout the year while remaining unemployed(which mandated CEUs would prevent.) The LSBPNE is perfectly fine with me going get a nursing job and practicing. My license remains active and unencumbered. At any time I can reenter the workforce, and the LSBPNE is okay with this....but it's NOT okay. What is a Licensed Practical Nurse? He/she is a nurse who provides direct patient care while under the supervision of a Registered Nurse. The education requirements are usually a 1.5 year program at a technical or community college. Graduated nurses finish the program with 2 weeks of vast nursing knowledge. In the State of Louisiana, an LPN has a board that he/she reports to called the LOUISIANA STATE BOARD OF PRACTICAL NURSING EXAMINERS also known as the LSBPNE located in Baton Rouge, Louisiana. This board is responsible for managing LPNs scope of practice, their admittance into LPN programs, their continued license status, disciplinary actions and procedures, and for conformity and adherence to laws and regulations that pertain to LPNs. You will be shocked to find out than an LPN requires no continuing education in the State of Louisiana according to the LSBPNE. Did you just get a funny feeling in your stomach? I know I did. This doesn't seem right now does it? As a comparison, Registered Nurses, Advanced Practice Nurses, and other medical professional occupations like Laboratory Technicians, Respiratory Therapists, Phlebotomists, and more, in Louisiana, require CEUs as part of the process to keep an active license. WHY? SAFETY! Why is it mandated that an RN has CEUs to ensure safe practice, but the same is not mandated of LPNs? Are they not concerned with patient safety regarding care delivered by an LPN? Is the LSBPNE worried about the funding needed for the monitoring of CEU requirements by the LPN, and subsequently puts saving money before the safety of its nurses and their patients? Yes, it does cost money to implement and monitor CEUs for LPNs, but it's vital to do so, because when we don't we endanger the nurse and his/her patients as well as hinder nurses who have taken a hiatus in their nursing career from reentering the field. EVERYONE IN LOUISIANA BENEFITS FROM MANDATED LPN CEUs....you, the nurse, his/her co-workers, his/her employer, the patient, and anyone residing in this state that has the propensity to interact with the healthcare system. Do you feel safe as a potential user of the healthcare system in Louisiana knowing that any LPN who might provide you care isn't mandated to have CEUs in order to keep his/her license active to practice? Did you know that the LPN providing you care could have went nearly 4 years without practicing, and the LSBPNE thinks it's okay for that LPN to provide you care in the absence of mandated CEUs? Did you know that the only requirement to keeping an active LPN license is 8 hours of direct patient care within the last 4 years of the LPN's continued unemployment? ONLY 8 HOURS in 4 YEARS!!!!! That's 2 hours a year. Who in the world came up with that? Who in their right mind thought to themselves that not mandating CEUs and only requiring a nurse to have 8 hours of direct nursing care in the last 4 years of being unemployed was appropriate? Who supported this clearly unsafe measure and then subsequently voted to implement it? I have copied and pasted the following text from the LSBN website which is the governing board in the State of Louisiana for Registered Nurses, and the following excerpt applies only to Registered Nurses. LPNs are not held up to this standard as CEUs are not required of them at all. 14. Is there a continuing educational (CE) requirement to renew my nursing license?Yes. All Louisiana licensed Registered Nurses (RNs), except those issued their initial Louisiana RN license during the current year, must be in compliance with LSBN nursing CE requirements renewing their license(s) for the upcoming renewal year. Continuing education (CE) requirements for the upcoming renewal season will remain the same as previous years. You must have obtained the appropriate number of CEs based on the number of hours worked during the 2018 calendar year. Those licensees applying for biennial license(s) are NOT required to have obtained double CE hours. For complete information regarding RN CE requirements click here. Furthermore, please take a look at this website so you can see a thorough explanation of the exact amount of CEU requirements of a Registered Nurse in the State of Louisiana: http://www.lsbn.state.la.us/Portals/1/Documents/forms/cereq.pdf LPNs should have similar CEU requirements as described in the link above for the same reasons: PATIENT SAFETY AND DELIVERY OF COMPETENT NURSING CARE How little do we think of ourselves as LPNs that we don't think enough of our own profession to want to educate ourselves on a consistent basis? How little does the board think of us as nurses?...so little that they don't even mandate continuing education. Demand some respect! Sign this petition now for mandated CEU requirements by the LSBPNE to show your support and make real change happen!! Patient safety aside, an LPN in Louisiana who has not had the documented 8 hours of direct patient care to keep her license active must take an LPN refresher course that can be quite expensive and will delay a nurse reentering the field substantially. With the demand for LPNs anticipated to grow 12% over the next 7 years, we cannot afford to leave nurses in this situation where their licenses are inactive due to lack of CEUs. Thank you for your time. Please share with friends, family, co-workers, LPNs, RNs, Advanced Practice Nurses, CNAs, Medical Doctors....We CAN make a change, and it starts with your signature. Peace, love, and happiness :) -Daisy Montgomery, LPN
Petition to Environmental Protection Agency
Ban Asbestos in the US Now, Without Loopholes or Exemptions
My daughter was just 10 years-old when my husband, Alan, was diagnosed with a cancer caused by exposure to asbestos, a deadly material which is still being used in the U.S. today. Families like mine have fought for decades to get the Environmental Protection Agency (EPA) to ban the use of asbestos, but instead the administration allows imports and use to continue. Alan’s disease was incurable – but it was also entirely preventable. Asbestos kills an estimated 39,000 people in the US every year, yet the EPA has not banned companies from continuing to use it. They are knowingly poisoning Americans. In 2004, Doug Larkin and I co-founded the Asbestos Disease Awareness Organization to fight for families battling mesothelioma. We vowed that we would fight with all of our strength to prevent other families from going through the pain, devastation, and loss that we experienced. Emily and I were there with Alan when he took his last breaths. I lost my soulmate and my daughter lost her father because our government refused to stand up to greedy corporations. The EPA has now spent decades of time and taxpayer dollars on asbestos research. They know it is deadly, yet hundreds of tons of raw asbestos are allowed every year to be used in our country. It’s long past time that the EPA banned this deadly material once and for all. Enough is enough.
