Topic

health care

43 petitions

Started 5 days ago

Petition to The Legislative Assembly of British Columbia, The Government Of British Columbia

Make Soliris treatment an option for patients with aHUS and their health care providers.

Paul is a hardworking student, majoring in Criminology at the Simon Fraser University. During this summer vacation, he was diagnosed with an extremely rare, life-threatening, progressive disease called aHUS (Atypical Hemolytic Uremic Syndrome). It is characterized by low levels of circulating red blood cells due to their destruction (hemolytic anemia), low platelet count (thrombocytopenia) due to their consumption and inability of the kidneys to process waste products from the blood and excrete them into the urine (acute kidney failure), a condition known as uremia. The disease affects children and adults alike and it leads to formations of blood clots in the body that can lead to stroke, heart failure, kidney failure, and death. Fortunately, there is a cure for treating aHUS, and preventing TMA activity, which is the primary cause of vital organ failure. It is Eculizumab, sold under the trade name, Soliris. However, the BC government does not provide MSP coverage for the treatment as of now. As a result, Paul and many other are not able to receive the treatment that is crucial for them.  Because of this, we  are asking people to sign this petition so that this problem can be addressed to the Legislative Assembly of British Columbia so that they may urge the Government of British Columbia to immediately address this problem so that Paul and many others affected by aHUS can gain a second chance at life.  Thank you for joining us in helping others who are in need.   Petition: TO the Honourable the Legislative Assembly of the Province of British Columbia, in Legislature Assembled: The petition of the undersigned, patients and families affected by atypical Hemolytic Uremic Syndrome (aHUS), of British Columbia, states that: WHEREAS Health Canada has approved the use of Soliris for patients with aHUS, an ultra-rare, chronic and life-threatening genetic condition that progressively damages vital organs, leading to heart attack, stroke and kidney failure. AND WHEREAS Soliris, the first and only pharmaceutical treatment in Canada for the treatment of aHUS, has allowed patients to discontinue plasma and dialysis therapies, and has been shown to improve kidney function and enable successful kidney transplant. AND WHEREAS the lack of public funding for Soliris is especially burdensome on the families of British Columbia children and adults battling this catastrophic disease. Your petitioners respectfully request that the Honourable House urge the Government of British Columbia to immediately provide Soliris as a choice to patients with aHUS and their health care providers in this province through public funding.

Augustine Jeong
126 supporters
Started 1 week ago

Petition to Greg Kyllo, John horgan

Mental Health, Oral Health and Optic Health should be a part of BC Healthcare

Last time I checked, my mouth, brain and eyes were a part of my body! All of these body parts contribute to an array of medical issues when they are not taken care of. The purpose of this petition is to open the doors to healthcare reform and have dentist's, physiatrists, optometrists and medical degree accredited naturopaths/homeopaths (who are all bound by confidentiality) be covered in various degrees, by BC Health Care and share digital patient files.  My own story and incidents with our healthcare system is the inspiration for this petition. I have crohn's disease, my spouse has type 2 diabetes, high blood pressure and high cholesterol (and is not overweight). Depression and addiction is in my family and has impacted all of our lives. Over 13 years ago I was diagnosed with crohn's during an emergency surgery. Since then I have had various doctors and specialists try to encourage treatments that would not cure, but alleviate symptoms and help prevent narrowing of my intestines to avoid another surgery. Upon my own research, I learnt that these types of remedies would kill me before I ever needed another surgery! Therefore I have turned down the treatments and turned to "Dr. Google" for answers and remedies...and I have still not needed another surgery. I am 99.9% certain that the inflammation I get in my eye's and mouth as well as the tiny blisters that come and go have to do with crohn's. I am also certain that I go through phases with each symptom, and that it has to do with hormones. I would love to be able to see a Natural Doctor because I know that that type of doctor looks for "root causes" and digs deeper with test, but I would not be able to afford the consultations or the cost of the tests that I would need done.  As I'm sure anyone with the same issues as my spouse knows, the medication may be lifesaving, but has it's side effects that leads to other ailments. All of the above leads to countless doctor visits that lead to more prescription remedies and that can be very costly to the patient, the insurance companies and our health care system. My sister was diagnosed with endometriosis in her adolescent years and very quickly got addicted to painkillers, as that was the treatment her doctor provided. To make a long story short, that addiction has led to other addictions as well as mental illnesses. 25 years later, her addiction is being treated with pharmaceuticals, so is her mental illness and she is on permanent disability.  I know there are thousands of people who have been failed by our current healthcare system. The current system is being continuously burdened financially due to repeat doctor visits (just to get prescriptions) as well as coverage for refills and remedies for the side effects...vicious cycle!  As a part of the solution I would like to see 2 things happen; 1. Have BC Healthcare cover Dental, Optometry, Psychiatrist and Doctors in natural medicine  2. Implement a computer information system that would link the patient files from each sector of specialist   Let me explain why. Our mouths are the first point in the digestion process. Poor digestion is often the cause for many other diseases (to many to list). A simple eye exam can detect an array of things like stroke and diabetes and could save lives and improve quality of life if caught early ...but most people don't get an exam unless it is absolutely necessary because of the cost. Same situation with a Psychiatrist, sometimes the "cure" for depression is to properly learn coping mechanisms and ways to alleviate stress, other times those feelings are brought on by something physical such as a nerve disorder or even something as simple as an allergy....but we don't know because even when people do use the service, all they end up with is a prescription and a card for another appointment.    Doctors practicing Natural Health Care, often take a more thorough approach requesting tests and a head to toe examination so they have a clear picture of everything going on and are able to diagnose accurately before they determine a treatment. This SHOULD be a practise that traditional doctors use as well, in my experience with doctors, they tend to use a trial and error method of diagnosis....like i'm a car. Not only should British Columbians have the choice of the type of doctor they use, they should also have the choice of treatment. Another major reason why Natural Health Care should be covered is because of their approach with addiction. I know from experience with my sister that when I worked on her pressure points, it completely alleviated withdrawal symptoms. Covering Natural Medicine would also give Traditional Medical Doctors some competition.  By linking a "one file" system for each patient, it could save a lot of time and money for the patient, doctors and our Healthcare system! It would provide a complete record of all things health related including pharmaceutical history. It could also show patterns and reveal similarities in symptoms in other patients that could lead to undiscovered treatments.                                         

