Petition to Jeremy Hunt, Philip Dunne
Cervical Smear Testing is not often enough or started young, enough, we need change!
Cervical Smear testing is not carried out often enough and also not young enough, every year would be much safer. You might ask why should we feel this way, as a woman you don't want any additional, sometimes uncomfortable or embarrassing smear tests. This is my story, Recently after a routine smear appointment I had abnormal cell’s (CIN3, also relatively routine and not necessarily something to worry about), colposcopy/ and then loop electrosurgical excision procedure (LEEP). All seemed text book and nothing to worry about and although unpleasant never expected to hear anything more. I was on time for my screening, always had been and this was the first abnormalities that were picked up. I got the news that I had Adenocarcinoma 1a1 (the earliest detection of cancer, so was very lucky). Twice now my consultant has stated that only six months would have made my positive cancer story a very complicated one, only six months!!! Its very easy for three years to become three years six months… Hectic life style Pregnancy (some sources suggest that it may speed up the process of cancerous cells) Moving House / PractitionersAdmin ErrorOur Error (forgetful/ baby brain/ just dizzy brain!!!) These tests should be annual! I was very, very lucky, not to mention sensible for been on time for my smear. But for many reasons thats not always possible! and at such a great risk. The screening of only over 25s is already in dispute with “Ambers Law” which this petition also supports wholeheartedly (a number of under 25s have died of cervical cancer), Cancer is an awful disease and prevention is better than a cure, it is also more cost effective than cancer treatment. We hope you support our campaign! Nicola, #motheroftwo #cervicalcancerawareness #SmearForSmear #preventationnotcure
Petition to UK Parliament, Theresa May MP, Steve Brine, The RT Hon Matt Hancock MP
Make sure patients with pulmonary fibrosis receive anti fibrotic drugs and palliative care
Recently my mother passed away at the age of 59 years to pulmonary fibrosis. I was her full time carer and asked Doctors on serveral occasions to prescribe her with medication to help stop the progression of fibrosis on her lungs. She met the NICE guidelines criteria for this medication. However, I was told by Doctors that she was not at that stage yet and my mother received no treatment for her lungs. (Perfenidone, nintedanib). Like I’ve mentioned she met the criteria for treatment. Unfortunately a month and a half later my mum passed away in the most traumatic way possible fighting for breath. Now my uncle is being denied this drug and has spent 2 years receiving no treatment for his lungs, Please do not let this happen to other people with pulmonary fibrosis. Just a reminder, like my mum many people with pulmonary fibrosis do NOT smoke Thank you
Petition to CEO: Jonathan Glenn, CEO: Tim Davison
Urge Consort to scrap proposed parking charge increases at Royal Infirmary of Edinburgh
Staff, patients and vistors are facing huge price hikes in car-parking charges at Royal Infirmary of Edinburgh. Staff face a daily increase from £7 to £15 which is a staggering 114% rise. Patients and visitors face a 30 Pence per hour rise from £1.30 to £1.60 a 23% rise. A spokesperson for Scotland's Worst Drivers said: "Parking at the Royal Infirmary of Edinburgh should be less, not more. "I can't work out why consort feel this move is a good one. Sure, staff can use public transport however some work 12+ hour shifts, and finish in the small hours of the morning when public transport is far and few between, if they can get a bus home! "Do consort not get enough money from the PFI contract in the first place without upping the parking prices for everyone, including those who safe life's? "We call on consort to reverse this plan and scrap it for good."
Petition to Essex County Council
Save Maldon Social Care Services
This petition asks Essex County Council to ensure funding is restored to the 1,600 local residents who lost their Social Care services from March 31st due to funding cuts. Some of these individuals are the most vulnerable in our local community They have the right to getting the care they need and Essex County Council have a duty and responsibility to ensure they receive it. A SOCIAL care service supporting vulnerable people across Maldon and the Dengie is about to be axed. One Support, which provides social care to around 1,600 elderly and vulnerable residents with physical and mental health problems, was completely removed from the Maldon and Dengie areas on March 31. Carers visit clients at least once a week to help them manage their day-to-day life, including organising finances to helping carry out household jobs. The programme is a subsidiary of One Housing, which helps create homes and support people to help them live better and healthier, and is jointly managed by Essex County Council and Moat Housing. However, those who receive the support have been informed that the service will no longer be provided, as part of planned cuts of £713,000 to social care in Essex. It is understood ten staff will lose their jobs.
