Petition to Mr. Alex Gorsky CEO of Johnson and Johnson
Johnson and Johnson: Lower the price for life-saving cancer drug IMBRUVICA
My name is Beth. My mom is fighting a rare cancer that requires her to take a drug called Imbruvica. The drug is highly effective – and extremely expensive. A year’s treatment can cost over $130,000. That’s why I started this petition to demand that Johnson and Johnson (JNJ) stop price-gouging patients who rely on Imbruvica to live. Upon gaining FDA approval, JNJ raised the price for Imbruvica to over $90 per pill. In the years since, they’ve reported that sales of Imbruvica have soared. Yearly sales of the drug are projected to reach $7.5 billion by 2022. Those are great numbers for Wall Street investors – not so great for patients struggling to pay for the drug to fight their blood cancers. Critics say the price hikes are happening because companies like Johnson and Johnson hope to rake in the profits before Congress or some regulatory body takes action to stop them. Until then, patients across the U.S. will continue to be taken advantage of by corporations that appear to care nothing for people and only for profit. We need to stand up and speak out for patients whose lives are at stake. Please sign and share this petition calling on Johnson and Johnson to immediately lower the price of Imbruvica to match the lowest global market price. It is unconscionable to allow them to continue doing otherwise.
Petition to UPMC Health Plan
UPMC Health Plan: Stop Denying Medical Access and Care
My name is Rachel and I am in desperate need of treatment for a rare connective-tissue disorder — I’m losing the ability to use my hands. Yet, my insurance refuses to cover seeing a specialist. I need your support to get the treatment I need. I’m a board-licensed pediatric psychologist working with the University of Pittsburgh Medical Center (UPMC). Right now, I’m fighting to get needed specialist treatment. UPMC doesn’t have qualified health providers within their network to treat my disorder – yet they won’t cover out-of-network treatment either. I’ve been passed among 12 different Neurosurgeons within the UPMC network in the past year – none of whom have significant experience in connective tissue disorders. My current UPMC neurosurgeon has written directly to the company recommending that I be examined by a specialist in my particular disorder – because there is no one in-network who can properly evaluate me and my condition. This lack of experience among UPMC providers with my particular disorder led to a misdiagnosis which resulted in my having an artery dissection at age 32. Still, my treatment requests are routinely denied by the health plan – forcing me to undertake months of appeals to overturn denials for even a simple MRI. Bottom line, my health is deteriorating. I now have a swollen spinal cord from compression. Despite the threats and retaliation I’ve received for challenging the company on this coverage issue, I started this petition. I simply don’t have many more months to waste on more delays, deferrals, and denials from UPMC. Please sign my petition calling on UPMC to allow me to seek qualified, specialized out-of-network care for my rare disorder today.
Petition to Paul Ryan
Restore CHIP! Children’s Healthcare Insurance Program
Nine million children across the U.S. are at risk of losing access to health care due to Congress’s failure to reauthorize the Children’s Health Insurance Program (CHIP). The program has attracted broad bipartisan support and is credited with providing almost universal healthcare for children in the U.S. Since 1997, CHIP has provided health care access for working families with children who earn too much to qualify for Medicaid. Congress let funding authorization for CHIP expire on September 30 — now millions of children could lose their healthcare if they don’t act. Tell Congress the time to reauthorize CHIP is now. If Congress fails to act, all fifty states will be out of CHIP money by July 2018. American families deserve better than this completely avoidable outcome. Children across the country are depending on people like you to stand up and speak out on their behalf. Tell Congress to take action to reauthorize and restore needed funding for CHIP. Please add your name to tell our representatives to act and save health care access for nine million kids and their hard-working families.
Petition to Department of Veterans Affairs
Help Veteran with Cancer Caused by Serving our Country Receive VA Benefits
Our family friend, Dan Parks, is a U.S. Navy veteran that fought throat cancer. He was discharged from the military, partially, to end his exposure to ionizing radiation during his work in a weapons and ammunition facility. The Department of Veterans Affairs (VA) is denying his claim for disability benefits – despite letters from the VA’s own doctors stating that Dan’s exposure likely caused his cancer. Dan needs your help to get the VA to change their decision before it’s too late. Dan was stationed at Naval Submarine Base New London, where he worked with ordinance. During his time at the base, he was also exposed to ionized radiation. Fast-forward a few decades later and has Dan suffered from throat cancer. He now has to plug a hole in his throat to talk; a side effect of the cancer. Dan’s discharge paperwork from the Navy includes a stamp saying he was being discharged, in part, due to the radiation exposure. Multiple doctors with the VA have written letters saying there is a better than even chance that the cancer was caused by Dan’s radiation exposure during his time in the Navy. But the VA has denied his disability claim. The reason? They say there’s no proof he was exposed to radiation in the Navy. As Dan says, “If the VA won’t accept their own doctors, where does a veteran turn?” Dan’s been fighting for benefits for three years. He filed an appeal, but the VA won’t review it for another 18 months. Time is running out. He needs access to life-saving treatment before it’s too late. Please sign this petition calling on the VA to accept their own doctors’ assessments and grant Dan Parks needed health benefits due to the radiation exposure he endured while serving our country.
