351 petitions

Started 2 days ago

Petition to Hon. Paul Fletcher MP

Hard to Swallow: NDIS funding cuts leave Ellen at risk of choking.

Sign our petition to get the NDIS to fund vital swallowing therapy. Ellen is 20 years old and has a swallowing disorder called dysphagia. This means she can be at risk of choking or even dying when she swallows. Up until last year she got good specialist therapeutic support for her swallowing problems but the NDIS decided to stop funding this support in 2017. Ellen’s Mum Margaret knows how much better it was for Ellen and the family when these specialist therapeutic supports were funded. “Before the NDIS came …we had all these therapies – speech therapy, OT [occupational therapy] – now the funding is cut. The problem with the new NDIS program is that they think we don’t need things like therapists, OT, physio. We need them… We need them massively included in the NDIS package.”   Without this support, every mealtime becomes an everyday emergency for Ellen.  The NDIS has the funds for the specialist swallowing therapy that Ellen needs. But the NDIS is now saying it’s not responsible. The NDIS says the health system should fund swallowing therapy. The problem is that the health system does not have the skills to do so, nor does it have the funds – all the NSW disability funding went to the NDIS. The NDIS has got it wrong and this is dangerous for people with disability. Ellen needs these supports in her NDIS package but the NDIS won’t fund them. This has left Ellen’s Mum, Margaret with no other option than to take the NDIS to court. It shouldn’t be like this. Ellen and her family should be provided with the same supports they had before the NDIS was introduced. We are asking new Australian Families and Social Services Minister Paul Fletcher to please resolve this problem and confirm that the NDIS will fund this vital swallowing therapy.  For more information about dysphagia and the NDIS, visit our website.

NSW Council for Intellectual Disability
1,805 supporters
Update posted 3 days ago

Petition to SUSAN LEY MINISTER FOR HEALTH,, Michaelia Cash MINISTER FOR WOMEN,, Erin Brochovich, Australian Government


My story is a lot like many other women's who have used the mirena contraceptive many and sometimes major health complcations during and after the use of mirena. I was healthy and after having mirena I slowly started to get sicker there following are the issues I have experiences in 4.5years that I have had mirena that's doctors refuse to acknowledge are linked but I believe are this is why Australia needs to protect its women by thoroughly investigating this matter by issues over past 4.5years as follows : -body aches for me mainly ribs,stomach,hips -anxiety attacks/panic attacks -weight gain -mood swings -bloating/cramping -ringing in ear -tingling limbs -heart papiltations -shortness of breath -Polocystic ovarian syndrome -uterus infection -imbedding of mirena into uterus wall -seizures (later diagonised epilepsy)   these are so far all the side effects I have experienced since having the mirena I don't think its a coincidence and I believe women should be given all the facts not just told how fantastic this contraceptive is there are women that have reported many more worse side effects including dieing from blood clots that are linked to the mirena yet doctors fail to mention that this contraceptive has the potential to kill you or limit your life. I want everyone to know the risks so they can make an educated choice my doctor did not inform me of any risks just said how fantastic this was and now i'm living with the choice of using this contraceptive and still awaiting a specialist in order to remove this poison from my body please I ask of any one in power investigate this please do not risk any more women's life's. I cannot change what has happened to me but I hope that I can at least try and prevent any other women from suffering. My journey is still continuing and will update if any other health issues are found as a result of further tests. Just note I did go back and forth to doctors in the past 4.5years and had random blood,urine and internals done and was made to feel crazy until the last week before diagnoses when my body finally started to give up the fight and I had a major seizure, if you are on mirena and feel abnormal please don't ignore and get the mirena out asap.    

Jodie Rowsell
599 supporters