187 petitions

Update posted 3 days ago

Petition to House Energy and Commerce Committee, Subcommittee on Health

Tell the House Subcommittee on Health to make PrEP a part of preventative care

There’s a proven way to prevent new cases of HIV, it’s called PrEP. The U.S. Preventive Services Task Force announced that PrEP (aka: Truvada) should be offered by doctors as a major form of HIV prevention. But there’s a huge hurdle to getting on PrEP - the cost. Without insurance, a 30-day supply of PrEP can cost roughly $1,700. Even with insurance, the costs can be prohibitive. But the House Subcommittee on Health can do something about it, they can make PrEP a part of preventative care. This would mean patients could get PrEP for free from their insurance, no matter the cost. Tell the House to make PrEP a free and essential part of preventative care. The Task Force found that many physicians aren’t offering PrEP for HIV prevention because of the high cost. Once completed, their report will be going to the House Subcommittee on Health and could help expand existing coverage under the Affordable Care Act (ACA), but HIV prevention should go further. An estimated 15% of people with HIV don’t know they have it. In the U.S., HIV rates are actually increasing among Latino and African American men. Southern states had half of all new HIV cases in 2016. With novel preventative drugs like PrEP, countless lives could be saved. Demand the House make PrEP an essential part of preventative care. In the U.S., 1.2 million people are at high risk of contracting HIV, but only about 80,000 of them had access to PrEP in 2016. That same year, there were 40,000 new cases of HIV in the United States. If high risk people use PrEP everyday, it can reduce their chances of getting HIV from 70-90%. Lives are at stake. Tell the House Subcommittee on Health to make PrEP an essential part of preventative care. No one should lose a friend or relative to complications with HIV/AIDS. Tell the House to make PrEP free.

