Topic

Health Care

362 petitions

Update posted 9 hours ago

Petition to Biogen Idec, Michel Vounatsos, Biogen

Without Spinraza, Zahra will die

By signing this petition, you are literally saving Zahra’s life.  Zahra, a 6 years old girl, has been diagnosed with a rare disease called Spinal Muscular Atrophy ("SMA"), which is a terminal, degenerative disease, that takes away a child’s ability to walk, stand, sit, eat, breathe, and even swallow.  SMA is the most common genetic cause of infant death. HOWEVER, a new medication, SPINRAZA™ (nusinersen), not only can stop the disease, it will restore the previous degeneration. Unfortunately, Spinraza is VERY expensive, costing $750,000 USD! Without SPINRAZA™ (nusinersen), Zahra will die.  All you have to do in order to help Zahra is to simply sign this petition requesting Biogen, the company which makes SPINRAZA™, to ease Zahra's access to this medication by either reducing the price or any other way possible to save her life. Please follow Zahra on Twitter:  https://twitter.com/SaveZahraD #SaveZahra Zahra's family is working hard to save their little one, but without this drug nothing will save Zahra. To learn more about Zahra and her story please click on the link below:  http://savezahrad.ir/ Dear Biogen company, please gift Zahra the compassionate use of SPINRAZA™ (nusinersen) or at lower prices before it is too late. Please support Zahra's family so that this little girl can start her treatment as soon as possible. No kid in this world deserves to be left to gradually or eventually die. Please help saving Zahra's life.    

Ali Dehghannezhad
255,432 supporters
Update posted 16 hours ago

Petition to Mental Health America, National Institute of Mental Illness, U.S. Senate, U.S. House of Representatives, Human Rights Campaign, United States Department of Health and Human Services, United Healthcare, Health Net, The Department for Health and Social Care

Mental Health Matters

Mental health is a topic many of us choose to simply ignore, until we lose a loved one or we ourselves go through a difficult time. Our mental health is just as important as our physical health but in today's economy it is not an attainable reality for all. The objective of this petition is affordable mental health care for all regardless of social economical status. Here are some statistics coming from the National Alliance on Mental Illness (nami.org): •1 in 5 adults in America experience a mental illness. •One-half of all chronic mental illness begins by the age of 14; three-quarters by the age of 24. •16.3% Hispanic adults live with a mental health condition. •19.3% White adults live with a mental health condition. •18.6% Black adults live with a mental health condition. •13.9% Asian adults live with a mental health condition. •28.3% American Indian/Alaskan Native adults live with a mental health condition. As we can see regardless of our race or where we might live all humans can go through a point of mental illness. Sometimes we ourselves might not need the help that is offered to us but someone we know or love can make great use of amazing resources. 

Jasmin Garcia
5 supporters
Update posted 1 day ago

Petition to Tim Scott, James E. Clyburn, Jay (James) Richardson, Judge George McFaddin, 803-436-2373, Senator Tim Scott

Reverse Judge's order robbing Krista, born disabled, of human rights. #HopKristasLaw

