Topic

Health Care

353 petitions

Update posted 4 hours ago

Petition to Vertex CEO Jeffrey M. Leiden

Stop price gouging our charity-funded drugs

My life changed for the better the second my son Eli entered my world. But shortly after his birth, we learned that Eli had cystic fibrosis, a fatal genetic lung disease. Without the right drugs, his life could be cut drastically short. So when I found out Vertex Pharmaceuticals had finally developed two Cystic Fibrosis drugs that could help extend his life, I was thrilled. But then I heard their price tags -- the cheapest one costs $286,000 a year. I was dumbstruck. How could my family -- how could any family, for that matter -- ever afford them? What’s worse -- supporters of the Cystic Fibrosis Foundation (CFF), like myself, have donated more than $75 million dollars to Vertex to fund its development research. We thought it was a partnership. We thought we were working toward the same goal -- to find a cure for a deadly disease. But I, like others who had been praying for these types of drugs, now feel betrayed. I am asking Vertex CEO Jeffrey Leiden to reconsider these unconscionable prices for drugs literally developed on the backs of the patients they claim to want to help. Vertex would not have discovered these drugs if not for the help of the CFF and others who cared about finding a cure. But now they have turned around and decided to charge more than the cost of a house for just one year’s prescription of this potentially life-saving medication. I am not the only one crying foul. In fact, a group of prominent cystic fibrosis doctors are urging Vertex to stop its “egregious” pricing. These drugs have the potential to treat tens of thousands of people, but they are priced for millionaires, people like Vertex CEO Jeffrey Leiden who earned almost $46 million dollars last year.   We are grateful to Vertex for creating invaluable medicine that will help our loved ones live longer, more fulfilling lives. But if we cannot afford it, it's as if it doesn’t exist at all. These prices strain taxpayers and the healthcare system, keep drugs completely out of the hands of those suffering from CF in developing nations and hold the potential to bankrupt families. It’s time for Vertex to switch to common sense pricing so that we can all have a chance at a healthy life. Please consider signing my petition on behalf of my son, Eli, and the up to 100,000 people around the world who share his lethal illness. And please share and urge your friends to sign through social media. Thank you, Juliana KeepingJournalist, blogger and momwww.hithisiseli.com@hithisiseli

Juliana K
130,092 supporters
Update posted 5 hours ago

Petition to Senator Mitch McConnell and Senator Charles Schumer

Real people NEED The ACA-Obamacare. Don't play politics with people's health and lives.

My wife has pre existing conditions. Before the blessing that is Obamacare came along, because of those life altering pre existing  conditions, we were only able to afford a health insurance policy that had a $10,000 deductible at a very high monthly premium. She couldn't afford to see doctors regularly and her health deteriorated.  I remember counting the days to Obamacare and spending most of the night, and many frustrating days following, struggling to sign up, and once we did, the smile on my wife's face, the sigh of relief that she too can see a doctor, and there was hope. I remember tears of relief and hope. We celebrated the peace of mind this brought us with a hug, a smile and a good nights sleep.  Today, there are tears again, fear instead of hope, anxiety instead of peace of mind, worries and sleepless nights (it is 3:42 am as I write this).  I hear politicians exclaiming, speaking indignantly, waving their fists and wagging their tounges all preaching about what will happen when 25,000,000 get cut and have no insurance, the outcry there will be.....well, we are those 25,000,000, we are each a human being , not a number. You know us, we are your family member, your neighbor, your Uber driver, your friend, your classmate from years ago, your acquaintance of today.... STOP using our plights for political fodder and for so much fist waving and speechifying!  STOP being resigned to the fact that there are not enough Democrats in the  Senate to stop this lunacy and reach out to Republican Senators who are thinking individuals and STOP the insanity! Senators McConnel and Schumer, do the hard work that is your job and that you know how  to do so well and make it known that this end of Obamacare tragedy and travesty will NOT happen. Don't let us suffer with anxiety and sleepless nights and worse ! For my wife, who is asleep as I write this while I am up worrying about her health and healthcare, for all of us , each one of us, real people - not numbers, DON'T wait to see and hear the outcry when 25,000,000 are left without insurance! Do the hard work of bringing sanity back now.  Our health, and our healthcare is not, and should not be a partisan issue! DON'T LEAVE 25,000,000 PEOPLE WITHOUT HEALTH INSURANCE TO SEE WHAT HAPPENS. SAVE OBAMACARE/ The Affordable Care Act! PS:  If you say there will be insurance available for those with pre existing conditions, you know that premiums  for those with any pre existing condition will  go back to being astronomically expensive and unaffordable and high risk pools are either unavailable, most don't meet criteria eligibility, and those that do see high costs and even higher deductibles.   

Harold Jacobs
87,046 supporters