Will Scheffer
589 supporters
Update posted 1 week ago

Petition to Philippine Congress, Speaker Panteleon Alvares


Cancer is a growing and serious public health concern. It is inextricably linked with the achievement of the country’s poverty reduction and development goals.   Cancer incidence is increasing and is ranked as one of the leading causes of death among adults and children. In the 2015 Philippine Cancer Facts and Estimates, it reported 109,280 new cancer cases  per year and 66,151 cancer deaths per year.  This is translated to 11 new adult cancer cases every hour, and 7 adult cancer deaths every hour. At least 3,900 children are diagnosed with cancer every year or 11 new cases every day.  It has been noted that there are at least 8 children die of childhood cancer per day. A recent report of the Philippine Statistical Authority (PSA) states that one in every ten registered deaths in the country is attributable to cancer. Since 2004, cancers have been the third leading cause of death following cardiovascular diseases; for child mortality and morbidity, cancer ranked 4th. Experts opine that the actual cancer burden and cancer mortality in the Philippine is in fact very much higher than what is currently being reported. Many more remain uncounted, unrecorded and unreported due to the absence of national cancer registries. Survival rates for the most common adult cancers (i.e. lung, breast, colon, cervical, prostate, liver) are relatively low compared to other countries in Asia and the world. For females, all cancer mortality rate, the Philippines ranks second highest among 15 countries in Asia, with 124 deaths per 100,000 population. Compared to Asian countries, the Philippines has the highest mortality rate for 2 types of cancer: breast (27 per 100,000 population) and prostate cancer (13 per 100,000 population. Lung cancer mortality rates are also high exceeding 40 per 100,000 population. For breast cancer, the Philippines also has the lowest survival (.58 mortality to incidence ratio.  For childhood cancers, which now has an average survival rate of 84% in high income countries and a growing number of middle income countries, average survival rate in the Philippines is at a low 30%.         Cancer is a catastrophic disease which pushes families deeper into poverty. It debilitates not only patients, but also their families and loved ones. The financial burden can be overwhelming, given that financial risk protection mechanisms are limited and patients often need to shell out money from their own pockets to pay for treatment and other costs, such as medical supplies, food, and transportation.  Evidence shows that in a cohort of cancer patients, the mean out-of-pocket expenditure for cancer treatment, far exceeded the mean household income; 117 percent at baseline to 253 percent twelve months after, leading more than 56 percent of households into financial catastrophe.[1] This does not yet factor in the staggering economic and social costs, with productivity losses for both patients and immediate caregivers. This huge out of pocket costs often deter health seeking behavior or leads to discontinuance and abandonment of treatment (i.e. voluntary stoppage of necessary treatment by patient /family) . In some areas and with certain types of cancer, abandonment or discontinuance of treatment can be as high as 75% while average treatment compliance is at a low 21%. These conditions are most observed among the poor. marginalized sectors but occurs even among the so called middle class.      Incidence of cancer is projected to increase by as much as 80%, by 2030, in low resource countries like the Philippines (WHO). This will have a staggering effect on the ability and resiliency of the Philippine health system as well as its overall economy.    THUS, PURSUANT TO THE CONSTITUTIONAL PROVISIONS OF ARTICLE II, SECTION 15 ("The State shall protect and promote the right to health of the people and instill health consciousness among them"), and ARTICLE 13 SECTION 11 ("The State shall adopt an integrated and comprehensive approach to health development which shall endeavor to make essential goods, health and other social services available to all people at affordable cost. There shall be priority for the needs of the underprivileged sick, elderly, disabled, women, and children. The State shall endeavor to provide free medical care to paupers")  WE CALL ON GOVERNMENT TO PASS A LAW WHICH WILL EXPAND EFFORTS TO EFFECTIVELY MANAGE AND CONTROL CANCER, IN ALL ITS FORMS, BY INCREASING INVESTMENTS FOR ITS PREVENTION, EARLY AND ACCURATE DETECTION, OPTIMAL TREATMENT, AND BY ADOPTING AN INTEGRATED, MULTI-DISCIPLINARY, AND PATIENT/FAMILY CENTERED APPROACH. We ask that this law include provisions that will have the following integral elements. 1. Strengthening of Cancer Care Infrastructure and Service Delivery Networks to cover the continuum of care. Public health facilities shall be strengthened to provide services spanning prevention, detection, diagnosis, treatment, palliative and hospice care, survivorship follow up and rehabilitation.  This entails (a) providing investments in health facility renovation or upgrade, (b) providing reliable supply of medicines, biologics, and other supplies, (c) training and enhancing oncology related capacities in pathology, radiotherapy, surgery, nursing care,  (d) establishing clear protocols for patient navigation and palliative care, (e) ensuring proper recording and monitoring of cancer cases , and (f) ensuring that recording and monitoring extends to primary health care units. Regional Cancer Centers shall likewise be designated in strategic areas to improve access to optimal care and reduce patient costs. Robust and cost effective refer all systems among various levels of service delivery shall be institutionalized. 2. Strengthening the capacity of the Human Resources for Health in Cancer Care. A competency-based curriculum for all health care workers providing cancer care treatment and support at all levels of the healthcare service delivery system shall be created. This shall include multi-disciplinary, interdisciplinary approaches to cancer care. This will also include adoption of cost-effective teaching platforms for enhanced knowledge, skills, and attitude and implementation of health worker accreditation and certification mechanisms. 