Petition to Donald J. Trump, Donald J. Trump, UK Parliament, Theresa May MP, Medical Research Council, World Health Organization, National Institute of Health, Donald Trump, Narendra Modi, The Gates Foundation, Xi Jinping, Harvard Stem Cell Insitute, David Cameron MP, The National Institute for Health and Care Excellence, Elon Musk, Jack Straw, The Musicians Union, National Rifle Association, Indian Council of Medical Research, Hearing Health Foundation, Decibel Therapeutics, Frequency Therapeutics, The Ear Foundation
Tinnitus...its time for a cure and better treatments
TINNITUS. This one word which probably does not mean a lot to many people is a very debilitating condition that approximately affects over 50 million Americans, over 5 million Britons, and if we were to account for the rest of the world we are looking into almost a billion people worldwide who suffer from this life changing condition. Not everyone is affected in the same way by it. Approximately 10% of the Tinnitus sufferers have chronic Tinnitus from which there is no escape. It is a sound that we can hear when no external sound is present, in short it means the end of SILENCE. Imagine a life without silence? Imagine hearing high pitched sounds 24*7! We live in this world which is becoming increasingly more dependant on the use of headphones, attending concerts, working in loud environments, tinnitus can be just round the corner for anyone anytime. It can come in anyone’s life at any point in time even through use of antibiotics, old age and acoustic trauma. Our soldiers who protect our countries from threats are the most affected with this condition and yet we have nothing to support them or treat them. Some people have taken such drastic approaches by taking harmful medications to ease or stop tinnitus but everyone has failed. No cure or FDA approved medications exists to DATE. The financial consequences of tinnitus are significant. Personal economic loss to an individual with tinnitus--including lost earnings, productivity, and health expenses-can be up to $30,000 annually. The cost to society as a whole has been estimated at upwards of $26 billion annually. [ATA] Global efforts towards solving this menace is imperative and must be encouraged. And yet, at the same time, we need to have 21st century techniques and therapeutics to tackle this menace. We don’t simply use mathematical data analysis of the effects of stress, sound therapy, etc to show that these are beneficial and pass that off as quality tinnitus research. This kind of research has no THERAPEUTIC value and is a vestige of 80s and 90s era research. We should encourage some quality therapeutics based research using 21st century techniques i.e. cochlear hair cell regeneration, acoustic neuromodulation, rTMS which can actually help to alleviate this condition rather than just encourage acceptance. There are therapies to help you manage the condition like Tinnitus Retraining Therapy, Mindfulness Meditation, Cognitve Behavioural Therapy etc but there is no therapeutic approach that can effectively reduce or cure this condition indefinitely and the worst scenarios is our medical professionals that most of them have no knowledge or understanding of this condition. However, the fact is that suicidal thoughts and even incidence of suicide is not uncommon amongst those who suffer from Chronic Tinnitus. Clearly, hearing health has become a major CRISIS and conditions like tinnitus are on the rise more than ever before. I am trying to raise awareness for tinnitus worldwide this petition is not for those who suffer but it is for everyone else too. I have suffered for nearly 30 years with this condition, but over the last two years it has gotten far worse. I have lived with it for this long. However, in the 21st century we don’t expect ENTs and the medical professionals to tell us to go and live with it; sorry but its not as easy as that. This is a serious condition and is not to be taken lightly it can shatter ones dreams, their futures, destroy social life, relationships and the list goes on and on i have experienced and read the same myself as I belong to many of the support groups on Facebook. Governments, worldwide organisations need to fund more into research as to this day forward we have not ONE single effective medication or treatment for this debilitating life changing condition and its just unacceptable. It has taken people's lives, has made people disabled to work and to enjoy a social life or a LIFE as we all know it; and yet the governments don't recognise it as a disability. I know many who have it are living happily with it I did as well for nearly 28 years but tinnitus doesn't stop there it can get worse and can really have a serious impact on one's life in many ways that are unimaginable. Its time for a cure...NOW. Millions worldwide left disconnected from life and family they don't speak as they have isolated themselves but we need to unite and we need to get our message heard everywhere in this world so please sign this petition share it on your Facebook, Twitter accounts spread it where ever you can as even though you don't have tinnitus it can come in your life one day too it can take away a loved one too, it can destroy the life you once had, disable you from work and the list goes on and on so PLEASE I urge everyone to please help me get this message out there as if we do nothing then nothing will happen its a challenge indeed and its a difficult one but I believe nothing is impossible in the world there is a solution to every problem we just got to find it. Thank you so much for reading it’s really appreciated and I trust you will all do what is necessary to get this petition in the hands of the people and organisations that can make a real change in this world and may we all get SILENCE back in our lives again! x x x
Petition to Jeremy Hunt, Philip Dunne
Cervical Smear Testing is not often enough or started young, enough, we need change!