Brenda Dobson
135 supporters
Started 1 month ago

Petition to Jim Reiter, Buckley Belanger, Brad Wall, Darrin Lamoureux, Nicole Sarauer, Christopher Thresher

Fund Orkambi for those fighting Cystic Fibrosis (SK)

My cousin Christie Brizinski, along with approx. 4,000 other Canadians, are living with Cystic Fibrosis (CF) which is a genetic disorder that affects multiple systems in the body, including the lungs and digestive tract. We have already lost two family members to CF, Elaine (in the attached video) and Michelle, and like so many others affected by this disease we have fervently kept hope that we will be able to experience a cure in this lifetime. The realization of this hope has appeared on the horizon, just out of reach. We need your help so that Christie, along with many other Canadians, can grasp it. A new drug, Orkambi, has proven to reduce lung infections, and further, what makes this brilliant discovery so exciting is that Orkambi actually CORRECTS the malfunction in the most common strain of CF. The sooner this can happen the better, as repeated lung infections eventually cause enough damage to necessitate lung transplant: a lengthy, highly invasive and expensive procedure which both Elaine and Michelle endured, wrestling for the remainder of their short lives with the difficult balance and harmful side effects of anti-rejection drugs, which, unfortunately, are carcinogenic. Access to Orkambi likely would greatly reduce or remove altogether the need for a transplant. For the first time ever, there is hope that Christie, and many others, could thrive into middle age, & beyond.  Health Canada recently approved this drug, but it is in the hands of the provincial governments to approve funding.  There is power in numbers. We know from experience that when we all pull together, miracles happen. On behalf of my family, especially Michelle, Elaine and our Christie whom we so cherish, Thank You from the bottom of our hearts for your support ❤️ Here is some info on our families request for support in covering Orkambi: Petition supports rare drug https://northernprideml.com/2017/07/petition-supports-rare-drug2/Beauval, Sask. woman calls on government to cover cystic fibrosis drug http://www.ckom.com/2017/08/04/sask-woman-calls-on-government-to-cover-cystic-fibrosis-drug/Can't put a price on health http://www.cbc.ca/news/canada/saskatoon/price-on-health-woman-sask-government-drug-200k-1.4228521

Charlotte Osmond
239 supporters
Update posted 2 months ago

Petition to Christy Clark, Kathleen Wynne, Eric Hoskins, John Horgan, Andrew Weaver

Fund Orkambi for those fighting Cystic Fibrosis

Dear Ms. Clark and Ms. Wynne, Imagine learning that you had a fatal disease.  Then imagine that a new treatment, capable of dramatically improving and extending your quality of life existed, but was inaccessible to you simply because of the price tag.        That is what is happening today to thousands of Canadians afflicted with Cystic Fibrosis.   One of those Canadians is our daughter Lucy.   Lucy is a beautiful, smart, funny, 4 year old who loves to skip, dance and sing.   She has Cystic Fibrosis, and tragically without the development of a cure she will eventually die from her condition.   Incredibly, there is a drug called Orkambi that can dramatically improve the quality of life for those affected with her same condition.  This drug is approved by Health Canada but unfortunately is not on the list of drugs that are covered under the provincial health plan of either province.   This is unacceptable.  We, the undersigned, immediately call upon the Governments of BC and Ontario to enter into negotiation with the maker of Orkambi, Vertex Pharmaceuticals, to bring the drug onto the provincial health plan.   Thank you in advance for your leadership in this area.  Lucy and all Canadians impacted by Cystic Fibrosis thank you!   Sincerely,  Aaron Mittler, Mary Sanagan, Molly & Lucy Mittler, and supporters.  

Aaron Mittler
12,634 supporters