3. Strengthening the FDA to ensure the safety, quality, and efficacy of medicines, biologics, and other health technologies. The Food and Drug Administration (FDA) shall strengthen its regulatory capacity to ensure availability of safe, efficacious, quality medicines, biologics, and other health technologies for cancer patients. The FDA shall also develop policies facilitating clinical trials, supporting early access to innovative therapies and health technologies to ensure highest possible fighting chance of survival among people with cancer. 4. Institutionalizing Funding and Social Protection Mechanisms for Cancer Patients, Survivors, Caregivers, and their Families. Given the catastrophic nature of cancer and in order to ensure equitable access to treatment and care, there is a need to provide financial support to cancer patients, survivors, caregivers, and their families in the following forms: Establishment of a Cancer Assistance Fund to reduce out-of-pocket expenditures for diagnosis, treatment, follow through survivorship care and rehabilitation services. This may be sourced from pooled and integrated funds from the Department of Health, Department of Social Welfare and Development, Philippine Charity Sweepstakes Office, Philippine Amusement and Gaming Corporation, among others. PhilHealth Benefit Packages for Cancer. The Philippine Health Insurance Corporation (Phil Health) shall develop and/or expand its benefit packages to include all forms of cancer including metastatic cancers and high risk cancers in children . Social Protection Mechanisms for cancer patients, survivors, caregivers, and their families. The State, in collaboration with DOH, SSS, GSIS, PCSO, PAGCOR, DOLE, DSWD, DOLE and LGUs shall develop social protection mechanisms to support the needs of the cancer patients, survivors, caregivers and their families to reduce, if not eliminate catastrophic cost and ensure well-being.  Nondiscrimination. Access to healthcare services should be provided without discrimination regarding race, religion, sex, national origin, or disability. Patients should also be free from discrimination based on their disease, with respect to both employment and health insurance accessibility 5. Establishment of a National Cancer Registry and Surveillance System and Evidence Generation. A National cancer registry and surveillance system covering all forms of cancer among adults and children shall be designed and implemented to support program decision-making. All public and private health centers, hospitals and facilities shall also observe notification protocols to alert the DOH of all cancer cases. 6. National and regional research and demonstration projects shall be conducted to generate evidence to improve policies and the implementation of the Integrated Philippine Cancer Control and Management Program (IPCCMP). 7. Strengthening Health Promotion, Information, and Education Programs. Health promotion and education activities shall be strengthened in schools and learning institutions, work places, communities, and among vulnerable, at-risk, and disadvantaged populations. A National Cancer Information Office shall also be developed to develop platforms (e.g. interactive websites) to provide comprehensive cancer information services to cancer patients, their families, the public, and health professionals. The DOH, in coordination with the Philippine Information Agency (PIA), KBP (Kapisanan nang Broadcasters nang Pilipinas)  and other related institutions , shall encourage media outlets to launch a media campaign on adoption of healthy lifestyles, early warning signs and symptoms of cancer, cancer prevention and control, treatment and management, using all forms of traditional multimedia and social media. The media campaign shall maximize participation of advertising agencies in developing behavior change communication materials that would promote cancer information and encourage adoption of health lifestyles among the public. 8. Establishing National Cancer Screening Programs. Identifying cancer at the earliest possible stage means that treatment is less costly, cure is most likely, survival rates will increase  and health outcomes will become more positive. We envision that creation and passage of this law will ensure that a diagnosis of cancer will no longer be akin to a a death sentence and that Filipinos will be able to fight and survive cancer just like citizens of other countries in Asia and the world. Increased survivorship and improved health outcomes for Filipinos with cancer will contribute to  our countrys achievement of Sustainable Development Goal 3 (Reduce mortality from cancer by at least 30%) as well as the realization of our countrys health and development priorities.          KALABANIN ANG KANSER TUNGO SA TUNAY NA KALAYAAN!  CANCER COALITION PHILIPPINES  The Cancer Coalition Philippines (CCPh) is a national coalition of cancer patient support organizations, health care providers, cancer advocates and champions engaging and working with government, policy makers, private sector, civil society, and international development partners. This petition is supported by the following: HOSPICE PHILIPPINES I CAN SERVE FOUNDATION CANCER WARRIORS FOUNDATION CAREWELL COMMUNITY FOUNDATION PHARMACEUTICAL AND HEALTHCARE ASSOCIATION OF THE PHILIPPINES PAIN SOCIETY OF THE PHILIPPINES PHILIPPINE BRAIN TUMOR ALLIANCE PHILIPPINE CANCER SOCIETY  PHILIPPINE COLLEGE OF SURGEONS PHILIPPINE OBSTETRICAL AND GYNECOLOGICAL SOCIETY PHILIPPINE SOCIETY OF HEMATOLOGY & BLOOD TRANSFUSION PHILIPPINE SOCIETY OF MEDICAL ONCOLOGY PHILIPPINE SOCIETY OF ONCOLOGISTS PHILIPPINE SOCIETY OF PATHOLOGISTS PHILIPPINE SOCIETY OF PEDIATRIC HEMATOLOGY PHILIPPINE SOCIETY OF PEDIATRIC ONCOLOGY PROJECT: BRAVE KIDS INC. SOROPTIMIST INTERNATION ORTIGAS & ENVIRONS  SURGICAL ONCOLOGY SOCIETY OF THE PHILIPPINES [1] Ngelangel et al (2016). Philippine Costs in Oncology Study.