Krista URGENTLY needs your support to live. We demand the state of SC open a full investigation of Judge McFaddin and Vinson's order and immediately reverse the order to restore Krista's right to equality and life. With your support we will win federal mandate. With you support we will bring historical change to our justice system. No one should have the right to intentionally oppress any human being, by imposing - via court order - poverty on her/him. This is exactly; however, what two SC judges did.    Cerebellar Atrophy is atrophy of the cerebellum portion of her brain, the command center for balance and motor skills. Microcephaly is tiny head and smaller brain. Krista is intellectually disabled, with accompanying diagnoses/disabilities. Near fifty percent (47.6%) of the homeless population are disabled and unable to work. That is 269,991 individuals that CAN NOT work, living without a home. Living on the streets, using shelters WHEN available. (See link below.)  Krista's story is one example of how this happens. Krista's father is an oil mogul for Exxon Mobil, yet he was ordered to pay ZERO child support for Krista. K. Richardson vs. J. Richardson State of South Carolina, County of Clarendon, Pg. 17, Line 6-16: Uh, there was, during the case, evidence presented that Krista is not capable of supporting herself. The evidence, uh, was not clear. I can not, at this point, extend child support for this child. (Judge Jerry Vinson, under direction of Chief Administrative Judge George McFaddin.) Federal, dual-state and medical documentation was presented and produced in the courtroom. Judge Vinson acknowledges that Krista can not care for herself and discusses her federal disability status.  The judges; however,  based their ruling on Krista's father simply uttering: "she's not disabled". I have been asked about Social Security. Social Security is money paid in to the S.S. system  from wage earnings. Krista was born disabled - is too young - and can NOT work; therefore can NOT make a claim for S.S. Krista's father (my former husband of 25 years) has assets totaling over 1.5 million. He owns multiple homes (including beach home) AND is president and owner of a very successful oil company (that I helped grow) with multiple locations.  Krista's father abandoned us. I filed for divorce after  learning that her father got caught up in a secret, expensive life, which included spending 1000's a month of our marital money for prostitutes, hotels, online activities, sex site memberships, phone sex, asian massage parlors, strip clubs, novelties, cosmetics, etc., etc. This happened - he admitted in court and evidence supports - for the last five -six years of our married life. However, not this nor  my husband's wealth (ours prior to hearing) mattered.... Myself (Krista's caregiver and teacher) with Bi-Lateral Meniere's and my daughter with multiple disabilities, left the courtroom with no monetary award/compensation, no asset division, no health insurance. This occurred due to Krista's father's financial status and clout in the county we resided. Less than 5% of disabled children live with a single father . Single mothers care for 24.5% of the disabled children. Judges Vinson and McFaddin not only ordered zero child support for Krista they sent me, a home school mother of a disabled child, out the door with no monetary means to care for her. Because Krista needs non-stop supervision and care and due to my deteriorating health, my ability to earn a substantial income is very limited. As all mothers in this situation, I am left with the mental, physical and financial stress of caring for beautiful Krista solo. Without appropriate support from Krista's father, Krista loses out on medical advancement opportunities/treatments, therapies, enrichment opportunities - to name a few, and if my disease continues to worsen, we do not know what the future holds. Without child support, what happens to Krista? If something happens to me, what happens to Krista? Homeless? Please sign for federal mandate providing all children born with or becoming disabled during childhood appropriate, instant/immediate, permanent child support. Full investigation of the case and reverse and remand  McFaddin's order violating Krista's civil and human rights - her right to live. Help bring change to a faulty - often purchased - judicial and family court system. Help us #HopKristasLaw (Twitter) HopKristasLaw.com We are on: #IGiveAHop #HopKristasLaw - Twitter https://youtu.be/_ZJnkGKiej8 http://www.theitem.com/stories/kto-night-for-children-with-differences,4078 http://frontsteps.org/u-s-homelessness-facts/ http://www.nbcnews.com/id/13857062/ns/health-childrens_health/t/more-disabled-kids-living-single-women/  

Karola Richardson
531 supporters
Update posted 2 days ago

Petition to Claire McCaskill, Jill Schupp, Gary Romine, U.S. Senate, Roy Blunt, Dan Brown, Mike Cierpiot, Sandy Crawford, Mike Cunningham, S. Kiki Curls, Bill Eigel, Jason Holsman, Denny Hoskins, Jacob W Hummel, Andrew Koenig, Doug Libla, Brian Munzlinger, Jamilah Nasheed, Bob Onder, Ron Richard, Jeanie Riddle, John Joseph Rizzo, Caleb Rowden, David Cameron MP, Rob Schaaf, Dave Schatz, Scott Sifton, Wayne Wallingford, Jay Wasson, Paul Wieland, Richard C. Shelby, Doug Jones, Lisa Murkowski, Dan Sullivan, John McCain, Jeff Flake, John Boozman, Tom Cotton, DIane Feinstein, Kamala D. Harris, Michael F. Bennet, Cory Gardner, Richard Blumenthal, Chris Murphy, Thomas R. Carper, Christopher A. Coons, Bill Nelson, Marco Rubio, Johnny Isakson, David Perdue, Brian Schatz, Mazie K. Hirono, Mike Crapo, James E. Risch, Richard J. Durbin, Tammy Duckworth, Joe Donnelly, Todd Young, Chuck Grassley, Joni Ernst, Pat Roberts, Jerry Moran, Mitch McConnell, Rand Paul, Bill Cassidy, John F. Kennedy, Susan M. Collins, Angus S. King Jr., Benjamin L. Cardin, Chris Van Hollen, Elizabeth Warren, Ed Markey, Debbie Stabenow, Gary C. Peters, Amy Klobuchar, Tina Smith, Roger F. Wicker, Cindy Hyde-Smith, Jon Tester, Steve Daines, Deb Fischer, Benjamin Sasse, Dean Heller, Catherine Cortez Masto, Jeanne Shaheen, Margaret Wood Hassan, Robert Menendez, Cory A. Booker, Tom Udall, Martin Heinrich, Charles E. Schumer, Kirsten E. Gillibrand, Richard Burr, Thom Tillis, John Hoeven, Heidi Heitkamp, Sherrod Brown, Rob Portman, James Inhofe, Ron Wyden, Jeff Merkley, Robert Casey, Pat Toomey, Jack Reed, Sheldon whitehouse, Lindsey Graham, Tim Scott, John Thune, Mike Rounds, Lamar Alexander, Bob Corker, John Cornyn, Ted Cruz, Orrin G. Hatch, Mike Lee, Patrick J. Leahy, Bernie Sanders, Mark Warner, Tim Kaine, Patty Murray, Maria Cantwell, Joe Manchin III, Shelley Moore Capito, Ron Johnson, Tammy Baldwin, Michael B. Enzi, John Barrasso, President of the United States, Maria Chappelle-Nadal, Ann Wagner