Petition to Rt Hon Matt Hancock Secretary of State for Health
Let’s All Opt In to Introduce the Opt Out Organ & Tissue Donation System
My name is Lucy Ryan and was incredibly lucky to receive a life saving heart transplant 26 years ago aged 2 years-old. I am also fortunate enough to have a lot of fellow transplantees as friends due to someone somewhere being generous, selfless and brave enough to donate either their own organs & tissue, or those of a relative at an unimaginably difficult time. But heartbreakingly I have lost friends along the way who waited for a transplant they never received. Imagine waiting to live, being on the transplant list unable to lead a normal life just waiting in hope for that bittersweet call for months even years! 96% of the UK population have expressed a desire to receive an organ donation. If they needed one yet only 36% are signed up to the current Opt-in system. (The Opt-in system is where to become an organ and/or tissue donor those of us living in Scotland, Ireland and England must make the effort to sign up to the organ donor register.) Yet despite it being so easy to sign-up e.g. spending 2 minutes online, many of us still have not “opted-in”! Even with all the fantastic work charities and organisations do to raise awareness. I know from my own experience it is often something we keep meaning to do, but it never quite reaches the top of the “To-do” list! In the past few years I have been becoming increasingly frustrated with the growing organ donation crisis and decided it was about time to do something. I researched the best way to try to improve the situation settled on the introduction of the “Soft Opt-out” system in all of the UK (alike Wales did in December 2015) is what we need (Scotland & Northern Ireland have already proposed the same idea). Once the system is reformed we will wonder why on earth it took us so long to do it like banning smoking in restaurants! The Soft Opt-Out system would mean would everyone automatically becomes an organ donor as an adult unless they decide to “opt-out”. Relatives would be consulted at the time of death, and to see if their loved one ever ever expressed a wish to opt out but for some reason hadn’t. I believe the majority of those whom do not wish to become organ donors are far more likely to make the effort to opt out, than the 60% of the current UK population who would like to become organ donors but have not yet "opted-in". By becoming a donor you can save almost as many lives as cats apparently have. 3 people die everyday waiting for a transplant—Let’s all Opt in to Opt out and end the donor crisis! Thank you for taking the time to consider my proposal and hopefully sign up. With your support we can make this happen. Yours SincerelyLucy Ryan
Petition to Matt Hancock
Implement scanning for all UK newborn babies for Hip Dysplasia
I was diagnosed with Hip Dysplasia in my teens. Since then I have faced years of multiple hip surgeries and excruciating pain. It's a condition where the 'ball and socket' joint of the hips don't properly form in babies and young children. When not diagnosed early, it can result in lifelong surgery, disability and pain. But with a simple ultrasound of newborns, it could be picked up quickly and treated with a 95% success rate. That's why I'm calling on the Health Minister to introduce ultrasound screening for newborns. 1 in 6 children have some form of hip instability and 2 in every 1000 babies need treatment. Ultrasounds could pick up this 'silent' condition and allow the child to have less-intrusive treatment rather than surgery and long hospital stays later on in life. If the diagnosis is missed it may not become apparent until a toddler starts walking with a limp which then can only be corrected by surgery. In girls it is often not picked up till adolescence. Early diagnosis, prevention, and simple treatment is the best solution. Austria and Germany routinely perform these scans and it means that late diagnosis is low there. The NHS is incredible and this is in no way meant to cause offence to them as they provide incredible care. Whilst the NHS is in financial crisis, I believe cost of scanning all newborns and treating those with hip dysplasia early may be better than the costs of finding it later with inevitable repeat surgeries, joint replacements, education and career disruption, disability benefits, and treatment for depression and chronic pain. We currently check babies using the 'Ortolani test' which is a manual examination where both legs are gently grasped and rotated outwards - a clicking sensation indicates a possible abnormal hip. This manipulation test can unfortunately be unreliable even in experienced hands. It is also suggested that hospitals do not always pick up on bilateral dysplasia as it works on one hip feeling different to the other. This is something that needs to change. I beg you to look into this issue and for everyone to sign this petition so we can activate change. This is not a preventable condition yet scanning babies will result in avoiding the need for surgery later in life and cases of disability. Ultrasounds can also be helpful to detect other issues early on too. Please help by signing
Petition to Matthew Hancock MP, Theresa May MP, Lucy Frazer MP, Amber Rudd MP, Thérèse Coffey MP, United Nations, UK Parliament
Stop the deaths of 100,000 people by giving people in care the support they deserve.
