327 petitions

Update posted 18 hours ago

Petition to Bill Shorten, Barnaby Joyce, Malcolm Turnbull, Senator Fiona Nash, - All Australian Parliamentary Representatives, Senator Richard Di Natalie, The Hon Barnaby Joyce MP, The Hon Bill Shorten MP, The Hon Julie Biishop MP, The Hon Tanya Plibersek, Senator Deborah O'Neill, Mr Steve Irons MP, The Hon Malcolm Turnbull, Senator Larissa Waters, Kerri Cassidy, Peter Sullivan, Senator David Bushby, Hon Greg Hunt MP

People with Multiple Sclerosis need access to Cardiovascular Screening

Dear Australian Health Minister and all Elected Representatives An Open Letter We are people living with a Multiple Sclerosis diagnosis. In recent times researchers have cautioned that there is a high incidence of (undetected) cardiovascular disorders in people diagnosed with this condition – left undetected they warn that such incomplete diagnoses not only causes patients potential harm but cost health care systems (including governments) untold millions of dollars a year. Cost/benefit factors are highlighted at; . Australia is no exception..Large population studies confirm significant associations between the most common multiple sclerosis symptoms and vascular irregularities. . Potential Harm to Patients Delayed or potentially incomplete diagnoses not only means that we may be getting expensive and potentially harmful treatments we don't need, but we are also not getting the appropriate treatment for the conditions we may have. Many in the Australian MS community are currently in this position. This situation is compounded because of extremely limited access to relevant and comprehensive independent cardiovascular assessment procedures..  Informed Patient Centred Decision Making is impeded. Without such access many of us are not able, in conjunction with our medical advisors, to make informed decisions about possible treatment options. While this situation has been highlighted in the Australian Parliament on several occasions over the past 5 years – it is yet to be translated into policies and programs that effectively address what has become a very unhealthy situation.. Patient Centred Feedback is Vital Feedback (since 2011) from more than 3,000 Australian families, friends, carers and service providers has inspired the development of this Open Letter (more than 800 since April 2016). How your Voice can be Better Heard Here is the  message that we all need to convey to our individual parliamentary representatives requesting confirmation of their position and that of their party. Please download and amend to highlight your specific circumstances. Draft Policies are on the Table During March 2016 two of Australia’s widely recognised consumer focused Multiple Sclerosis organisations (the Multiple Sclerosis Network of Care Australia and CCSVI Australia) jointly wrote to the Leaders of all Australian Political Parties on our behalf seeking clarification of each Party’s policy position on this matter. They specifically sought the bipartisan support of the Parliament ‘’to assist in accelerating the processes whereby what is being learnt regarding cardiovascular irregularities and MS is better translated into benefits for patients and reduced government outlays’’ Details of broadly based recommended policies and programs were also referenced, Acknowledgement by Australian Government On 29 June 2016 the substance of these representations was acknowledged by the Australian Coalition Government - while much more is needed this should be an important step in the right direction Kerri Cassidy wins important Australian Award In December 2016 Judges said ''We are thrilled to announce that CCSVI Australia CEO, Kerri Cassidy, is the winner of the 2016 Award for Excellence in Justice and Rights Protection - for her long-term commitment to promoting justice and rights protection for people with disability. This is a reflection of her work in raising awareness and calling for equitable access to treatment for Chronic Cerebrospinal Venous Insufficiency (CCSVI) for people with Multiple Sclerosis. Kerri has demonstrated her determination and commitment to raising awareness about the need for justice and rights protection of people with Multiple Sclerosis (MS) through the equitable access to Chronic Cerebro Spinal Venous Insufficiency (CCSVI) treatment” IFurther Important Warning Bells A study of 140,020 people - 23,382 with MS and a matched control group of 116,638 - confirmed our concerns that the prevalence of other chronic conditions (including cardiovascular conditions) may be common in people newly diagnosed with multiple sclerosis (MS). While the scope of this study does not appear to include chronic cerebro spinal vascular insufficiency (CCSVI) it does ring important warning bells. Separate research identifies up to 80% of the MS population as having CCSVI related comorbidities - adding even greater weight to our concerns about underlying cardiovascular disease Drawing a Line in the Sand Since the early 1990's neurologists have underpinned the management of Multiple Sclerosis on the belief that it is strongly associated with an overactive immune system. Treatment invariably involves''dampening down'' the immune system via a diverse range of immuno suppressant drugs. The global market for these drugs is approaching $20 billion p.a. - much of which is achieved through government subsidies. The highly respected National MS Society (USA) drew an important line in the sand in relation to these drugs when it said ''there are FDA-approved therapies that can impact the underlying disease course in people with the more common forms of MS. However, none of these can stop progression or reverse the damage to restore function". The over-riding Issues The over-riding CCSVI issues are about Access and Protecting the Vulnerable.- see Your Commitment is Important to Us We would greatly appreciate your bipartisan support in progressing what is a very ‘’unhealthy’’ situation. Yours SincerelyYour Constituents This Open Letter is facilitated byPeter Sullivan and Kerri Cassidy, on behalf ofCCSVI Australia Reference GroupPO Box 10, Blackburn, VIC, 3130 Email For some further insightful commentary by Kerri see