4,590 supporters
Update posted 4 weeks ago

Petition to Mike Bonin, Thomas Priselac, Mark Ridley-Thomas, Peter E. Braveman, Marc H. Rapaport, James M. Lippman, Bryan Croft, Chad Molnar, Michael Hochman, Krista Kline, Chuy Orozco, Paul Koretz, Debbie Dyner Harris, Kevin Miller, Save Marina Surgery

Protect Marina Plastic Surgery Associates from Eminent Domain Bullying!

Cedars-Sinai Hospital, a $3,300,000,000 in revenue and $415,000,000 in profit behemoth, is hiding behind its technical "non-profit" status and claiming power as a "quasi-governmental" entity in order to use an obscure eminent domain law, break legal leases, circumvent contractual rights, and oust community-serving businesses in Marina Del Rey / Del Rey at 4644 Lincoln Blvd, Marina Del Rey, CA 90292. This includes Marina Plastic Surgery Associates and Marina MedSPA, which has served the Westside in this location for 32 years since 1986. Cedars is trying to throw Marina Plastic Surgery and its award-winning plastic and reconstructive surgery practice out on the street, even though Marina has THIRTEEN (13) years left on their lease. Being tossed out without fair compensation by abusing this eminent domain loophole would mean 36 staff members without jobs with no ability to relocate nearby and no way continue to serve West LA and beach cities patients. Marina Plastic Surgery has consistently been ranked Best of the Westside year after year: Best Plastic Surgeon, Best Plastic and Reconstructive Surgery Practice, Best MedSPA, and Best Skin Care. Marina Plastic Surgery Associates contributes to their community, serving generations of local families, employing 20+ single mothers, working on countless pro bono cases, and training dozens of fellows. Dr. Grant Stevens has consistently given back to the local community, having received commendations from the City, County, and the State of California for enthusiastic work with the Boys & Girls Clubs of Venice and service on the Medical Board of California. Outside of Los Angeles, Marina Plastic Surgery partners with a hospital in Uganda to fund their medical staff, cutting maternal mortality in half.  Our goal: continuing to serve our patients on the Westside.  All we are asking is one reasonable thing: for Cedars-Sinai to pay our full moving costs, seeing as they are breaking our lease and not currently offering fair compensation. Eminent domain is a constitutional issue, with a requirement of just compensation. Thomas Priselac, Cedars-Sinai CEO, who makes $3,750,000+ per year, why won't you fairly compensate Marina Plastic Surgery Associates for ousting them from their legitimate lease using a dubious legal tactic usually used by fat cat capitalists who don't care about the public? Marc Rapaport, Chair of the Cedars-Sinai Board, multi-millionaire financier, why don't you believe in fair business practices on behalf of the "non-profit" board you chair? Councilmember Mike Bonin (who represents the area where Marina Plastic Surgery resides), Councilmember Paul Koretz (who represents the area where Cedars-Sinai is headquartered), and County Supervisor Mark Ridley-Thomas (who represents the area where Marina Plastic Surgery resides), WE, your CONSTITUENTS, are asking for YOUR help!  We are asking that you encourage Cedars-Sinai to provide fair compensation to the neighborhood-serving businesses they are trying to eminent domain and that they are kicking out of legitimate leases.  YOU can help this be a fair outcome.  WE just want Marina Plastic Surgery Associates to be able to continue to provide top-tier medical care to the Westside of Los Angeles and YOU can help.

Dr. Grant Stevens
1,981 supporters
Update posted 4 weeks ago

Petition to U.S. House of Representatives, U.S. Senate, President of the United States, Senator Sheldon Whitehouse, Congressman Jim Langevin, Congressman Sam Graves

The Department of Veterans Affairs: Change Medical Debt Policies; Stop Punishing Veterans with Debt

The way that the Department of Veterans Affairs collects medical debts from veterans is unacceptable. As a disabled veteran trying to pay my medical bills and get treatment, I struggle every day to navigate a backwards system that creates unnecessary stress for veterans, produces significant paper waste, and punishes veterans trying to pay off their debt. Here’s how the current system works: When a veteran like me makes a payment, it is applied to the oldest invoice on record, instead of being applied to the most current invoice. The vast majority of healthcare companies in America do the opposite – they pay off new invoices first and use any remainder to pay down debt. Paying new invoices first allows patients to pay down debt without going into more. But the Department of Veteran’s Affairs’ backward system makes it really hard for vets to ever catch up on payments. When  veterans have debt, they must submit a complete 3+ page paper financial statement every 90 days for every facility they go to, otherwise the Department of Veterans Affairs seizes the veteran's total disability payment as well as 20% of any other federal income that the veteran is receiving, like Social Security Disability Insurance payments. Filling out these forms every 90 days puts an unnecessary burden on our veterans, violates the intent of the Paperwork Reduction Act, and means that if a veteran misses getting his/her financial statements in on time just once, the government seizes that person’s income! The VA needs to fix this broken system so that veterans can pay off their medical debt like other Americans and keep the income they need to live. I propose that payments made on a veteran's debt be applied to the newest invoices first, with the excess going to older debt, so that the new debt doesn't age past the 90 day limit every 90 days. This is how most healthcare companies in America address debt. Also, a website should be set up so that the veteran can update just the information that has changed since his/her last financial statement once per year. These changes would improve financial freedom, reduce stress for veterans who have served their country, comply with the Paperwork Reduction Act, reduce waste, and save filing space in the Department of Veterans Affairs offices. Join me in asking the Department of Veteran’s affairs to change their medical debt collection policies. "Any nation that does not honor its heros will not long endure" - Abraham Lincoln "A man who is good enough to shed his blood for his country is good enough to be given a square deal afterwards." - Theodore Roosevelt  

Bob Gardner
41,598 supporters