Stop Forcing Mail Order Pharmacy as Only Choice of Coverage & Monitor Package Temperature

My son, received a life saving liver transplant at the age of 2. His life depends on the potency and effectiveness of chemotherapy/immune suppression medications to prevent his body's immune system from fighting off his transplanted liver. In the past mail order delivered his liquid oral medications in nothing but a plastic envelope on a 102 degree day on a hot enclosed not temperature controlled UPS truck. Shortly after, he went into liver rejection which could have resulted in complete liver failure or death. I speculated that the medication could have been too weak after the delivery of medications in high heat. I vowed to never again risk his life with mail order pharmacy. Recently, we were mandated/forced to only use mail order pharmacy in order to receive coverage for his life-saving medications. Hesitant, I begged for an ice pack. The package arrived in only a bag on an about 90 degree day again without an ice pack. The hot non-temperature controlled enclosed delivery truck can reach temperatures up to 170 degrees. His labs elevated again afterward. My son wants to know, "Why would they do that?" I contacted the manufacturer, who does all of the testings for my son drugs who stated that both of my son's medications should be discarded and considered less potent once stored above 86 degrees as higher temperatures and freezing could result in lower potency. I also found out that liquid medication is the most harmed by the mishandling of medications outside of the manufactures temperature storage guidelines.  I contacted the mail order pharmacy who refused to replace or take back the medication. They said the law & USP Pharmacopoeia allows them to ship up to 104 degrees, although the manufacturer states it is not proven safe at these temperatures. However, I have received communication from USP Pharmacopoeia who writes the guidelines for storage and they also said that the mail order pharmacy should follow the manufacturer's guidelines of 59-86 degrees for storage. I contacted the FDA, who states that the mail order pharmacy should be using the manufacturer's guidelines that have been proven safe.. However, since the mail order pharmacies are regulated loosely by the State Board of Pharmacy, not the FDA there was nothing that the FDA could do.  Since starting this petition, I connected with another petitioner for air conditioning of the back of UPS trucks as the trucks are not temperature controlled. Her husband went into renal failure, because the UPS trucks are hot and enclosed and temperatures reach up to 170 degrees. It's like walking into a low temp oven. When the temperatures of the outside are colder than your freezer, I'm not sure how cold the trucks are but I'm certain mailboxes and doorsteps can get in negative temperatures.  I made over 30 calls to the insurance company begging for them to please let us pick my son's medications up at the local pharmacy at which they are filled. My son's physician wrote a note/appeal as his transplant team has stated that they have tried to voice their concerns about this issue with their pediatric/child patients and no one is listening! The insurance company still denied the doctor's appeal for us to pick up my son's medications in the safest way. It was not until the Media became evolved that the insurance company budged.  I felt helpless and have united with many other pharmacists, physicians, patients, mothers and fathers, and caregivers who feel the same way. Helpless. Mail order of prescription drugs should be a choice not the only option of coverage. Mandatory mail order programs from all plan types (INCLUDING the plans that are regulated by ERISA) needs to cease until mail order pharmacies are forced to store and monitor medications during their deliveries at the temperatures tested and proven safe by the manufacturer. I would never put my son's medications in a hot non-temperature controlled environment, and shouldn't be forced to only use this option in order to get coverage for his life-saving medications. Mail order pharmacies may appear to save money, but when my son ended up in the hospital after taking medications that could have been compromised by having lower potency, the cost of the rejection was thousands of dollars. If his liver would have fully failed, the cost of his liver transplant for just 5 days (he was in the hospital for 5 weeks) was over $1,000,000. The lax regulation and oversight may save money on prescription drug plans but may come at an increased cost to the health plan itself. Also, keep in mind the endless waste of medications that automatically are sent regardless of whether or not patients need them. Also, people with chronic, complex conditions, should always have the option of face to face interaction with a pharmacist who knows their complex needs and medical history. The pharmacist and patient relationship is crucial to the successful outcome of the patient's overall health. Taking this away is harmful to patients and be more costly to our already stressed healthcare system. Since starting the petition, many have also stated that they experience life-threatening delays in receiving their prescriptions. Medications get lost, stolen, people are going days without medications that their life depends on. Only allowing mail-order pharmacy for coverage is unethical and irresponsible.  Another important fact. Mandatory mail order programs are discriminatory. It is estimated that 40% of our homeless are disabled. How is mandatory mail order fair and working for them as they may not have an address and not even know where they will be from day to day? It is crucial that All plans should include true fair coverage and reimbursements of our pharmacist.  Please help! We need legislation to protect all patients by ending the mandatory mail order pharmacy coverage in every type of plan offered in the nation.  We need your help to make mandatory mail order an option, not a mandate.    YOUR URGENT SUPPORT WILL SAVE LIVES! THANK YOU!!

Loretta Boesing
77,628 supporters