22 petitions

Update posted 4 weeks ago

Petition to Dr. Helena Jaczek, Ginette Petitpas Taylor

Prevent Neonatal HSV

Mariana Sifrit, an infant girl who contracted viral meningitis caused by HSV-1, was less than one week old when she passed away. This was caused by a deadly kiss. Her devastating story is not an isolated case. The Herpes Simplex Virus, also known as HSV, is a viral infection that causes herpes. Neonatal herpes can occur when an infant is exposed to HSV in the genital tract during delivery. The current estimated rate of occurrence is approximately 1 in 3,200 deliveries. The risk for neonatal herpes is greatest when a mother acquires an HSV infection for the first time in late pregnancy. Any delay in the identification of at risk pregnancies or in the diagnosis of neonatal HSV infection can have disastrous consequences and can lead to permanent disabilities or death. We need your help to bring this important issue to the attention of our local, provincial and federal health ministers and representatives. We want to see mandatory testing across Canada for all women that become pregnant, using the Western Blot Test, the most accurate form of testing that leads to less false positive results. We also want to see more funding made available for research to be done on this virus so that better treatment options become available for use. Infants infected with disseminated herpes typically present symptoms very similar to those associated with a bacterial infection. Since a neonatal herpes infection can be seen up to four weeks after birth, clinicians caring for newborns in clinics, offices, and emergency rooms must be familiar with the clinical manifestations of this disease process. Clinicians must be provided with the most up to date information and clinical education on the risk factors, clinical presentations and treatment options to treat this disease. Finally we look to the health care system to educate the public on this disease. Many people are unaware they carry the virus because they show no signs or symptoms or they have been misdiagnosed by medical professionals, but this virus has can still be transmitted through asymptomatic shedding (no signs or symptoms). Although rare, a simple kiss, diaper change or breastfeeding from someone who is unaware or shows no signs of the virus can pass on the virus to their infant. Please join us in preventing the loss of more innocent infants because of an avoidable and treatable virus. Thank you for signing and sharing our petition. Here are some stories on the devastating impacts the herpes virus can have on infants: Mariana: health/baby-dies-of- meningitis-from-herpes-virus/ index.html Kirsty life-stories/mums-cold-sore- kiss-nearly-7678803.amp Brooke facebook-warning-kissing-baby- leads-to-herpes-infection/ Kaiden news/article-2287767/Two- month-old-baby-boy-killed- cold-sore-virus-loving-kiss- father.html Mira ColdandFluNews/story?id= 6150484&page=1 Jennifer news/4839029/Mother-kills- newborn-baby-with-a-kiss.html Eloise health/newborn-contracts- herpes-virus-and-dies-after- being-kissed-or-touched- mystery-person-cold-s%3famp More information: Simplex Infection. Clinical Microbiology Reviews, 17(1), 1–13. 1.1-13.2004 health/genital-herpes-in- pregnancy-doubles-autism-risk- study-1.3297747 Babies who get circumcised can get the virus: case-of-neonatal-herpes- caused-by-jewish-circumcision/ amp/ news/article-3619591/Girl-10- died-herpes-doctors-failed- diagnose-her.html about-us/verdicts-settlements/ medical-malpractice/failure- to-diagnose-other/

Doris Kuyateh
18,791 supporters
Update posted 4 weeks ago

Petition to Justin Trudeau, Kathleen Wynne

OHIP coverage for Sight Saving Procedure: CXL

I am Michelle! I am a career mom with a blended family of 6. I have two beautiful daughters and two wonderful bonus (step) kids that I love to pieces and a loving supportive partner of 10 years. I absolutely love watching all my kids play, interact and enjoy life and the family we have created. I look foward to watching the individuals they grow to be. I have struggled with my vision from the age of 3. I was diagnosed with an eye disease called Amblyopia. I was nearly blind in one eye and went through years of patching, specialist appointments, glasses and exercises. It was tough as a child but with the loving support of my mom I made it through to a point where I was no longer almost legally blind in one eye. I was able to obtain 20/30 vision where I can function with glasses. I grew to love my glasses as they helped me achieve all the milestones in life my peers were achieving and eventually leading me up to the point where my path in life was very clear: Helping the community achieve their best vision and eye fashion and showing patients the positive side of glasses! For the past 8 years I have been passionately working my career as Michelle Boich C.C.O.A. I am a Canadian Certified Optometric Assistant who works every day helping the Ottawa community with their eye care needs. I love helping my patients find eyewear that suits their visual needs, helping patients manage eye health conditions and advocating for eye health for all Canadians. I am truly passionate in what I do and I feel that our vision is so important to maintain, protect and manage as eye diseases make such a negative impact on our lives.  I have recently been diagnosed with another eye disease called Keratoconus which is the thinning of the cornea causing BLINDNESS. I now face two options:  OPTION 1: Wait for my corneas to thin to the point there is a hole and I lose my eye sight. OHIP will only cover a corneal transplant as treatment for keratoconus. I will then wait on the organ donor transplant list for a matching pair of corneas. Wait time to find a matching organ donor can be up to 3 years. While I am waiting for a match I will go blind. I will lose the ability to work at my job. I will no longer be able to drive or support my family. We would need to move out of our neighbourhood and into goverment assisted living. Our family would no longer be self sufficient but dependent on goverment funds to live. I would miss seeing their faces every day. OPTION 2: Pay a medical bill of $6000+ for the sight SAVING procedure called CXL. Corneal collagen cross-linking is a technique which uses UV light and a photosensitizer to strengthen the cornea.  Other Provinces who have already covered CXL with their provincial healthcare programs: YUKON / BRITISH COLUMBIA / ALBERTA / SASKATCHEWAN / QUEBEC / NEW BRUNSWICK I am petitioning to get CXL covered under the Ontario Health Insurance Program for the treatment of the degenerative corneal disease Keratoconus. This is not an elective surgery. I was born with a degenerative eye disease that will cause me to go blind unless I pay for this laser surgery to stabilize my corneal tissue and prevent further thinning and damage. Please sign my petition and help me raise awareness as I plan to take this as far as I can. Thank you for listening to my story and taking the time to support this cause! ** GO FUND ME has been created by my best friend Laura, who is always there to help. Thank you to everyone who has reached out in all ways possible! Please read the article posted below

Michelle Boich
26,683 supporters