Petition to Utah County Democrats, Utah County Residents, Utah County Democratic Healthcare Caucus, Utah County uniffiliated voters
Utah County Democrats forming a County Healthcare Caucus. We need UT county signatures.
We, the members of the Health Care Caucus of the Utah County Democratic Party, dedicate ourselves to seek individual freedom in the framework of a just society, and political freedom through meaningful participation by the members of the Utah County Health Care Caucus, and to promote affordable, accessible and quality healthcare, the Democratic Party and its candidates for public or party office. We further affirm our belief that access to quality, affordable health care is a right of every citizen of the United States. If you are a registered Democrat in Utah County please sign our formation petition. This petition is to form and create a Local healthcare caucus in Utah County.
Petition to Elizabeth Warren, Mayor Lovely Warren, University of Rochester, University of Rochester Medical Center, Andrew M. Cuomo, Elizabeth Warren, Kirsten E. Gillibrand, Loretta Scott
HOLD UR MEDICINE ACCOUNTABLE FOR SEXUALLY ASSAULTING A TRANS MAN WITH ENDOMETRIOSIS
Cori Smith is a transman w| Endometriosis who just wanted to have his own kids. From a young age doctors practicing under University of Rochester Medical Center told him his cure is a hysterectomy. This was immediately after denying him surgical care because they believed he did not have Endometriosis. Fast Foward to his adulthood, Cori Smith was able to save 14 viable eggs. However, Endometriosis complicated his egg retrieval process, which should have been handled appropriately. Cori suffered from extreme pain even for Endometriosis patients directly after his egg retrieval. When arriving at the emergency room, Cori suffered discrimination immediately. Although his license said male, they referred to him as IT & SHE. They denied him pain medication and his diagnosis : OVARIAN TORSION, next step was organ failure. Cori has an emergency OBGYN by the name of Chinedu Nwabuobi who is now completing his fellowship in another state: FLORIDA. This event happened in Rochester, NY. This surgeon told Cori that where he is from [we] kill people like you, among other horrendous transphobic remarks. Among the awful nightmare of constantly screaming at the top of his lungs on an occupied nursing wing at affiliate: HIGHLAND Hospital (UR MEDICINE), Dr. Chinedu Nwabuobi invited approx a dozen nursing and tech staff to watch as the surgeon told Cori, we will not do any emergency surgery unless we do a transvaginal ultra sound. With the amount of pain Cori was in and prior to this episode, Endometriosis pried Cori’s pleasure of being touch near his genitals. Cori and the witness at his bedside table begged him not to shove an eight inch probe into him when he is already in a huge amount of pain. These surgeons refused to listen and pried his legs open from the fetal position, into the stirrups and shoved the probe inside. Since - this has cause Cori a slew of pain and left him confined to his downstairs first floor couch to live for months after with the help of a nursing aide to help with very personal matters: using the bathroom being one of them. He contracted ecoli, most likely due to the fact of Cori waking up from his first surgery (which they turned into 3) - with no bandages on his wounds. This has happened and since Cori has tried to take this publicly, URMC used all efforts to shut him out of Rochester media and publications. They have issued an apology after #CorisStory was reported on in the Empty Closet, Rochester’s oldest LGBT magazine. Since then, the Empty Closet has removed the original article and replaced it with a less dignified version and image of the story. We are disappointing in the work and the shutdown and the silence into #CorisStory. This is the purpose of this petition: to hold the CITY OF ROCHESTER OFFICIALS & UNIVERSITY OF ROCHESTER MEDICAL CENTER ACCOUNTABLE FOR THE TRAUMA AND DISABILITY centering around Cori’s daily life which is full of the pain and anguish Cori’s body has to bear every single day. Cori cannot use the bathroom normally, his pelvic floor is almost non-existent, he has to received hundreds of shots a year to numb what this hospital is responsible for. Insurance companies have denied Cori’s coverage due to their claim that Cori should not be receiving the treatment being approved for his pain management. Cori deserves justice. Do you stand by him? Share any story of yours in which hospitals have taken advantage of the marginalized and hashtag #CorisStory