Topic

health care

78 petitions

Started 5 days ago

Petition to Greg Hunt MP, Malcolm Turnbull, Bill Shorten

Start Funding for Endometriosis Research in Australia

Endometriosis occurs when a type of tissue, similar to the one that lines the uterus (endometrium) is also found outside the uterus. Endometriosis usually affects the reproductive organs, it is frequentlly found in the bowel, bladder and has been found in muscle, joints, the lungs and the brain. Endometriosis occurs in 1 in 10 women world wide and 550,000 women in Australia. It is one of the leading causes of infertility. It causes severe pain to millions of people and still hardly anybody knows about the disease. It is very often misdiagnosed which leads to the 7-10 year delay in diagnosis. There is little education or awareness about endometriosis, no cure and no way of diagnosis other than surgery. However, according to the ABC "the National Health and Medical Research Council (NHMRC) allocated more than $14.7 million to asthma research and $64.1 million to diabetes research. Only $837,433 was allocated to endometriosis research.The NHMRC funded a single grant application for endometriosis research in 2016, which was approved for $1.2 million over four years, a spokesman said. " (Perrott, K. 2017) This is obviously not okay and needs to change. For me, endometriosis has meant the loss of employment, the loss of volunteer jobs, the loss of university, the loss of relationships, the loss of mental health, the loss of confidence and the loss of control over my bowel, my bladder and my own body. Due to this illness and the chronic pain it has caused me, I have undergone four laproscopies, three ketamine treatments, a colonoscopy, a gastroscopy and a pudental nerve block in the last two and a half years, I am only 21. During this time, I sought help from many doctors, and alternative medicine practitioners - these included: Chinese medicine, acupuncture, homeopathy, hydrotherapy, three physios, myotherapy, chronic pain management, hypnotherapy, massage, excision surgery, botox into the pelvic floor, psychology, psychiatry, neural plasticity, ketamine flush, naturopathy, iridology, two gyneo/urologists, hormonal treatment and a gastroenterologist.I have also been put into a state of menopause to try and releive my symptoms. None of this has helped enough to let me live a relativley "normal" life. Despite my skin being covered in burns from years of hot water bottle use due to severe cramping, I have been told multiple times by doctors that the pain has all been in my head and that I should see a psychologist, yet every time they do more surgery, they find more endometriosis has grown back/ has been missed by the previous surgeon. This occurs to millions of women every where - yet there is still minimum funding for research. Please help us take action and finally end the suffering. If you would like more information on my story please watch the video at https://www.youtube.com/watch?v=F0lLpVGRCdE . Furthermore, if you are sufferering from endometriosis and/or any of the conditions it can cause, including mental health problems/sleep problems/chronic pain/invisible pain, and feel like you need a little bit more support from someone who understands, please feel free to message me on my instagram account fight_endo_like_a_girl)

Gracie Corc
719 supporters
Update posted 4 weeks ago

Petition to Theresa May MP, Amber Rudd MP

Scrap the 'Dementia Tax'

One in Fourteen people currently suffer from dementia and this number is expected to rise in the future: 30% of people born in 2015 will suffer from dementia in their lifetime. Despite this, the Conservative Party has set plans to implement a 'Dementia Tax'. This concept is well explained by the Alzheimers society: "The dementia tax refers to the the enormous injustice in the care system for people with dementia. In the lottery of life, people with dementia are forced to spend hundreds of thousands on care - unlike those with other conditions such as cancer and diabetes. This is because the care that you receive when you have dementia is predominantly social care". The Conservative Party initially planned to force all people to pay for their own social care until the value of all their assets (including the value of the house) falls to £100,000. After widespread outcry from the public Theresa May has agreed to cap the amount people must spend on social care before the government intervenes. However, this is not enough, sources close to the prime minister suggest that the cap could be as high as 300,000. With the average house price in the UK at £215,000 this still forces the average dementia sufferer to pay over £100,000 in social care bills. People should not be forced to sell their home and spend their savings to battle this disease. We cannot let this outrageous policy stand. The NHS and free healthcare is a system which we, the British public, cherish. However, it's principle is free healthcare for all and this policy contradicts this core principle. Admittedly the healthcare required to help a dementia suffer is vastly different to that required to help treat other illnesses, yet this does not change the fact that this form of care is equally as valuable and equally as necessary. Without it dementia suffers will struggle to carry out necessary day-to-day activities. Dealing with the illness is worry enough, suffers should not have fret over financing their struggle.

StopDementiaTax
107 supporters