Petition to Senator Mitch McConnell and Senator Charles Schumer
Real people NEED The ACA-Obamacare. Don't play politics with people's health and lives.
****UPDATE**** 10/30/2017. My wife received her 2018 ACA insurance plan renewal proposal today. Her proposed premium has gone from $459.17 per month to $1,187.45 per month. For the first time in her life, it seems she may not be able to afford health insurance. This increase is just Insane! STOP playing politics with peoples lives!!! ********************************************************************************************************** My wife has pre existing conditions. Before the blessing that is Obamacare came along, because of those life altering pre existing conditions, we were only able to afford a health insurance policy that had a $10,000 deductible at a very high monthly premium. She couldn't afford to see doctors regularly and her health deteriorated. I remember counting the days to Obamacare and spending most of the night, and many frustrating days following, struggling to sign up, and once we did, the smile on my wife's face, the sigh of relief that she too can see a doctor, and there was hope. I remember tears of relief and hope. We celebrated the peace of mind this brought us with a hug, a smile and a good nights sleep. Today, there are tears again, fear instead of hope, anxiety instead of peace of mind, worries and sleepless nights (it is 3:42 am as I write this). I hear politicians exclaiming, speaking indignantly, waving their fists and wagging their tounges all preaching about what will happen when 25,000,000 get cut and have no insurance, the outcry there will be.....well, we are those 25,000,000, we are each a human being , not a number. You know us, we are your family member, your neighbor, your Uber driver, your friend, your classmate from years ago, your acquaintance of today.... STOP using our plights for political fodder and for so much fist waving and speechifying! STOP being resigned to the fact that there are not enough Democrats in the Senate to stop this lunacy and reach out to Republican Senators who are thinking individuals and STOP the insanity! Senators McConnel and Schumer, do the hard work that is your job and that you know how to do so well and make it known that this end of Obamacare tragedy and travesty will NOT happen. Don't let us suffer with anxiety and sleepless nights and worse ! For my wife, who is asleep as I write this while I am up worrying about her health and healthcare, for all of us , each one of us, real people - not numbers, DON'T wait to see and hear the outcry when 25,000,000 are left without insurance! Do the hard work of bringing sanity back now. Our health, and our healthcare is not, and should not be a partisan issue! DON'T LEAVE 25,000,000 PEOPLE WITHOUT HEALTH INSURANCE TO SEE WHAT HAPPENS. SAVE OBAMACARE/ The Affordable Care Act! PS: If you say there will be insurance available for those with pre existing conditions, you know that premiums for those with any pre existing condition will go back to being astronomically expensive and unaffordable and high risk pools are either unavailable, most don't meet criteria eligibility, and those that do see high costs and even higher deductibles.
Petition to Anthem
Anthem: Reimburse Augusta Health at rates comparable to other local hospitals
Anthem has admitted that they have paid Augusta Health at lower rates than other hospitals in the region for years. Now, we are being forced out of the Anthem network by their unwillingness to pay us fairly. We need fair rates in order to pay our physicians and staff, invest in medical equipment, and expand our clinical expertise to match the needs of our community. Without fair rates it becomes more difficult to expand services or even just to maintain what we have. Shouldn't everyone in our community have access to care at Augusta Health? Augusta Health is proud to be the high-quality low-cost responsible provider that you depend on for exceptional service. Our clinical quality has been nationally recognized. Our costs are among the lowest in the region. We work hard every day to bring value to the community through excellent care at reasonable cost. We've been the primary source of care for over 70 years to the residents of Augusta County, Staunton, and Waynesboro. We also care for lives in Rockbridge, Bath, and Highland counties. Collectively, 200,000 people rely on having access to Augusta Health services. While it would be easy to accept low market rates this is not in the best interest of Augusta Health or you. We must stand up for what is right in our community. Stand with us.
Petition to Kaiser Permanente Northwest Regional Department of Psychiatry
Kaiser Permanente needs to cover all proven treatments for depression, including ketamine.