Every year more than 100,000 people die in care, that’s almost one person dying every 5 minutes. That’s someone’s Mum, Dad, Son, Daughter, Brother or Sister. Families are left devastated, often without answers and many are prevented from finding out what happened. The victims (and their families), many of whom have been forcibly imprisoned into care through NHS England’s 54 specialist mental health trusts, deserve better. Cases of misdiagnosis are common. Leading to life changing conditions such as PTSD for those trapped, forcibly drugged, threatened, assaulted by those responsible for their care and their inactions, often due to the many complex pressures of the job imposed by those at the highest levels. We are funding a new charitable trust: Giving all patients the care they deserve. Ensuring cases of misdiagnosis are reduced by prioritising those needing care. Independently review the unverified medical records, fabricated statements, false allegations & hearsay used to ‘section’ people (using the MHA). Ultimately, drastically reduce the 100,000+ deaths (to realistic targets to be agreed). Change legislation to make it illegal to detain a person, without a thorough investigation to the allegations of poor mental health without first performing due diligence on their claims. Develop the technologies needed to support a person through their care. Giving the person the ability to follow simple processes to challenge their detention and present their evidence clearly if they claim a misdiagnosis is being made. Fully independent legal support to challenge the decisions and compensate victims of misdiagnosis or where their health further deteriorated or ended in their death. Further details here in the press: Denis Campbell for The Guardian on 27th Nov 2018 NHS to look into deaths of 100,000 mental health patients a year https://www.theguardian.com/society/2018/nov/27/nhs-deaths-mental-health-patients-england#QBAIN Thank you for your support! The team at #QBAIN
Petition to cqc.org , Care Quality Commision
We want justice for Sarah Jane Williams who was left to die sedated in a fire in hospital
My sister was beaten up in hospital July 2015 by two members of staff. She died in the fire that December 2015 after our complaints were ignored. She was left heavily sedated on her bed. To date we are still waiting for answers. Non disclosure of evidence by the NHS Trust, The CQC , The fire services who all have top London Lawyers fighting for them and hiding or ignoring evidence. They have even blocked our own experts which we are entitled to under new guidelines. Our own solicitors are finding more evidence against them and further non disclosure and cover ups. During the attack my sister was dragged by her legs across the floor, and agressivly attack untill she was left battered and bruised, her only crime was to keep hold of her bottle of Coca-Cola a nurse had tried to take away from her by force, which which was ruled as unecesary to provoke and antagnise the situation as there was no rule for this at that time. This led to the 'big boys being called ' the security staff in white coats and what followed was an agressive violent attack on a vulnerable patient (my sister sarah). She was left in agony without any after care or post restraint check ups. It could have killed her, they then left her battered and bruised and in a vulnerable state of mind as her mental health further deteriated. No help was given to address this agony and injustice she had suffered. We her family took a stand although terrified she feared for her life, with photographic evidence we complained in August with a written complaint. Traggicaly Since this complaint was put in our worst fears came true my sister died in a fire at the hospital whilst she was very heavily sedated on her bed. Police say they are not treating as suspicious but now my sister has been silenced forever but I won't give up fighting for her. As her family we want justice served on whoever was responsible for doing this. There were witnesses but the patients are too scared as it could easily have been them next. It's so far being pushed aside as under investigation once again and the two people who did this are still working at the hospital with mental illness vulnerable patients. This we were told in person that they were allowed to leave and go elsewhere without action being taken or any accountability to stop this ever happening again. Please support this so these bullys can be struck off from ever working with vulnerable people. It's too late now for my sister but we will not give up untill justice is served and no body has to go through what we have endured as a family. We need those responsible for all failings held to account and prosecuted. My sister will not have an inquest until this happens.