Multiple Sclerosis Network of Care Australia
1,011 supporters
Update posted 2 days ago

Petition to Catherine King, Greg Hunt MP, Malcolm Turnbull, Malcolm Turnbull MP

Tell the government to fund the care that Midwives give newborns. Qualify Our Babies!

As it stands today babies born in hospital in Australia are admitted as patients but the hospital does not receive any funding for their care.  This is based on the premise that they will be cared for by their mother.  Many babies born in tertiary/high risk hospitals though, will need specialised observations, investigations and treatment that can only be provided by Registered Midwives or Registered Nurses.  Blood glucose monitoring for babies of mothers with diabetes, IV antibiotics, neonatal medications, blood tests, phototherapy for jaundice, specialised observations for sepsis risk/meconium aspiration/drug withdrawal are all common in high risk hospital environments.  And becoming more and more so.  These tasks have been added to the workloads of Midwives over the years, and with the growing number of women with complicated pregnancies the workloads are becoming increasingly unmanageable.  Midwives are are expected to care for the same number of women as always, but the babies don’t count in their patient load. This needs to change now. These babies need to be recognised as patients in their own right and funded as such.   Midwives need time to provide these additional cares to the babies without compromising their ability to provide care for women’s physical, psychological and emotional health as they adjust to motherhood and recover from the birth of their baby.  We need to provide important breastfeeding support, newborn care education, safety education, discharge planning etc. We want the government to change the way babies are classified in tertiary hospitals when they are born to mothers with high risk pregnancy complications. My letter to the health ministers explains in more detail what and why we need change to happen now.  I am hoping for a response to that and to this petition ASAP. Maybe by the time International day of the Midwife arrives in May we can get this through. We need parents and parents-to-be to partner with us. Please add your voice to our cause and sign the petition. The change has to come from the federal health department, which is why this petition is directed to the Minister and Shadow Minister for Health.    

Kelly-Anne Grace
19,854 supporters
Update posted 6 days ago

Petition to Australian Government

Scrap the UNhealthy Star Food Rating System

In 2014, the Government approved a voluntary Health Star Rating System ( for food manufacturers and companies to use on their products. The Health Star Rating System ranges from ½ a star to 5 stars, and was designed to help consumers make healthier choices. Recent news media has outlined some issues with this star rating system, but the big problem comes in the form of food manufacturers and companies calculating the star rating on their own food products.  This self-regulation poses a big problem in accuracy and accountability, is misleading, and creates confusion for consumers. As an example, Nestle’s Milo markets itself with a 4.5 Health Star Rating. On closer inspection, Nestle has been allowed to manipulate the calculation by adding an ‘optional ingredient’, which in this case is skim milk. Without skim milk, Milo’s rating would be just 1.5 stars. Further to this, the calculation should be based on current food science and knowledge. While sugar is now a criterion - which is a positive step - unfortunately the rest of the criteria does not establish how 'healthy' a food like product really is.  There are many studies that are now showing that saturated fat and cholesterol should no longer be feared and are actually an excellent, protective and necessary part of the diet to support cellular health, brain function, sexual and reproductive function, the immune system and many other important physiological functions in the body (when used sensibly and as part of balanced overall food intake). Some studies to note If you agree that food manufacturers and companies should no longer have the power to self-regulate this health rating calculation, sign Jessie Reimers’ (Facebook / Instagram @getafreshstart / Twitter @jessiereimers) petition.  Why don't the Government invest in supporting local farmers, subsiding and educating and promoting fresh vegetables, fruit and well looked after animal products. Why don't we have low cost cooking classes and educational seminars? Community gardens and chook pens in every neighbourhood for fresh eggs? Food CAN be cheap and accessible. Every family deserves fresh, quality food and deserve to know what they are feeding themselves and their kids. Stop green washing the packaged processed products and start having an honest, transparent and open relationship with the food system. Please sign and share this petition widely.

Jessie Reimers
13,273 supporters