I am among the millions in this country suffering from clinical depression. About 40% of us are not helped by any of the currently available medications and other strategies. There IS a cost-conscious treatment available that helps 75% of us nonresponders, a group of people who have suffered tremendously for years, often decades. We have lost relationships, family, vocations, financial independence, social contacts, and self respect. We commit suicide with alarming frequency - 20% rare for bipolar2 patients. That breakthrough treatment is ketamine, an FDA-approved medication that has been around for decades as an anesthetic, and more recently has been shown in trial after trial to help the majority of the 40% of depressives that have not responded to available meds. Ketamine is not readily available for several reasons. First it is not FDA-approved for depression per see. It is legally being used off label in this setting. In this situation, medicare and most insurers refuse to cover it. The problem is that getting FDA approval for a generic medication does not happen. Who is going to pay the bill? To accomplish this for a new drug requires huge amounts of capital to fund three phases of clinical trials in human subjects. With off label ketamine, not ain't gonna happen. This is partly because drug companies are pouring billions into research trying to synthesize knock-off drugs that may be as effective but are patentable and thus are potential goldmines. This goal remains years away. The second reason ketamine is so slow to become adapted is that it is used as an illegal hallucinogenic party group, so it has potential for abuse. Well, we still prescribe opioids, lots of them, so that objection is rather weak. We sufferers desperately need what is available now: IV ketanime. Mayo Clinic, Cleveland Clinic and even Kaiser Permanente in the Bay Area have successfully introduced ketamine into their practices for the treatment of severe depression. It needs to be covered by heath insurers throughout the country, but especially by Kaiser-Permanente in Oregon and Washington when their colleagues 500 miles south are enthusiastically reporting fabulous results. Setting up a similar program in Oregon could be done practically over a weekend. Yet they refuse to take the time to have a rational discussion about ketamine with me, one of their retired physicians .
Petition to Terry McAuliffe, Donald Trump, Mark Warner, Tim Kaine, Barbara Comstock, Mark R. Herr
Prevent Hospitals from Seeking Guardianship As Means 2 Override Patient Rights
Anastasia on Facebook I used to think all the talk about "murder boards" in hospitals was a fallacy. However based on recent family events sadly they are true. Currently there is not a law that prevents hospitals from seeking guardianship as a means to override a patients rights to dispute discharge or treatment decisions. While there are specific instances where taking guardianship of a patient is not only advisable but is absolutely necessary when life is threatened, such as in the case of minors who need a life saving treatment but the parents refuse to allow it due to personal values or religious beliefs; however even those instances should be few and far between. Instances like those that have happened to our family the last few weeks, where a parent, family member who holds a legally executed power of attorney and stands 'in loco parentis' for an incapacitated family member can have their powers summarily and arbitrarily suspended or terminated because they disagree with a hospitals decision not to treat a condition because a doctor perceives the patient has no quality of life because they suffer from a brain injury and feels the person "would not want to live that way" should never happen! Quality of life is something that cannot possibly be known or measured with the limited and superficial contact that occurs in a hospital setting and is something best left to the patient and those closest to them. To have strangers come in and forcibly tear you from your loved ones, to abduct your person, because that is exactly what this is - an abduction - is terrifying for a person with a brain injury and other such patients. It is terrifying for an incapacitated person who has relied heavily on and whose life, happiness and well-being has depended on a family member that it is so inextricably intertwined it is impossible to separate one existence from the other without creating great psychological and emotional harm and trauma. I can say this because I have had to watch my sister whimper and cry out in fear since guardianship of her was awarded to Inova Fairfax Hospital appointed guardians. I have had to watch the expression of fear on her face while being told lawyers would now be her guardians and that I no longer had control over where she lived, who would be caring for her, what medications she could or could not be given, or treatments she would or would receive. I did not and could not tell her these same two lawyers also had the authority to place her in clinical trials, and had the authority to dispose of her remains how they saw fit. When Inova Fairfax Hospital appointed guardians removed her from the hospital without notifying a single family member I had to watch the expression on sadness and bewilderment at seemingly having been abandoned when I walked in six hours later because it took our Virgnia State Delegate making calls to locate her because Inova had ordered their nursing staff to not give me any health information, just as they chosen to ignore my power of attorney before we went to court. I have had to watch her being over medicated and suffering while her guardians were missing in action because they signed papers to have her sent to a substandard nursing facility and then went out of town for several days. I have had to physically clamp off my sisters feeding tube to prevent her from being given three sedating medications directly after giving her morphine because a nurse said she could not give my sister her regular medications when she would normally get them because their “protocol” only allowed them to give her medication at 9:00am, 1:00pm, and 5:00pm. Which means she was receiving a massive dose of 600mg of Neurontin, 2mg of Klonopin, and 10mg of Ambien on top of morphine in an 8 hour period! Now maybe it’s just me, but you do not administer those medications, at those doses to a 5’2” 108lb female unless you are trying to put her into a coma or kill her. Stand with our family if you believe this is egregious and sign our petition to not only stop Inova Fairfax Hospital from killing or intentionally putting our sister in danger and to STEP ASIDE and let Anastasia's family care for her as they always have done; but to have legislation put in place to prevent this from every happening to anyone else's child or loved one every again!! Here is is a link to the meeting with Kelly Armstrong, PhD and the Inova Fairfax Casemanagement team. https://youtu.be/VxMFP-o-p6U