Cervical Smear testing is not carried out often enough and also not young enough, every year would be much safer. You might ask why should we feel this way, as a woman you don't want any additional, sometimes uncomfortable or embarrassing smear tests. This is my story, Recently after a routine smear appointment I had abnormal cell’s (CIN3, also relatively routine and not necessarily something to worry about), colposcopy/ and then loop electrosurgical excision procedure (LEEP). All seemed text book and nothing to worry about and although unpleasant never expected to hear anything more. I was on time for my screening, always had been and this was the first abnormalities that were picked up. I got the news that I had Adenocarcinoma 1a1 (the earliest detection of cancer, so was very lucky). Twice now my consultant has stated that only six months would have made my positive cancer story a very complicated one, only six months!!! Its very easy for three years to become three years six months… Hectic life style Pregnancy (some sources suggest that it may speed up the process of cancerous cells) Moving House / PractitionersAdmin ErrorOur Error (forgetful/ baby brain/ just dizzy brain!!!) These tests should be annual! I was very, very lucky, not to mention sensible for been on time for my smear. But for many reasons thats not always possible! and at such a great risk. The screening of only over 25s is already in dispute with “Ambers Law” which this petition also supports wholeheartedly (a number of under 25s have died of cervical cancer), Cancer is an awful disease and prevention is better than a cure, it is also more cost effective than cancer treatment. We hope you support our campaign! Nicola, #motheroftwo #cervicalcancerawareness #SmearForSmear #preventationnotcure
Petition to CEO: Jonathan Glenn, CEO: Tim Davison
Urge Consort to scrap proposed parking charge increases at Royal Infirmary of Edinburgh
Staff, patients and vistors are facing huge price hikes in car-parking charges at Royal Infirmary of Edinburgh. Staff face a daily increase from £7 to £15 which is a staggering 114% rise. Patients and visitors face a 30 Pence per hour rise from £1.30 to £1.60 a 23% rise. A spokesperson for Scotland's Worst Drivers said: "Parking at the Royal Infirmary of Edinburgh should be less, not more. "I can't work out why consort feel this move is a good one. Sure, staff can use public transport however some work 12+ hour shifts, and finish in the small hours of the morning when public transport is far and few between, if they can get a bus home! "Do consort not get enough money from the PFI contract in the first place without upping the parking prices for everyone, including those who safe life's? "We call on consort to reverse this plan and scrap it for good."
Petition to Essex County Council
Save Maldon Social Care Services
This petition asks Essex County Council to ensure funding is restored to the 1,600 local residents who lost their Social Care services from March 31st due to funding cuts. Some of these individuals are the most vulnerable in our local community They have the right to getting the care they need and Essex County Council have a duty and responsibility to ensure they receive it. A SOCIAL care service supporting vulnerable people across Maldon and the Dengie is about to be axed. One Support, which provides social care to around 1,600 elderly and vulnerable residents with physical and mental health problems, was completely removed from the Maldon and Dengie areas on March 31. Carers visit clients at least once a week to help them manage their day-to-day life, including organising finances to helping carry out household jobs. The programme is a subsidiary of One Housing, which helps create homes and support people to help them live better and healthier, and is jointly managed by Essex County Council and Moat Housing. However, those who receive the support have been informed that the service will no longer be provided, as part of planned cuts of £713,000 to social care in Essex. It is understood ten staff will lose their jobs.
Petition to Matthew Hancock MP, Theresa May MP, Lucy Frazer MP, Amber Rudd MP, Thérèse Coffey MP, United Nations, UK Parliament
Stop the deaths of 100,000 people by giving people in care the support they deserve.
Every year more than 100,000 people die in care, that’s almost one person dying every 5 minutes. That’s someone’s Mum, Dad, Son, Daughter, Brother or Sister. Families are left devastated, often without answers and many are prevented from finding out what happened. The victims (and their families), many of whom have been forcibly imprisoned into care through NHS England’s 54 specialist mental health trusts, deserve better. Cases of misdiagnosis are common. Leading to life changing conditions such as PTSD for those trapped, forcibly drugged, threatened, assaulted by those responsible for their care and their inactions, often due to the many complex pressures of the job imposed by those at the highest levels. We are funding a new charitable trust: Giving all patients the care they deserve. Ensuring cases of misdiagnosis are reduced by prioritising those needing care. Independently review the unverified medical records, fabricated statements, false allegations & hearsay used to ‘section’ people (using the MHA). Ultimately, drastically reduce the 100,000+ deaths (to realistic targets to be agreed). Change legislation to make it illegal to detain a person, without a thorough investigation to the allegations of poor mental health without first performing due diligence on their claims. Develop the technologies needed to support a person through their care. Giving the person the ability to follow simple processes to challenge their detention and present their evidence clearly if they claim a misdiagnosis is being made. Fully independent legal support to challenge the decisions and compensate victims of misdiagnosis or where their health further deteriorated or ended in their death. Further details here in the press: Denis Campbell for The Guardian on 27th Nov 2018 NHS to look into deaths of 100,000 mental health patients a year https://www.theguardian.com/society/2018/nov/27/nhs-deaths-mental-health-patients-england#QBAIN Thank you for your support! The team at #QBAIN
Petition to The UK Government
Stop no deal Brexit to prevent the suffering of those on life saving daily medication.
A recently released government dossier has outlined that a no deal Brexit would put the lives of Type 1 Diabetics and child cancer patients at significant risk, due to an inability to effectively safeguard a continuous supply of their medicines beyond the sudden exit of the UK from the European Union. Medicines like Insulin are not produced in the UK and have to be imported from mainland Europe in refrigerated conditions in order to retain their efficacy. For this reason, they are unable to be effectively stockpiled in the event of a disruption to this importation, because of their expiration dates. Type 1 Diabetics, like myself, rely on daily doses of insulin in order to keep their blood sugar at a safe level. Any interruption to the necessary dose is life threatening after even a short period, and can otherwise cause life changing effects like kidney failure, heart failure, diabetic ketoacidosis and ultimately, coma and death. Child cancer sufferers cannot afford to delay treatment or have their treatment even momentarily, for a myriad of similarly life threatening reasons. There are many other medical conditions that may also be affected by a No Deal Brexit and the worry amongst these already unwell people is widespread and unnecessary. No solid guarantees have been made to insure that this threat is being seriously addressed. We as affected citizens, along with our concerned friends and family, oppose a No Deal Brexit and do not agree to the risk a No Deal Brexit will take over the safeguarding of our health in order to pursue a political project. We strongly oppose a No deal Brexit on these grounds and will seek to hold those persuing this venture, with the knowledge of this risk publically responsible for any unnecessary suffering caused to already chronically unwell citizens of the UK. Stop the worry, Stop the risk. End the pursuit of a No Deal Brexit.
Petition to cqc.org , Care Quality Commision
We want justice for Sarah Jane Williams who was left to die sedated in a fire in hospital
My sister was aggresivly attacked in hospital during a time period of July and August 2015 by two members of staff. She died in the fire that December 2015 after our complaints were ignored. She was left heavily sedated on her bed. To date we are still waiting for answers. Non disclosure by the NHS Trust, The CQC , The fire services who all have top London Lawyers fighting for them and the coroner has accepted that privaliged information will not be available to be heard at the inquest. They have even blocked our own experts which we are entitled to under new guidelines. They have used tax payers money to fund these top lawyers. Leaving no funds to be justified to get our own independent experts. Our own solicitors cannot compete on a a legal aid budget. They playing field is no where near an equal one. When my sister was still alive she wrote statements saying that during the attack my sister was dragged by her legs across the floor, and agressivly attacked untill she was left battered and bruised, her only crime was to keep hold of her bottle of Coca-Cola a nurse had tried to take away from her by force, which was unecesary to provoke and antagnise the situation. There was no rule for this at that time my sister had her human rights taken away. This led to the 'big boys being called ' the security staff in white coats and what followed was an agressive violent attack on a vulnerable patient (my sister sarah). She was left in agony without any after care or post restraint check ups. It could have killed her, they then left her battered and bruised and in a vulnerable state of mind as her mental health further deteriated. No help was given to address this agony and injustice she had suffered. We her family took a stand although terrified she feared for her life, with photographic evidence we complained in August with a written complaint. Traggicaly Since this complaint was put in our worst fears came true my sister died in a fire at the hospital whilst she was very heavily sedated on her bed. Police say they are not treating as suspicious but now my sister has been silenced forever but I won't give up fighting for her. As her family we want justice served on whoever was responsible for multiple failings resulting in my sisters horrific death. There were witnesses but the patients are too scared as it could easily have been them next. It's so far being pushed aside as under investigation once again and the two people who did this are still working at the hospital with mental illness vulnerable patients. This we were told in person that they were allowed to leave and go elsewhere without action being taken or any accountability to stop this ever happening again. Please support this so these bullys can be struck off from ever working with vulnerable people. It's too late now for my sister but we will not give up untill justice is served and no body has to go through what we have endured as a family. We need those responsible for all failings held to account and prosecuted. My sister will not have a fair inquest until we are given our own independent experts to investigate failings and it will not be a fair equal hearing until this happens. We need accountability for all these failings for real change to happen.
Petition to UK Parliament
Make it compulsory for hospitals to provide aftercare after miscarriage.
An estimated 1 in 4 pregnancies end in miscarriage (1 in 5 if we only count women who realised/reported the miscarriage) and whilst the medical care they they receive can be brilliant and every step is usually taken to ensure that they recover physically, the emotional support after the loss of a baby, is significantly lacking in this country. Women are not being told about the emotional support that is available, either whilst at the hospital or by their GP. They are unfortunately resorting to finding their own support, with talking therapy with a counsellor, or even calling support helplines. Unfortunately the majority of women and their families aren't even aware this support is available and are left to deal with the emotions of their loss,on their own, and this can have a significant and negative affect, later down the line. I am campaigning for it to now be compulsory for hospitals and gp's to sign post women to what support is available and suitable for their needs, before they either leave the hospital or soon after. The loss of a baby at any stage of pregnancy or after their born is an absolute tragedy and a dark, scary time in a families life, and more needs to be done to ensure every single person who suffers, is provided with the support they deserve.